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  • Boston Children's Hospital Trust | Preserving Voices of ALS
    move and speak We can t change someone s medical diagnosis said Costello But we can help them maintain dignity control and social connectedness while expressing their true selves and remaining active members of the world around them After all communication is the thread that connects us all Banking for the future With message banking a patient with ALS records and curates or banks words and phrases including those that may be unique to him or her and that hold special meaning to family and friends before losing their speech Specialists load those high fidelity digital recordings into assistive devices that allow the patient to select and play the messages at will giving them the power to speak to those around them through recordings of their natural voice In addition to offering message banking as a clinical service to adults with ALS the ACP at Boston Children s Hospital will offer comprehensive augmentative communication services to people with ALS at all stages of the disease offering low tech and no tech options to individuals who cannot take advantage of message banking ACP also offers assistive technology solutions which allow people to use their computer to work and control their home environment If you could not speak and you want to say to someone I m thirsty a computer generated synthetic voice is fine If however you want to tell your child I m so proud of you you want it to come from you in your own voice Costello said I am thrilled that we can now expand the number of people with ALS who can take advantage of this incredible technology Born out of pediatric innovation A speech pathologist by training Costello has been working in the field of augmentative communication for more than three decades helping children with disabilities that affect their ability to speak He has employed and refined message banking technology with his patients for 25 years initially as a means of helping children communicate during the immediate recovery period after major surgery An intensive care nurse came to our program noting that children in the intensive care unit who are on a ventilator or other forms of breathing support are unable to speak sometimes for weeks at a time and that this was very distressing for both children and families Costello recalled She wondered if there was anything we could do That request evolved into an informal inpatient service through which a child scheduled for major surgery meets with ACP speech pathologists to bank messages before surgery The team then loads the recordings into devices that allow children to select and play their banked messages I had no idea message banking was going to be as powerful as it was for these inpatient families Costello said Hearing their child speak in their own voice helps families maintain a connection with their children Our medical staff has said it gives them a completely different sense of who their patients are And patients have repeatedly told us

    Original URL path: http://giving.childrenshospital.org/news/preserving-voice-of-als.html (2016-02-12)
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  • Boston Children's Hospital Trust | Annual Report 2014
    hope Surgeons would perform an open heart surgery to save him he d be the youngest patient to undergo the procedure Max s parents planned for a two week hospital stay three days later they were home The family credits Max s success to the strength of their son and the strength of their community at home and in Boston The firefighters who made him a member The surgeons who

    Original URL path: http://giving.childrenshospital.org/news/annual-report-2014.html (2016-02-12)
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  • Boston Children's Hospital Trust | News Archive
    Patriots January 2015 Wishing you a Happy New Year January 2015 2014 Tax Free IRA Transfers Just Approved December 2014 Hospital debuts Seacrest Studios November 2014 Philanthropy Advances Nursing September 2014 1 in Pediatrics June 2014 NSTAR Renews Pledge May 2014 Bloodmobile wheels out new look April 2014 View our 2013 Annual Report April 2014 Give Now Stay connected with us Sign up for eNews to find out the latest

    Original URL path: http://giving.childrenshospital.org/news/news-archive.html (2016-02-12)
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  • Boston Children's Hospital Trust | Seacrest Studios Opening
    are unable to leave their rooms to still be part of the fun We re so excited and proud to be opening our eighth broadcast media center at world renowned Boston Children s Hospital Providing our patients and families with the best possible hospital experience during their stay is an absolute priority for us The addition of Seacrest Studios is a wonderful way for our patients to be active while they recover stated Sandra L Fenwick Boston Children s President and CEO Keeping your spirits up is an important part of healing and we re so grateful to the Ryan Seacrest Foundation for making this broadcast media center a reality We re so excited and proud to be opening our eighth broadcast media center at world renowned Boston Children s Hospital said Seacrest Sometimes patients get bored during their stay at a hospital they miss being active and just being kids We hope the studio will serve them as not only a welcome distraction but as a constant source of fun and inspiration The studio is part of an entertainment initiative that radio and television host and producer Ryan Seacrest and his family developed through their Foundation to help patients explore the art of radio television and new media Boston Children s patients will be involved in the on air activities giving them a chance to express their creativity The studio is located on the pavilion level above the main lobby next to the Patient Entertainment Center The studio will have a dedicated full time program director to manage programming that will provide young patients an opportunity to engage in activities related to radio and TV From being a disc jockey and airing their favorite songs to watching artists perform live and interviewing celebrity guests they ll get to do

    Original URL path: http://giving.childrenshospital.org/news/seacrest-studios-opening.html (2016-02-12)
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  • Boston Children's Hospital Trust | Philanthropy Advances Nursing
    highest honor bestowed on our scientific or medical leadership endowed chairs provide a source of income to help strengthen the work of the honorees in their respective fields Sporing secured approval from hospital leadership and support from the board then made her own generous gift in time to welcome her successor Laura J Wood DNP MS RN as the first incumbent A recent bequest from Martha MacDowell Carpenter provided additional support creating the Sporing Carpenter Chair in Nursing It s the first pediatric chair committed to nursing and interprofessional practice at Boston Children s and one of only a handful in the country Its funds will provide training and career advancement opportunities Carpenter education promoter World War II Navy veteran Martha MacDowell Carpenter was herself a fierce promoter of education After earning a degree in oratory from Emerson College on the GI Bill she helped finance schooling for many young family members including her niece Debbie Tupper a radiology technologist at Boston Children s Though she had none of her own my aunt loved children and had volunteered at Boston Children s as a young woman says Tupper She was so pleased when I completed my degree and got a job here She was well aware of the hospital s reputation in research and care Before her death in 2012 Carpenter added a generous bequest for Boston Children s to her will stipulating that the funds provide educational opportunities specifically for non physician clinical staff Laura Wood current senior vice president patient care services and chief nursing officer sums up the power of the generosity of these two women Our mission to provide the highest quality health care demands that front line nurses and technicians pursue advanced education and preparation throughout their careers The Sporing Carpenter Chair will make these

    Original URL path: http://giving.childrenshospital.org/news/philanthropy-advances-nursing.html (2016-02-12)
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  • Boston Children's Hospital Trust | BJs bloodmobile news
    The Bloodmobile increases our ability to meet the demand for blood supply and offer life saving care to our patients Boston Children s Blood Donor Program collects 85 90 percent of the blood needed for our patients but there are times when we must purchase blood because of increased demand or a need for a particular blood type said Dr Kevin Churchwell Executive Vice President of Health Affairs and COO of Boston Children s Hospital Thanks to the continued generosity of our friends at BJ s Charitable Foundation the Bloodmobile increases our ability to meet the demand for blood supply and offer life saving care to our patients BJ s Charitable Foundation is proud to support the Boston Children s Hospital Bloodmobile and the vital work it does throughout our communities said Bob Eddy BJ s Wholesale Club Chief Financial Officer Programs like the Bloodmobile help the BJ s Charitable Foundation fulfill its mission of making a positive long lasting impact in ways that benefit children and families The 40 foot custom coach is a high tech blood center on wheels Outfitted with five beds and all of the equipment available at the hospital based blood center technicians can collect different blood components such as red cells and platelets for many different patient needs The onboard computer system makes the process efficient by allowing technicians to quickly enter donor information and access hospital records BJ s Charitable Foundation continues its ongoing support of Boston Children s Hospital donating 250 000 to support the Bloodmobile Since 2005 BJ s Charitable Foundation has contributed more than 650 000 to Boston Children s supporting the hospital s Yawkey Family Inn Community Asthma Program the Boston Children s Hospital main campus playground and other important areas Additionally BJ s Charitable Foundation will be donating

    Original URL path: http://giving.childrenshospital.org/news/bjs_bloodmobile_news.html (2016-02-12)
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  • Boston Children's Hospital Trust | Our Staff
    Lonergan nicole lonergan chtrust org 617 355 2777 Media Relations Katie Largay Devine katie devine chtrust org 857 218 3112 Corporate Giving Cause Marketing Charles Savicki charles savicki chtrust org 857 218 3184 Corporate Philanthropy Jane Hamel jane hamel chtrust org 617 355 8833 Corporate Sponsorships Michael Bornhorst michael bornhorst chtrust org 617 355 5336 Donor Relations Circle of Care Circle of Leadership Colleen Gleason Epple colleen gleason epple chtrust org 857 218 3137 Donor and Gift Services Ethridge King ethridge king chtrust org 617 355 8868 Dream Maker Program Elizabeth Ehinger dreammaker chtrust org 857 218 5474 Donor Relations Danielle Stephenson danielle stephenson chtrust org 617 355 2610 Events Miles for Miracles Run for Boston Children s Hospital Jennifer Kaczenski run chtrust org Eversource Walk for Boston Children s Hospital walk chtrust org 866 303 WALK Community Fundraisers Jennifer Kaczenski events chtrust org 857 218 3100 Foundation Giving Lisa Kaufman lisa kaufman chtrust org 617 355 2428 Julia Van julia van chtrust org 857 218 3109 Individual Giving Annual Giving Hilary Smiley Marshall hilary marshall chtrust org 857 218 3120 Major Gifts Sophia Monaghan PhD sophia monaghan chtrust org 857 218 3117 Planned Giving Laureen Cahalane laureen cahalane chtrust

    Original URL path: http://giving.childrenshospital.org/our-staff.html (2016-02-12)
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  • Boston Children's Hospital Trust | Getting Started
    cannot exceed 30 of your net revenue Will your fundraiser be annual Do you wish to donate funds raised to a specific area of the hospital If you have any questions about the registration process contact our team at 857 218 5082 or events chtrust org How we can help For all fundraisers Boston Children s can offer advice on event planning help you determine where to direct your gift at the hospital providing critical mission support in the hospital s area of greatest need or identifying a hospital program department that s meaningful to you provide you with a logo for your marketing materials mail a letter of endorsement used to validate the authenticity of your event provide banners balloons and other promotional items based on the type of event provide thank you postcards provide access to your own fundraising page Unfortunately we cannot guarantee event attendance of patients physicians or staff guarantee staff participation at your committee or planning meetings provide mailing lists of donors or vendors guarantee volunteer support at the event provide Boston Children s Hospital stationery or create marketing materials financially support or reimburse you for expenses solicit businesses or vendors for support provide patient

    Original URL path: http://giving.childrenshospital.org/events/community-fundraisers/getting-started.html (2016-02-12)
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