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  • Volunteer
    Links Assistance Studies Dysautonomia Links DINET Informational Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login Volunteer Become a volunteer Would you like to volunteer for DINET We frequently need reliable volunteers for our newsletter website maintenance and more Please email webmaster dinet org Volunteer Coordinator to request a volunteer application Help build our Physician List If you know of physicians that have a special interest in any type of dysautonomia please submit their contact information to us at physicianlist dinet org Or write to Dysautonomia Information Network P O Box 301131 Portland OR 97294 United States In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you

    Original URL path: http://www.dinet.org/index.php/help-us/volunteer (2016-04-26)
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  • Physician Brochures
    Brochure Community Join DINET Forum Member Stories DINET Connect Program Info DINET Connect Log In DINET Connect Registration Physician List Help Us Donate Volunteer Physician Brochures Disclaimer Forum POTS Overview Donate DINET Connect Login Physician Brochures How many doctors did you see before you were properly diagnosed with postural orthostatic tachycardia syndrome POTS Each of you with POTS has been through a time when you were undiagnosed or misdiagnosed Do you remember how upsetting it was when no one could figure out what was wrong with you You probably even remember the faces and names of the doctors who were unable to correctly diagnose you or worse yet misdiagnosed you Now with DINET you have a chance to help educate those doctors DINET has created an educational brochure about POTS geared toward physicians As a DINET member you have the opportunity to submit the names of up to five doctors you would like to receive this educational brochure Sample Brochure Outside Inside Send a brochure To have a brochure sent to a physician please email dinetbrochures gmail com Please include the following information Name of Physician Street Address City State Province Country In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com

    Original URL path: http://www.dinet.org/index.php/help-us/physician-brochures (2016-04-26)
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  • Disclaimer
    Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with ASDs and brain fog in mastocytosis patients Methylated luteolin analogs with increased activity and better bioavailability could be developed into effective treatments for neuropsychiatric disorders and brain fog To read the full article www ncbi nlm nih gov pmc articles PMC4490655 The BIG POTS Survey Vanderbilt University and Dysautonomia International have partnered to launch the largest international study on Postural Tachycardia Syndrome POTS POTS impacts millions around the world yet no large studies have ever been conducted until now This study enables patients

    Original URL path: http://www.dinet.org/index.php/disclaimer (2016-04-26)
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  • DINET Connect Login
    Help our community Donate Volunteer Physician Brochures Disclaimer Please Read This Home About Us About Us Advisors Information Resources Newsletters Knowledge Base Support Groups POTS Place POTS Overview POTS Symptoms POTS Mechanisms POTS Causes POTS Detection POTS What Helps POTS What to avoid POTS Myths POTS Research POTS Useful Links POTS Video NCS NCS General Information NCS Links PAF Informative Links MSA Informative Links Assistance Studies Dysautonomia Links DINET Informational

    Original URL path: http://www.dinet.org/index.php/2013-11-13-06-22-55 (2016-04-26)
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  • Dysautonomia
    dizziness fainting visual disturbances and neck pain Mathias Mallipeddi Bleasdale Barr 1999 Other symptoms such as chest pain fatigue and sexual dysfunction may also occur Symptoms are worse when standing and are sometimes relieved by sitting or lying flat Our web site provides a page full of links to pure autonomic failure resources on the Internet Multiple System Atrophy Shy Drager Syndrome MSA A degenerative disease of the central nervous system MSA usually becomes apparent when one is in their fifties or sixties Genitourinary dysfunction impotence headache neck pain dimming of vision frequent yawning orthostatic hypotension gait disorder sleep disorders and hoarseness may occur with multiple system atrophy Polinsky 1996 Loss of sweating rectal incontinence iris atrophy external ocular palsies paralysis of eye muscles rigidity tremor fasciculations and wasting of distal muscles may also occur Rehman 2001 Loss of balance difficulty moving loss of fine motor skills muscle aches and pains changes decline in facial expressions difficulty chewing or swallowing and a mild decline in intellectual function are among other symptoms patients may experience MEDLINEPlus 2003 Multiple System Atrophy MSA is a fatal illness and patients usually die within ten years of onset Our website provides a page full of links to multiple system atrophy resources on the Internet References 1 Mathias C J Mallipeddi R and Bleasdale Barr K 1999 Symptoms associated with orthostatic hypotension in pure autonomic failure and multiple system atrophy Journal of Neurology 246 10 893 898 2 MEDLINEPlus Heath Information 2003 Multiple System Atrophy Retrieved September 8 2003 from http www nlm nih gov medlineplus ency article 000757 htm 3 Polinsky R J 1996 Multiple system atrophy and Shy Drager syndrome In Robertson P A Low R J Polinsky Eds Primer on the autonomic nervous system p 222 San Diego CA Academic Press 4 Rehman H U 2001 Multiple system atrophy Postgraduate Medical Journal 77 908 379 382 5 Robertson D 2002 July Drug therapy National Dysautonomia Research Foundation Patient Conference Washington D C In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/28-general-dysautonomia/121-dysautonomia (2016-04-26)
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  • DINET - Dysautonomia Information Network
    Who Are We Why DINET Our Community Knowledge Is Power Dysautonomia has many faces and countless effects Meet People Like You Knowing you aren t alone can make all the difference Find The Help You Need Physicians information user groups and more DINET Blog We publish our newsletter multiple times throughout the year in spring summer fall and winter Please see our full issues in pdf format In The Latest Issue Click Here to download your copy today In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of symptoms that include reduced cognition inability to concentrate and multitask as well as loss of short and long term memory Brain fog characterizes patients with autism spectrum disorders ASDs celiac disease chronic fatigue syndrome fibromyalgia mastocytosis and postural tachycardia syndrome POTS as well as minimal cognitive impairment an early clinical presentation of Alzheimer s disease AD and other neuropsychiatric disorders Brain fog may be due to inflammatory molecules including adipocytokines and histamine released from mast cells MCs further stimulating microglia activation and causing focal brain inflammation Recent reviews have described the potential use of natural flavonoids for the treatment of neuropsychiatric and neurodegenerative diseases The flavone luteolin has numerous useful actions that include anti oxidant anti inflammatory microglia inhibition neuroprotection and memory increase A liposomal luteolin formulation in olive fruit extract improved attention in children with

    Original URL path: http://www.dinet.org/index.php (2016-04-26)
    Open archived version from archive

  • Knowledge Base
    such as dizziness fainting visual disturbances and neck pain Mathias Mallipeddi Bleasdale Barr 1999 Other symptoms such as chest pain fatigue and sexual dysfunction may also occur Symptoms are worse when standing and are sometimes relieved by sitting or lying flat Our web site provides a page full of links to pure autonomic failure resources on the Internet Multiple System Atrophy Shy Drager Syndrome MSA A degenerative disease of the central nervous system MSA usually becomes apparent when one is in their fifties or sixties Genitourinary dysfunction impotence headache neck pain dimming of vision frequent yawning orthostatic hypotension gait disorder sleep disorders and hoarseness may occur with multiple system atrophy Polinsky 1996 Loss of sweating rectal incontinence iris atrophy external ocular palsies paralysis of eye muscles rigidity tremor fasciculations and wasting of distal muscles may also occur Rehman 2001 Loss of balance difficulty moving loss of fine motor skills muscle aches and pains changes decline in facial expressions difficulty chewing or swallowing and a mild decline in intellectual function are among other symptoms patients may experience MEDLINEPlus 2003 Multiple System Atrophy MSA is a fatal illness and patients usually die within ten years of onset Our website provides a page full of links to multiple system atrophy resources on the Internet References 1 Mathias C J Mallipeddi R and Bleasdale Barr K 1999 Symptoms associated with orthostatic hypotension in pure autonomic failure and multiple system atrophy Journal of Neurology 246 10 893 898 2 MEDLINEPlus Heath Information 2003 Multiple System Atrophy Retrieved September 8 2003 from http www nlm nih gov medlineplus ency article 000757 htm 3 Polinsky R J 1996 Multiple system atrophy and Shy Drager syndrome In Robertson P A Low R J Polinsky Eds Primer on the autonomic nervous system p 222 San Diego CA Academic Press 4 Rehman H U 2001 Multiple system atrophy Postgraduate Medical Journal 77 908 379 382 5 Robertson D 2002 July Drug therapy National Dysautonomia Research Foundation Patient Conference Washington D C In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/28-general-dysautonomia (2016-04-26)
    Open archived version from archive

  • Knowledge Base
    monoamine oxidase A MAO A epigenetics deconditioning mononucleosis autoimmunity Guillain Barre syndrome 1 06 39 Diagnosing POTS medical history tilt table test catecholamines test specialized autonomic testing 1 16 18 POTS prognosis 1 19 26 Managing and treating POTS non pharmacologic diet methylcobalamin methyltetrahydrofolate exercise environment psychosocial considerations 1 37 47 Managing and treating POTS medications mineralocorticoids beta blockers alpha agonists reuptake inhibitors psychostimulants 1 53 46 Conclusion and hope for the future Postural Orthostatic Tachycardia Syndrome Postural Orthostatic Tachycardia Syndrome Often more simply referred to as postural tachycardia syndrome or POTS this disorder is characterized by the body s inability to make the necessary adjustments to counteract gravity when standing up The defining symptom of POTS is an excessive heart rate increment upon standing However as you will discover there are a multitude of other symptoms that often accompany this syndrome As such POTS can be a difficult disorder to detect and understand Our web site provides an overview of POTS and contains sections on symptoms mechanisms causes tests myths links and research There are also sections with information on what may help or hinder POTS patients To read more about Postural Orthostatic Tachycardia Syndrome click on the links under the POTS Place category in the Information Resources section of the navigation bar In The News Be brave Give yourself or someone you love a gift to support and inspire Gorgeous bracelets necklaces earrings even scarves all engraved with the words be brave So many products to choose from in so many colors and styles These beautiful accessories are a reminder to be brave something we all need from time to time Best of all 10 from the sale of every bravelet goes directly to DINET to help us continue our mission to support and educate Find your special style and support DINET Buy one or two today Visit DINET s online kiosk on the Bravelets page at www bravelets com bravepage dysautonomia information network dinet Volunteer Opportunities at DINET We re looking for readers on our forum DINET is looking for volunteers to help us keep the forum a positive experience for its 4 500 members and growing Readers are responsible for viewing posts and material If you are interested in becoming a Forum Reader please contact us to complete a volunteer application We look forward to hearing from you Contact dinetandforuminfo dinet org Do you have a passion for the written word DINET s quarterly newsletter has room for a few new writers Applicants do not need to have professional writing experience but do need solid language and grammar skills This is a wonderful opportunity to flex your creative muscles and provide information and support to the dysautonomia community If you are interested in joining our team please contact webmaster dinet org An application and at least 2 writing samples will be required Studies Brain fog inflammation and obesity key aspects of neuropsychiatric disorder improved by luteolin From Frontiers in Science Brain fog is a constellation of

    Original URL path: http://www.dinet.org/index.php/information-resources/knowledge-base/24-pots (2016-04-26)
    Open archived version from archive



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