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  • Neurocardiogenic Syncope (NCS)
    Internet is included as well To read more about neurocardiogenic syncope click on the links under the NCS category in the Information Resources section of the navigation bar Reference Robertson D 2002 July Drug therapy National Dysautonomia Research Foundation Patient Conference Washington D C In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric disorders and brain fog To read the full article www

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/25-ncs/123-neurocardiogenic-syncope-ncs (2016-04-26)
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  • Pure Autonomic Failure (PAF)
    web site provides a page full of links to pure autonomic failure resources on the Internet References Mathias C J Mallipeddi R and Bleasdale Barr K 1999 Symptoms associated with orthostatic hypotension in pure autonomic failure and multiple system atrophy Journal of Neurology 246 10 893 898 In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric disorders and brain fog To read the

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/26-paf/124-pure-autonomic-failure-paf (2016-04-26)
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  • Multiple System Atrophy (MSA)
    and patients usually die within ten years of onset Our website provides a page full of links to multiple system atrophy resources on the Internet References 1 MEDLINEPlus Heath Information 2003 Multiple System Atrophy Retrieved September 8 2003 from http www nlm nih gov medlineplus ency article 000757 htm 2 Polinsky R J 1996 Multiple system atrophy and Shy Drager syndrome In Robertson P A Low R J Polinsky Eds Primer on the autonomic nervous system p 222 San Diego CA Academic Press 3 Rehman H U 2001 Multiple system atrophy Postgraduate Medical Journal 77 908 379 382 In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/27-msa/125-multiple-system-atrophy-msa (2016-04-26)
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  • DINET’s 10th Anniversary
    they share about ways that DINET has helped them over the years Thank you to everyone who has been a part of DINET whether as a member volunteer or donor We are very grateful for you Happy 10th Anniversary DINET In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric disorders and brain fog To read the full article www ncbi nlm nih gov

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/29-dinet/119-dinet-s-10th-anniversary (2016-04-26)
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  • Welcome to DINET's New Website
    time finding a web design company that was the right fit for DINET s particular needs Nina Wilde recommended Bray Industries to me and they were just the web design company we needed On behalf of the DINET community I would like to extend a huge thank you to Charlie Bray for building our new website I have greatly enjoyed working with him on this project He truly went the extra mile for us and did a fantastic job We will continue to work with Bray Industries in the future in order to maintain a website that serves the dysautonomia community well We hope that this new website will be beneficial for all of you and we hope that DINET will be able to continue to serve the dysautonomia community for years to come Enjoy the new website Rachel Lundy DINET President In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/29-dinet/118-welcome-to-dinet-s-new-website (2016-04-26)
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  • I Didn’t Ask For This Life
    was really apprehensive but I went for my family s sake He then started having all of these tests run Some of the tests I had before but he had them done again at a different hospital because he did not have any faith in my hometown hospital but then neither did I Every test came back negative Then he had a tilt table test done It came back inconclusive But he was putting all of my symptoms together and told me that I had partial Autonomic Dysfunction I didn t know what it was or how serious it was until I got home and researched it on the internet Then I got real scared At that time he put me on Florinef to help raise my blood pressure I was on it for a few weeks and my blood pressure was still dropping so he added Iodine and told me that I needed to see a neurologist Well I had my appointment with the neurologist He confirmed that I have multiple systems Autonomic Dysfunction He is now researching specialty tests to see if he can come up with what is causing this There is no history in my family of any neurological problems and since I did not injure my neck he does not think that the wreck caused it He said that it could have triggered it or I could have been having mild symptoms before and just ignored them In this journey I also found other medical problems that I had and did not know about however none of them are fatal It was an eye opener when the doctor told me that I probably had a maximum of 10 years to live However I told him Not Me I am going to be the first to live longer I am trying to adjust my lifestyle to make it more comfortable for me and I am spending as much time with my family as I can I have 2 beautiful grandsons who I adore a husband who has stuck by me for 33 years and a daughter son and son in law whom I love very much I have made a list of things that I want to do accomplish or go to while I can I plan on doing everything on that list Who knows I might even add to the list I plan on enjoying every minute of every day to the fullest No I didn t ask for this life but it is the one that I have and I am going to make the most of it If you know that something is wrong with you and it is out of your control keep searching for the reason Don t believe the doctor if he tells you nothing is wrong with you and things are happening to you that you can not control Keep searching It may be nothing or it may be life shortening Find a good doctor one who cares about

    Original URL path: http://www.dinet.org/index.php/community/member-stories/68-i-didn-t-ask-for-this-life (2016-04-26)
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  • No, Your Machine Is Not Broken, My Heart's Really Beating That Fast
    EKG s a holter monitor and so much blood work that I began to look like a junkie but everything kept coming back relatively normal I did have a pronounced sinus arrhythmia and PACs premature arterial complexes but those weren t the cause of all this trouble The only evidence I was sick at all was my plummeting BP and soaring heartbeat I was eventually sent home by the stumped doctors and told to take it easy I had to wait another month before anyone ventured a diagnosis By this point I was almost completely bedridden and had lost nearly twenty pounds I went from weighing around 130 to 112 Finally I went to see an electro physiologist who told me I have orthostatic intolerance which anyone could have guessed He also told me to eat more salt and drink more fluids Now a month after the diagnosis I ve learned coping mechanisms on my own to make this thing more manageable I ve cut down to three classes and try to stay in bed most of the time with my legs propped up the way you posture someone who is in shock I try to eat 10 grams of salt a day and try to drink no less than 1 1 2 liters of water a day When I do get out of bed I sit for five minutes before standing and have begun using a cane to help me keep my balance If I m able to go to class I ve learned that sitting with my knees to my chest fetal position helps with the dizziness and if I sit like that I can usually make it through an entire lecture I ve completely cut sugars caffeine and dairy out of my diet which seems to help The doctors still don t know what to do with me And I m still looking for someone who will try to treat this rather than scratch their head at it I think that s been the most frustrating aspect of my illness no one knows how to help or even what s causing this They just shake their heads and refer me to another specialist Before getting sick I operated under the naive assumption that doctors cure illness Now I know that they cure some illness but there s a vast sea of information about the human body and its workings that they don t know This website has helped me immensely though I know now that I m not alone that this happens to other people This makes it easier to live with OI By taking things one day at a time I feel as though my life is tolerable although far from perfect Note I live in the Honolulu area so if anyone knows a doctor who has experience with POTS or OI who doesn t require a plane ride to go see please email me at laurenem hawaii edu Thanks In The News Be brave Give

    Original URL path: http://www.dinet.org/index.php/community/member-stories/67-no-your-machine-is-not-broken-my-heart-s-really-beating-that-fast (2016-04-26)
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  • Not Alone
    OK at first and then they tilted me all the way up I felt like I was going to die It was the worst I have ever felt in my life My blood pressure went to 70 40 and I said please let me down I really felt moments from death When my blood pressure was that low my pulse was sky high My diagnosis was made I was put on Zoloft which had helped some patients and put on a high salt diet Some of my friends still didn t believe that I had a problem because I was mostly functional It s been four years since my diagnosis and some of the symptoms have amazed me I have an absolutely horrible memory I have to write everything down and I often lose my train of thought in mid sentence I ll remind myself to tell someone a story and then it s gone I make lists but forget I made them I still urinate way too often and have trouble sleeping My hands and feet are always freezing while the rest of me is always warm and when I wake up I m covered in sweat and my hands are asleep My heartbeat is sometimes irregular and I have IBS and trouble swallowing I am unable to tolerate any antibiotics I think because of the many I was prescribed on my way to a diagnosis I wondered a lot of the time if there was something wrong with me if I should just hide what I was feeling because they didn t seem to go with any illness I knew but I m glad I didn t hide it Now I ve found a place where I can cope with my illness and know I m not alone In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few

    Original URL path: http://www.dinet.org/index.php/community/member-stories/66-not-alone (2016-04-26)
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