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  • Dysautonomia Links
    Elusive syndromes Treating the biologic basis of fibromyalgia and related syndromes http www ccjm org pdffiles Clauw1001 pdf Hormones Influence of the menstrual cycle on sympathetic activity baroreflex sensitivity and vascular transduction in young women http circ ahajournals org cgi content full 101 8 862 Hypovolemia Hypovolemia in syncope and orthostatic intolerance role of the renin angiotensin system http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 9274896 dopt Abstract Is this patient hypovolemic http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10086438 dopt Abstract Idiopathic hypovolemia a self perpetuating autonomic dysfunction http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 9869552 dopt Abstract Lipodystrophy Partial lipodystrophy in a boy http www indianpediatrics net jan2000 case3 htm Magnesium Erythrocyte magnesium in symptomatic patients with primary mitral valve prolapse relationship to symptoms mitral leaflet thickness joint hypermobility and autonomic regulation http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 1844553 dopt Abstract Cardiovascular consequences of magnesium deficiency and loss pathogenesis prevalence and manifestations Magnesium and chloride loss in refractory potassium repletion http www mgwater com cardio shtml Magnesium and therapeutics http www mgwater com dur01 shtml Magnesium deficiency in the pathogenesis of mitral valve prolapse http www mdheal org magnesiu htm Review and hypothesis Might patients with the chronic fatigue syndrome have latent tetany of magnesium deficiency http www mgwater com clmd shtml The magnesium web site Links to over 300 articles discussing magnesium and magnesium deficiency http www mgwater com index shtml Medications Treatments Web Site for Cardiovascular and Autonomic Pharmacology http courses washington edu chat543 cvans Drug protects against nervous system failure http www news harvard edu gazette 1997 04 17 DrugProtectsAga html Treatment of orthostatic hypotension with erythropoietin http content nejm org cgi content absract 329 9 611 Effects of long term clonidine administration on the hemodynamic and neuroendocrine postural responses of patients with dysautonomia http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 6295714 dopt Abstract Cardiac vagal response to water ingestion in normal human subjects http cs portlandpress com cs 103 0157 cs1030157 htm Medicinal uses of licorice through the millennia the good and plenty of it http fkogserver bmc uu se course B Liquorice pdf Licorice root A natural sweetener and an important ingredient in Chinese medicine http www iupac org publications pac 2002 pdf 7407x1189 pdf Licking latency with licorice root http www jci org cgi content full 115 3 591 Adverse drug reactions related to drugs used in orthostatic hypotension a prospective and systematic pharmacovigilance study in France http www ncbi nlm nih gov pubmed 15991040 dopt Abstract Mitochondrial disease and dysautonomia Mitochondrial cytopathy in adults what we know so far http www ccjm org pdffiles COHEN701 PDF Mitochondrial encephalomyopathies presenting with features of autonomic and visceral dysfunction http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 8736411 dopt Abstract A case of mitochondrial encephalomyopathy with peripheral neuropathy and autonomic symptoms http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 7605684 dopt Abstract Neurologic presentations of mitochondrial disorders http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10641610 dopt Abstract Mitral valve prolapse The phenomenon of dysautonomia and mitral valve prolapse http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 8003350 dopt Abstract Exercise response in young women with mitral valve prolapse http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 2805839 dopt Abstract Multiple system atrophy shy drager syndrome SDS MSA support group http www shy drager org Web site full of links to other sites about MSA SDS http www corwin millman com shy drager links html Norepinephrine transporter Genetic or acquired deficits in the norepinephrine transporter current understanding of clinical implications http journals cambridge org action displayAbstract fromPage online aid 168695 Orthostatic intolerance is not necessarily related to a specific mutation Ala457Pro in the human norepinephrine transporter gene http www ncbi nlm nih gov pubmed 12589229 dopt Abstract Phenotypical evidence for a gender difference in cardiac norepinephrine transporter function http ajpregu physiology org cgi content full 286 5 R851 The Nutcracker phenomenon Does severe nutcracker phenomenon cause pediatric chronic fatigue http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10749295 dopt Abstract Nutcracker phenomenon demonstrated by three dimensional computed tomography http www medonline com br nutpn pdf Diagnosis of the nutcracker phenomenon using two dimensional ultrasonography http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 9491284 dopt Abstract Magnetic resonance angiography in nutcracker phenomenon http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10230562 dopt Abstract An effective transluminal balloon angioplasty for pediatric chronic fatigue syndrome with nutcracker phenomenon http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10661488 dopt Abstract Nutcracker phenomenon treated with left renal vein transposition a case report http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10331171 dopt Abstract The nutcracker syndrome its role in the pelvic venous disorders http www ncbi nlm nih gov pubmed 11700480 dopt Abstract Outlook Orthostatic hypotension in organic dementia relationship between blood pressure cortical blood flow and symptoms http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 8924753 dopt Abstract Neurocardiovascular instability hypotensive episodes and MRI lesions in neurodegenerative dementia http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10818535 dopt Abstract Orthostatic hypotension in Alzheimer s disease result or cause of brain dysfunction http www ncbi nlm nih gov entrez query fcgi cmd Retrieve db PubMed list uids 10476310 dopt Abstract Orthostatic hypotension as a risk factor for stroke http stroke ahajournals org cgi pmidlookup

    Original URL path: http://www.dinet.org/index.php/information-resources/dysautonomia-links (2016-04-26)
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  • Join DINET
    necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric disorders and brain fog To read the full article www ncbi nlm nih gov pmc articles PMC4490655 The BIG POTS Survey Vanderbilt University and Dysautonomia International have partnered to launch the largest international study on Postural Tachycardia Syndrome POTS POTS impacts millions around the world yet no large studies have ever been conducted until now This study enables patients to share their experiences directly with researchers an important and innovative way to study

    Original URL path: http://www.dinet.org/index.php/community/join-dinet (2016-04-26)
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  • Member Stories
    a long period of time was physically emotionally and professionally devastating Without a diagnosis there had been no prognosis no treatment no way of knowing how best I could manage my symptoms or prevent exacerbations of my illness no support group and no capacity to plan my life or to know how long I would live or work Read more Dianne s Story Learning Self Management It s All in Your Head by Jordan Relph Hi guys My name is Jordan Relph and I m 13 years old It all started February 25 th 2009 I got the flu and had a fever of 102 7 I was very sick The second week I tried to go back to school but my mom came to pick me up because I could not stop coughing After that I slept a ton I would wake up at 11 00 AM and eat then I would go back to sleep I would wake back up around 7 00 and eat and then go back to bed My pediatrician diagnosed me with mono and told me to get lots of sleep He said that I got mono because I was still recovering from pneumonia and the flu Two weeks later my pediatrician said that I had CMV a cousin of mono I kept sleeping almost all day and night Finally I went back to school on March 23 but fainted during mass I go to St Thomas and had to be brought home in a wheelchair That night I was at the hospital with paralysis I was completely unable to move and was fed bathed and helped to the bathroom by my mother friends and family The next day we left the hospital because the doctors weren t doing anything to help me besides the CT scan Read more It s All in Your Head Coming or Going By Barb August 2009 My name is Barb I am 56 years old now but started dealing with this in 2006 after my gallbladder was taken out After having my gallbladder out the unknown began At the time I had no idea what was going on other than being taken to the hospital several times After many doctor visits to see what was happening to me I said something to my internist doctor and he said I needed to see a cardiac doctor I was set up for a tilt table test The doctor told me that I have neurocardiogenic syncope vasovagal etc I am on a beta blocker now and must tell all my doctors before anything is done to me I have been on a beta blocker since 2006 and also started using salt tablets If I start feeling funny I put half of a salt tablet inside the cheek of my mouth which helps It is so hard to tell people what I went through with this disorder I would go into an epileptic type seizure draw my arms to my chest and shake all over I couldn t hold my legs still and I talked like Katharine Hepburn I have not passed out but have been so close I would lose control of my bowels and then be so tired after all the things that had happened that I would want to sleep After a seizure I would go home and sleep between 4 10 hours depending on how bad the seizure was I can no longer work due to all of my medical problems I do play the mountain dulcimer and bowed psaltery but I can t sit long due to my seizures the prolonged sitting can activate a seizure I can have restroom problems and if I don t make it to the restroom I can have and have had a seizure If I become sick such as with a sinus infection it can bring on a seizure I tried to perform at church for all 3 services and the last service I had to sit out because of having a mild seizure Along with all of this I have bursitis in both hips have trouble walking sitting standing and arthritis in the lower back which does not help walking sitting standing etc Read more Coming or Going Mystery Magdalene by Magdalene Law August 2009 Hello my name is Magdalene Law and I never thought it would be so hard to get HELP It started when I was in high school 01 The doctor ruled out MS and said it was either an unexplained muscle disorder or all in my head which didn t make sense to me I had gone from being number 2 on my cross country team to not even being able to run around the track all in one day The real trouble all started one day in March of 2008 After I had eaten at a Chinese restaurant I found myself at home in bed rolling around because I had this painful spot in my abdomen that at first felt like it may be a gas bubble and then eventually turned into sharper pains with nausea I thought that maybe I had just eaten some bad food The next morning I woke up much worse than the night before the pain was so bad that I couldn t stand up straight My mom said that I should go to the emergency room so that is what I did When I arrived at St Mary s emergency room I of course waited 3 hours hunched over crying Finally I was able to go back to be seen I expressed everything I felt to the doctor I also explained that I was born with gastroschisis but had not had any problems since I was a little baby only the occasional scar tissue discomfort Gastroschisis has left me with a large scar from the bottom of my chest to my lower abdomen Gastroschisis gas tro ski sis is an opening in the abdominal wall through which the internal

    Original URL path: http://www.dinet.org/index.php/community/member-stories (2016-04-26)
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  • DINET Connect Program Info
    DINET Informational Brochure Community Meet and Interact Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List A good Dr is hard to find Help Us Help our community Donate Volunteer Physician Brochures Disclaimer Please Read This Home About Us About Us Advisors Information Resources Newsletters Knowledge Base Support Groups POTS Place POTS Overview POTS Symptoms POTS Mechanisms POTS Causes POTS Detection POTS What Helps POTS What to avoid POTS Myths POTS Research POTS Useful Links POTS Video NCS NCS General Information NCS Links PAF Informative Links MSA Informative Links Assistance Studies Dysautonomia Links DINET Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login DINET Connect Info The DINET Connect program allows people we manually authorize to interact with our community message other members and many more connection options We value your privacy Your email exact address and name are not shown to other members unless you send it to them We will do our best to protect your information however the internet is a turbulent

    Original URL path: http://www.dinet.org/index.php/community/meet-member-program-info (2016-04-26)
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  • DINET Connect Log In
    Advisors Information Resources Newsletters Knowledge Base Support Groups POTS Place POTS Overview POTS Symptoms POTS Mechanisms POTS Causes POTS Detection POTS What Helps POTS What to avoid POTS Myths POTS Research POTS Useful Links POTS Video NCS NCS General Information NCS Links PAF Informative Links MSA Informative Links Assistance Studies Dysautonomia Links DINET Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login Login Username Password Remember me Forgot login Register This login will give you access to your DINET Connect account If you would like to login to your DINET Forum account please visit this page http forums dinet org and click on the sign in link in the upper right corner In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum

    Original URL path: http://www.dinet.org/index.php/community/log-in (2016-04-26)
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  • Registration
    No profile image Upload profile image Select image from gallery Your image will be resized if needed to a maximum dimension of 200 pixels width x 500 height automatically but your image file should not exceed 2000 KB Select file By clicking Register you certify that you have the right to distribute this photo Email Username Password Verify Password City State full name Zip Postal Code Country United States Canada Mexico South America United Kingdom France Germany Other EU Russia China India Australia Other Asia Other Africa Other Americas Member Type Patient Care Giver Family Physician Other Medical Interests Your Age Group 13 19 20 s 30 s 40 s 50 s 60 s 70 Your Gender Female Male About Me Looking For Gender Male Female Any Looking For Age 13 19 20 s 30 s 40 s 50 s 60 s 70 Any Connect with people from country Any United States United Kingdom France Germany Mexico Canada Connect with people who are interested in Any POTS Hypertension Hypotension Neuropathy General Dysautonomia Connect with people from state Any Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware Florida Georgia Hawaii Idaho Illinoise Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Neveda New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennesee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Washington DC Required field Field visible on your profile Field not visible on profile Information Point mouse to icon In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These

    Original URL path: http://www.dinet.org/index.php/community/register (2016-04-26)
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  • Physician List
    Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login DINET Physician List Click the column name to sort and again to reverse the sort Last Name First Name City State Country Specialty Illnesses Treated Abdallah Hasan MD Reston VA US Pediatric Cardiology unknown Ahern Thomas MD La Jolla CA US Cardiology unknown Albanese Alberto MD Milano IT Neurology PAF SAF MSA Parkinsonian Syndromes Alboni Paolo MD Cento FE IT Cardiology unknown Alo Mohammed S DO Toledo OH US Cardiology POTS NCS Cardioinhibitory Syncope Vasodepressor Syncope Arden Emilia DO Portland OR US Cardiology POTS Armitano Erik MD Kirkland WA US Neurology Dysautonomia CRPS POTS Autonomic Neuropathy Banks Aaron MD Bakersfield CA US Pediatric Cardiology unknown Barboi Alexandru C MD Chicago IL US Neurology POTS Bayliss John MD Hemel Hempstead GB Cardiology Autonomic Failure Benditt David G MD Minneapolis MN US Cardiology POTS NCS NMS Vasovagal Syncope Carotid Sinus Syncope Biaggioni Italo MD Nashville TN US Clinical Pharmacology Autonomic Dysfunction Orhtostatic Hypotension Syncope Blitshteyn Svetlana MD Williamsville NY US Neurology Autonomic disorders Boris Jeffrey MD Philadelphia PA US Pediatric Cardiology POTS EDS NCS Bronfin Ludmila MD New York NY US Neurology POTS NCS Cannom David MD Los Angeles CA US Cardiology unknown Chelimsky Thomas C MD Milwaukee WI US Neurology unknown Cohen Jeffrey A MD Lebanon NH US Neurology PAF SAF MSA Diabetic autonomic neuropathy Consevage Michael W MD Wormleysburg PA US Pediatric Cardiology POTS NCS Cooley Ryan MD Grafton WI US Electrophysiology POTS NCS Autonomic Failure IST Cortelli Pietro MD Bologna IT Neurology POTS NCS PAF SAF MSA Associated Sleep Disorders Pages 1 2 3 4 5 6 7 Search Physicians First Name Last Name

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  • Donate
    Orbitz Priceline Travelocity QVC etc To see the full listing click here http www igive com html malltour cfm In order for your purchase to get credited to DINET you must have started your purchase process via the iGive website Even if you shop online only once your donation will be added to those of every other DINET supporter If you re going to shop online anyway it s the easiest donation you ll ever make If you have questions about the iGive service please see the Frequently Asked Questions link on their site http www igive com html sitemap cfm Once the link opens go to the section marked Tools for You and then open the link labeled FAQ To join iGive use the following link as it will automatically set up DINET as your recipient http www iGive com html refer cfm memberid 279907 causeid 25053 We appreciate your support In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog

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