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  • Member Stories
    death syndrome and as you can see I survived thank God but not without much emergency resuscitation I would sometimes stop breathing when I slept and nobody has ever figured out why You can imagine how scary this was for my parents Fortunately I grew out of that medical problem Read more Wish Upon a Star Sandra s Story By Sandra September 2001 It all started at the end of January 1999 for me I was 55 years old I had been working at a University for 25 years Two of the students that worked for me came to work sick The virus soon spread to almost everyone in our office I was the only one that suffered permanent nerve damage I had vomiting and diarrhea and cold like symptoms I lost 14 lbs in two days I live alone and had trouble standing long enough to get food for myself I did not want anyone else to come in to help me and be exposed to this also My brother would leave Seven up and Gatorade by my door so I could try to keep from getting dehydrated I was taken to the emergency room four times and they kept giving me fluids I was in the hospital twice the second time for 2 1 2 weeks I did not get any better I was going 10 days without a bowel movement even with heavy laxatives I still have to take laxatives and my life revolves around when they will work I could not eat and was loosing weight fast I lost a total of 55 lbs I have since gained some of that back I spent 4 1 2 months bedridden My blood pressure on standing dropped to 23 14 Several times I felt as if I was going to die I also have trouble with dry mouth and throat which is part of the autonomic problems Read more Sandra s Story Dave s Story By Dave August 2001 POTS became my reality while I was finishing my last degree in college I would categorize the onset as sudden and slow My first symptom was the inability to engage in normal fitness training I was heavily involved in triathlon sports and weight lifting Running became the first activity I was unable to perform Later as the syndrome progressed I developed several unusual symptoms numbness increased and decreased sweating inability to concentrate fatigue flushing after large meals heat and difficulty with standing walking Months later my doctor diagnosed me with an active mono infection This was a relief to me because it was a diagnosis I understood and felt I would recover from I rested and assumed symptoms would abate Unfortunately they did not and things got worse My method of coping was to pretend I wasn t experiencing it I did not share what I was going through with my family or friends It quickly became something I could no longer ignore and I began to get scared

    Original URL path: http://www.dinet.org/index.php/community/member-stories?start=42 (2016-04-26)
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  • Registration
    No profile image Upload profile image Select image from gallery Your image will be resized if needed to a maximum dimension of 200 pixels width x 500 height automatically but your image file should not exceed 2000 KB Select file By clicking Register you certify that you have the right to distribute this photo Email Username Password Verify Password City State full name Zip Postal Code Country United States Canada Mexico South America United Kingdom France Germany Other EU Russia China India Australia Other Asia Other Africa Other Americas Member Type Patient Care Giver Family Physician Other Medical Interests Your Age Group 13 19 20 s 30 s 40 s 50 s 60 s 70 Your Gender Female Male About Me Looking For Gender Male Female Any Looking For Age 13 19 20 s 30 s 40 s 50 s 60 s 70 Any Connect with people from country Any United States United Kingdom France Germany Mexico Canada Connect with people who are interested in Any POTS Hypertension Hypotension Neuropathy General Dysautonomia Connect with people from state Any Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware Florida Georgia Hawaii Idaho Illinoise Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Neveda New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennesee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Washington DC Required field Field visible on your profile Field not visible on profile Information Point mouse to icon In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These

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  • Lost your Password?
    Assistance Studies Dysautonomia Links DINET Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login Lost your Username or your Password Reminder needed for Lost Username Lost Password If you lost your username please enter your E mail Address leaving Username field empty then click the Send Username button and your username will be sent to your email address If you lost your password but know your username please enter your Username and your E mail Address press the Send Password button and you will receive a new password shortly Use this new password to access the site If you forgot both your username and your password please recover the username first then the password To recover your username please enter your E mail Address leaving Username field empty then click the Send Username button and your username will be sent to your email address From there you can use this same form to recover your password Username E mail Address In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer

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  • DINET Connect Registration
    Advisors Information Resources Newsletters Knowledge Base Support Groups POTS Place POTS Overview POTS Symptoms POTS Mechanisms POTS Causes POTS Detection POTS What Helps POTS What to avoid POTS Myths POTS Research POTS Useful Links POTS Video NCS NCS General Information NCS Links PAF Informative Links MSA Informative Links Assistance Studies Dysautonomia Links DINET Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login Login Username Password Remember me Forgot login Register This login will give you access to your DINET Connect account If you would like to login to your DINET Forum account please visit this page http forums dinet org and click on the sign in link in the upper right corner In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum

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  • Physician List
    Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login DINET Physician List Click the column name to sort and again to reverse the sort Last Name First Name City State Country Specialty Illnesses Treated Abdallah Hasan MD Reston VA US Pediatric Cardiology unknown Ahern Thomas MD La Jolla CA US Cardiology unknown Albanese Alberto MD Milano IT Neurology PAF SAF MSA Parkinsonian Syndromes Alboni Paolo MD Cento FE IT Cardiology unknown Alo Mohammed S DO Toledo OH US Cardiology POTS NCS Cardioinhibitory Syncope Vasodepressor Syncope Arden Emilia DO Portland OR US Cardiology POTS Armitano Erik MD Kirkland WA US Neurology Dysautonomia CRPS POTS Autonomic Neuropathy Banks Aaron MD Bakersfield CA US Pediatric Cardiology unknown Barboi Alexandru C MD Chicago IL US Neurology POTS Bayliss John MD Hemel Hempstead GB Cardiology Autonomic Failure Benditt David G MD Minneapolis MN US Cardiology POTS NCS NMS Vasovagal Syncope Carotid Sinus Syncope Biaggioni Italo MD Nashville TN US Clinical Pharmacology Autonomic Dysfunction Orhtostatic Hypotension Syncope Blitshteyn Svetlana MD Williamsville NY US Neurology Autonomic disorders Boris Jeffrey MD Philadelphia PA US Pediatric Cardiology POTS EDS NCS Bronfin Ludmila MD New York NY US Neurology POTS NCS Cannom David MD Los Angeles CA US Cardiology unknown Chelimsky Thomas C MD Milwaukee WI US Neurology unknown Cohen Jeffrey A MD Lebanon NH US Neurology PAF SAF MSA Diabetic autonomic neuropathy Consevage Michael W MD Wormleysburg PA US Pediatric Cardiology POTS NCS Cooley Ryan MD Grafton WI US Electrophysiology POTS NCS Autonomic Failure IST Cortelli Pietro MD Bologna IT Neurology POTS NCS PAF SAF MSA Associated Sleep Disorders Pages 1 2 3 4 5 6 7 Search Physicians First Name Last Name

    Original URL path: http://www.dinet.org/index.php/index.php?option=com_physicianlist&view=physicians&Itemid=276 (2016-04-26)
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  • Knowledge Base
    such as dizziness fainting visual disturbances and neck pain Mathias Mallipeddi Bleasdale Barr 1999 Other symptoms such as chest pain fatigue and sexual dysfunction may also occur Symptoms are worse when standing and are sometimes relieved by sitting or lying flat Our web site provides a page full of links to pure autonomic failure resources on the Internet Multiple System Atrophy Shy Drager Syndrome MSA A degenerative disease of the central nervous system MSA usually becomes apparent when one is in their fifties or sixties Genitourinary dysfunction impotence headache neck pain dimming of vision frequent yawning orthostatic hypotension gait disorder sleep disorders and hoarseness may occur with multiple system atrophy Polinsky 1996 Loss of sweating rectal incontinence iris atrophy external ocular palsies paralysis of eye muscles rigidity tremor fasciculations and wasting of distal muscles may also occur Rehman 2001 Loss of balance difficulty moving loss of fine motor skills muscle aches and pains changes decline in facial expressions difficulty chewing or swallowing and a mild decline in intellectual function are among other symptoms patients may experience MEDLINEPlus 2003 Multiple System Atrophy MSA is a fatal illness and patients usually die within ten years of onset Our website provides a page full of links to multiple system atrophy resources on the Internet References 1 Mathias C J Mallipeddi R and Bleasdale Barr K 1999 Symptoms associated with orthostatic hypotension in pure autonomic failure and multiple system atrophy Journal of Neurology 246 10 893 898 2 MEDLINEPlus Heath Information 2003 Multiple System Atrophy Retrieved September 8 2003 from http www nlm nih gov medlineplus ency article 000757 htm 3 Polinsky R J 1996 Multiple system atrophy and Shy Drager syndrome In Robertson P A Low R J Polinsky Eds Primer on the autonomic nervous system p 222 San Diego CA Academic Press 4 Rehman H U 2001 Multiple system atrophy Postgraduate Medical Journal 77 908 379 382 5 Robertson D 2002 July Drug therapy National Dysautonomia Research Foundation Patient Conference Washington D C In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a

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  • POTS Lecture with Carrie Burdzinski
    system signaling pathways preganglionic neuron ganglionic neuron acetylcholine cholinergic receptors nicotinic receptors muscarinic receptors norepinephrine adrenergic receptors alpha receptors beta receptors 43 50 The dysautonomia family of conditions POTS neurally mediated syncope autonomic failure 46 13 Etiology of POTS genetic mutations joint hypermobility Ehlers Danlos syndrome norepinephrine transporter NET deficiency catecholamine synthesis tyrosine hydroxylase TH aromatic L amino acid decarboxylase AADC dopamine beta hydroxylase DBH catechol O methyltransferase COMT monoamine oxidase A MAO A epigenetics deconditioning mononucleosis autoimmunity Guillain Barre syndrome 1 06 39 Diagnosing POTS medical history tilt table test catecholamines test specialized autonomic testing 1 16 18 POTS prognosis 1 19 26 Managing and treating POTS non pharmacologic diet methylcobalamin methyltetrahydrofolate exercise environment psychosocial considerations 1 37 47 Managing and treating POTS medications mineralocorticoids beta blockers alpha agonists reuptake inhibitors psychostimulants 1 53 46 Conclusion and hope for the future In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/24-pots/126-postural-orthostatic-tachycardia-syndrome-pots-dysautonomia-and-the-autonomic-nervous-system (2016-04-26)
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  • Postural Orthostatic Tachycardia Syndrome
    of POTS and contains sections on symptoms mechanisms causes tests myths links and research There are also sections with information on what may help or hinder POTS patients To read more about Postural Orthostatic Tachycardia Syndrome click on the links under the POTS Place category in the Information Resources section of the navigation bar In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/24-pots/122-postural-orthostatic-tachycardia-syndrome (2016-04-26)
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