archive-org.com » ORG » E » EURO-ME.ORG

Total: 143

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • European ME Alliance - NMEF Expresses Concern Over Content of Seminar on Sickest Organized by Knowledge Centree
    both in terms of method and interpretation of results Both prominent researchers clinicians and a large number of patients are now asking for the background data for the study to be released so that the study s conclusions can be verified Norges ME Forening and M E Network in Norway are deeply concerned about how such a seminar as this will affect the view of the sickest patients Both patient associations are aware today of cases of egregious abuse of ill patients Very ill patients are denied the help they and their families want and remedial measures are imposed leading to serious deterioration of their situation Some patients are so traumatized by contact with those who should be helping that they no longer dare to have contact with support agencies The abuse is often based on the belief that the patient should be active and that cognitive therapy and graded exercise are good treatments for ME Norges ME Forening and M E Network in Norway believe this seminar is missing several speakers with a biomedical understanding In particular we miss any focus on the phenomenon of PEM post exertional malaise or exertional symptom exacerbation since it must be central to

    Original URL path: http://euro-me.org/news-Q12016-003.htm (2016-04-27)
    Open archived version from archive


  • European ME Alliance - News July 2015 - EMERG - European ME Research Group
    2 discussions with European researchers were conducted about the future of ME research and how better to coordinate and link together research activity in several European countries Based upon these conversations there appears to be overwhelming support and enthusiasm from the group of researchers whom IiME EMEA have brought together to work cooperatively and more effectively Forming a group or consortia of European researchers represents a very progressive step in not only helping to establish new collaborations and cement on going ones but also in developing new research ideas and priorities and bidding for funds that would allow us to work together on joint projects This is the genesis of EMERG The European ME Research Group The charity and EMEA colleagues are arranging the inaugural meeting in London this autumn a new and exciting venture for ME research Facilitated also by our supportive MPs we will convene the first meeting to bring this together in the hope that rapid and lasting progress can be made in the research treatment and cure for myalgic encephalomyelitis More information will be provided later In the meantime EMEA will be setting up a competition to devise a logo for EMERG The European ME Research

    Original URL path: http://euro-me.org/news-Q32015-001.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance - European ME Alliance - Sweden ME/CFS Conference October 2015
    and is aimed primarily at healthcare professionals and politicians 19th October 2015 13 00 17 00 Fazer restaurang och konferens Flemminggatan 18 Stockholm Afternoon meeting topics of discussion Programme ME CFS background symptoms and research Daniel L Peterson MD Simmaron Research USA Distinct differences in plasma immune signatures between early and late stage of ME CFS Mady Hornig MA MD Director of Translational Research Center for Infection Immunity and Associate Professor of Epidemiology Columbia University Medical Center USA ME CFS case definitions and the importance of a name Leonard Jason PhD Professor of psychology and Director of the Center for Community Research DePaul University Chicago Illinois USA Presentation of the newly opened ME CFS clinic at the Stora Sköndal Foundation Lena Nilsson manager Neurological rehab clinic and Ulla Lindbom neurologist Stora Sköndal More details click here 22nd October 2015 13 00 17 00 Möteplats Göteborg GFC Södra Allégatan 1B Göteborg Afternoon meeting topics of discussion Programme ME CFS background symptoms and research Daniel L Peterson MD Simmaron Research USA Distinct differences in plasma immune signatures between early and late stage of ME CFS Mady Hornig MA MD Director of Translational Research Center for Infection Immunity and Associate Professor of Epidemiology

    Original URL path: http://euro-me.org/news-Q32015-002.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance - News December 2015 - EMERG - European ME Research Group
    The European ME Alliance EMEA would like to wish all a very merry Christmas and a Happy New Year to all people with ME their family and friends across Europe

    Original URL path: http://euro-me.org/news-Q42015-001.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance - European ME Alliance Joins EFNA June 2015
    countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis known as ME or ME CFS and increasing awareness of this debilitating neurological illness To improve the recognition of ME within neurology in Europe EMEA is pleased to announce its membership of the European Federation of Neurological Associations EFNA EFNA brings together European umbrella organisations of neurological patient advocacy groups to work with other associations in the field of neurology including the European Federation of Neurological Societies EFNS in what has been termed a Partnership for Progress EFNA fulfils its aims by working through the European Commission and the European Parliament To mark this landmark development EMEA was invited to attend the first Congress of European Academy of Neurology in Berlin in June 20 23 EMEA will distribute information to delegates network attend sessions and take part in a panel discussion as well as attend the EFNA Annual General Meeting EMEA looks forward to working within EFNA to further recognition of ME within EU The members of the European ME Alliance are Belgium ME CFS Association Nieuwrode Belgium Denmark ME Info and ME Foreningen Finland Suomen CFS Yhdistys Finlands CFS förbund Holland Het Alternatief Iceland Icelandic ME

    Original URL path: http://euro-me.org/news-Q22015-002.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance - Happy New Year from EMEA
    Happy New Year from All in European ME Alliance January 2015 Return to 2015 Q1 News Last Update January 2015

    Original URL path: http://euro-me.org/news-Q12015-001.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance Research - Denmark ME Foreningen
    Address http www me foreningen dk Contact mail me foreningen dk In the window below is the actual web site of ME Forening Your browser does not support inline frames

    Original URL path: http://euro-me.org/Denmark%20ME%20Foreningen.htm (2016-04-27)
    Open archived version from archive

  • European ME Alliance - News November 2014 - EMEA Sweden RME Seminar
    is low The seminar focused on children with ME CFS and was primarily aimed at professionals in the health care and schools The presenters were Orthostatic intolerance and pediatric ME CFS Dr Peter C Rowe Johns Hopkins Children s Center United States Pediatric ME CFS Diagnosis and Management Dr Nigel Speight The University Hospital of North Durham UK Dr Speight will also cover the issue of child abuse by Medical

    Original URL path: http://euro-me.org/news-Q42014-001.htm (2016-04-27)
    Open archived version from archive



  •