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  • BioEdge: UK opens inquiry into abortion of disabled children
    palate or club foot have become sufficient grounds for an abortion But the spark for the inquiry was reports of sex selective abortion in Britain Ms Bruce s early day motion says that MPs should be appalled that there now appears to be evidence of significant numbers of baby girls being aborted illegally in the UK simply because of their gender and calls for immediate and effective enforcement of the law in this area The enquiry has generated mixed reactions Writing in Oxford s Practical Ethics blog Charles Foster was happy to see that these questions are finally being faced But the head of the British Pregnancy Advisory Service Ann Furedi said that the inquiry had the wrong focus the current enquiry is concerned with the impact of the current law on disabled people and their families but this inquiry should start from concern for the woman and her family who discover a pregnancy is affected by fetal abnormality MORE ON THESE TOPICS abortion disability UK This article is published by Xavier Symons and BioEdge under a Creative Commons licence You may republish it or translate it free of charge with attribution for non commercial purposes following these guidelines If

    Original URL path: http://www.bioedge.org/bioethics/uk_opens_inquiry_into_abortion_of_disabled_children/10405 (2016-02-18)
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  • BioEdge: The ethics of care in the Neolithic Age
    regular bathing toileting massaging and turning to avoid pressure sores Ms Tilley and her co author make some interesting observations about the ethics of care In modern society people with extreme disability often succumb to depression sometimes resulting in suicide either directly or indirectly by refusing care In a Neolithic community depression would have been lethal Survival therefore meant that the young man lived in a secure emotionally supportive inclusive environment in which care was provided ungrudgingly enabling M9 to grow to adulthood to develop a role for himself within the group to retain a sense of self respect and to interact with others in his community at whatever level was possible In view of the prolonged and particularly demanding nature of the care provided it seems justifiable to speculate that the carers motivations included compassion respect and affection As for M9 himself the bioarcheologists suggest that he must have had a remarkable personality M9 s prolonged survival with disability suggests an extraordinarily strong will to live a robust psychological adaptation a self esteem capable of overcoming the complete loss of independence and a personality capable of inspiring others to maintain high quality and costly care over time This is not the only example of a prehistoric ethic of care A Neanderthal who lived in Iraq 45 000 years ago survived cranial trauma amputation of his right arm other injuries and osteomyelitis thanks to the care of his community A skeleton dating back 10 000 years ago in Calabria exhibited signs of severe dwarfism Since the young man would not have been able to keep up with other tribesmen in searching for food his companions must have accommodated his handicaps MORE ON THESE TOPICS disability healthcare This article is published by Michael Cook and BioEdge under a Creative Commons licence

    Original URL path: http://www.bioedge.org/bioethics/the_ethics_of_care_in_the_neolithic_age/10357 (2016-02-18)
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  • BioEdge: “Ashley treatment” spreading as solution for disabled
    it meant a hysterectomy and removal of her breast buds plus taking hormones Her family calls her a pillow angel Her father named AD to protect the family s anonymity told the Guardian that he was in touch with about a dozen couples around the world who had implemented the Ashley treatment for their children But he thought that about 100 had already done it and thousands more were interested The treatment is controversial because it radically alters a person s body without their consent and because of its implications for public attitudes towards the disabled Curt Decker director of an American group the National Disability Rights Network will release a report next month calling for a ban growth attenuation treatment for disabled children This is a violation of the civil rights of individuals and it should be prohibited Decker told the Guardian Parents have rationalised that this is an OK thing to do but it treats people as though they have no worth and that s a slippery slope that could end with the idea that people with disabilities don t have to be kept alive or integrated in society Silvia Yee a lawyer with the Disability Rights Education Defense Fund was also critical This is what we were fearing It is becoming just one more choice on the menu of possibilities a medical operation that will change a person s life Who has the right to decide to change an individual into a different entity Ashley s father vehemently disagrees In his opinion the treatment makes Ashley more dignified by providing her with a better quality of life Depriving her of the treatment s benefits would be taking away from her human rights Ashley treatment on the rise amid concerns from disability rights groups The Ashley treatment Erica

    Original URL path: http://www.bioedge.org/bioethics/ashley_treatment_spreading_as_solution_for_disabled/9985 (2016-02-18)
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  • BioEdge: the latest news and articles about bioethics
    ethical says committee Michael Cook 04 December 2010 Comments tags Ashley treatment disabilities growth attentuation Growth attenuation can be a solution for some children Search BioEdge Subscribe to BioEdge newsletter Subscribe to BioEdge RSS feed Recent Posts Dutch psychiatric patients may get euthanasia too easily says US study 14 Feb 2016 A Dutch report applies the brakes on completed life euthanasia 13 Feb 2016 Celebrating 15 years of Dutch euthanasia

    Original URL path: http://www.bioedge.org/bioethics/tag/Ashley+treatment (2016-02-18)
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  • BioEdge: Is intellectual disability a reason to deny an organ transplant?
    and posted her version of a conversation with the doctor and a social worker on a blog So you mean to tell me that as a doctor you are not recommending the transplant and when her kidneys fail in six months to a year you want me to let her die because she is mentally retarded There is no other medical reason for her not to have this transplant other than she is MENTALLY RETARDED Yes said the doctor This is hard for me you know Mrs Rivera says that she offered to find a matching kidney in her large extended family but the doctor flatly refused She is not eligible because of her quality of life Because of her mental delays The hospital refused to comment on the incident but insists that it does not disqualify potential transplant candidates on the basis of intellectual abilities However children with developmental delays are complicated to care for and may have a greatly reduced life expectancy Hence hospitals may prefer to allocate scarce organs to children who have a greater chance of survival The Washington Post found that American hospitals had no consistent policy on allocating organs to children who are intellectually disabled The story went viral and prompted a column by leading bioethicist Art Caplan of the University of Pennsylvania He pointed out that There are reasons why anyone with an intellectual or physical disability might not be considered a good candidate for a transplant But those reasons to be ethical have to be linked to the chance of making the transplant succeed Otherwise they are not reasons they are only biases The issue is still not settled The Riveras are to meet officials from the Children s Hospital of Philadelphia next week cbsnews com Jan 17 MORE ON THESE TOPICS

    Original URL path: http://www.bioedge.org/bioethics/is_intellectual_disability_a_reason_to_deny_an_organ_transplant/9895 (2016-02-18)
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  • BioEdge: the latest news and articles about bioethics
    payee someone who helps manage their monthly benefits of between US 600 and 900 authorities say Fixed new documentary on transhumanism and disability Jared Yee 24 August 2011 Comments tags disability enhancement films transhumanism US Filmmaker Regan Brashear recently screened a rough cut of Fixed The Science Fiction of Human Enhancement UK woman could be forcibly sterilised Michael Cook 19 February 2011 Comments tags disability eugenics sterilization A secret UK court is studying whether it should authorise the compulsory sterilisation of a 21 year old woman Belgian court approves wrongful life Michael Cook 04 December 2010 Comments tags abortion disability wrongful life Abortion law assumes the concepts it argues Sniff detector could allow locked in patients to communicate by breathing Jared Yee 07 August 2010 Comments tags disability locked in syndrome Sniffs are a good fast trigger Legalising assisted suicide threatens us say disability advocates Michael Cook 08 January 2010 Comments tags assisted suicide disability euthanasia Oregon Special issue of Disability and Health Journal Page 2 of 2 1 2 Search BioEdge Subscribe to BioEdge newsletter Subscribe to BioEdge RSS feed Recent Posts Dutch psychiatric patients may get euthanasia too easily says US study 14 Feb 2016 A Dutch report

    Original URL path: http://www.bioedge.org/bioethics/tag/disability/P20 (2016-02-18)
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  • BioEdge: Only connect: the Pope’s global bioethics
    and in human life which must be respected Technology he says proves incapable of seeing the mysterious network of relations between things and so sometimes solves one problem only to create others This is a point which he uses to attack abortion Since everything is interrelated concern for the protection of nature is also incompatible with the justification of abortion How can we genuinely teach the importance of concern for other vulnerable beings however troublesome or inconvenient they may be if we fail to protect a human embryo even when its presence is uncomfortable and creates difficulties Far from being a Marxist rant as some US conservatives have alleged the Pope is deeply theological as if one would expect anything else Here we can add yet another argument for rejecting every tyrannical and irresponsible domination of human beings over other creatures The ultimate purpose of other creatures is not to be found in us Rather all creatures are moving forward with us and through us towards a common point of arrival which is God Rather than bioethics Francis calls his approach an ecology of man which established limits on the exercise of human freedom And this is what underlies his hostility towards gender theory The acceptance of our bodies as God s gift is vital for welcoming and accepting the entire world as a gift from the Father and our common home whereas thinking that we enjoy absolute power over our own bodies turns often subtly into thinking that we enjoy absolute power over creation Learning to accept our body to care for it and to respect its fullest meaning is an essential element of any genuine human ecology Also valuing one s own body in its femininity or masculinity is necessary if I am going to be able to

    Original URL path: http://www.bioedge.org/bioethics/only-connect-the-popes-global-bioethics/11495 (2016-02-18)
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  • BioEdge: New Pope. Old song.
    man and not man at the service of science The scientific reflection uses a magnifying glass to stop and analyze certain details And thanks to these analytical capabilities we reaffirm that a just society recognizes the right to life from conception to its natural end as primary But I would like for us to go beyond and to think attentively to the time that unites the beginning with the end Therefore recognizing the priceless value of human life we should also reflect on how we use it Life is above all a gift But this reality generates hope and a future if it is enlivened by fruitful ties from family and social relationships that open new perspectives The degree of progress of a civilization is measured by its ability to protect life especially in its most fragile stages rather than by the spread of technological means When we speak of man let us never forget the attacks on the sacredness of human life The scourge of abortion is an attack on life Leaving our brothers on the boats in the Sicilian channel is an attack on life Death in the workplace is an attack on life because the minimal security conditions are not respected Death by malnutrition is an attack on life Terrorism war violence and also euthanasia are an attack on life Loving life means always to take care of the other to wish him well to cultivate and respect his transcendent dignity Dear friends I encourage you to re launch a renewed culture of life that knows how to build networks of trust and reciprocity and knows how to offer horizons of peace mercy and communion Do not be afraid to embark on a fruitful dialogue with the whole world of science even with those who while not

    Original URL path: http://www.bioedge.org/bioethics/new-pope.-old-song/11468 (2016-02-18)
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