archive-org.com » ORG » H » HEMAWARE.ORG

Total: 1100

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • HemAware | The Hemophilia and Bleeding Disorders Magazine
    Total votes 6 Older polls Editor s Picks Swim Time You can try lap swimming or other exercises in the pool Back to School Basics Tips for establishing relationships at your child s school New Research on Peanut Allergies Exposure to peanuts could help prevent reactions Blogs Insist Your Child Wear a Medical Alert ID No Excuses MedicAlerts are the ultimate fashion accessory said no one ever Wearing your heart on your sleeve or your medical history on your wrist may not be on the top of your couture list But for those Talk Early Honestly and Often I gained 60 pounds with my first pregnancy Steaks whole milk and ice cream were my new BFFs and on May 15 1997 I gave birth to a beautiful 8lb 1oz perfect baby girl named Rose If I had only If In Doubt Infuse It was Nana s 75th birthday party and it was a big deal Rose had just turned 2 and she was making her debut in the extended family as the first born great grandchild It was a bit of a trek to the Past Issues Pause Most Viewed Most E mailed The Pros and Cons of Infusion Devices Pumping Iron Head Bleeds and Hemophilia Dogs Priceless Contribution to Hemophilia Research Making Better Food Choices Think Again Music Therapy Used for Pain Management Treatment Breakthroughs The Carrier Barrier Factor XI Deficiency Facts NHF on Twitter Join NHF on Facebook Share links with friends comment on stories and more Need info Ask NHF Contact HANDI NHF s resource center for additional information on bleeding disorders Resource Guide Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge

    Original URL path: http://www.hemaware.org/ (2016-02-18)
    Open archived version from archive

  • Current Issue | HemAware
    raise money and network Partnering for Knowledge Online activities designed for patients with hemophilia and their parents Features Reaching Out to Local Chapters The goal is to expand resources and education to chapters with little effort on the local front Scans in Demand How this technology can identify inflammation or tears in a joint The World Federation of Hemophilia Changes Lives Program helps children and others with hemophilia in developing countries On the Move Gearing Up for a Family Spin Check with your health care provider first then get the right equipment Hemaware Jr 5 Moving Tips Just for Kids Tell your parents how you feel so they can help you Women s Health Prioritizing Balance It Starts With You Seminar warns against trying to multitask Spotlight Sled Hockey Puts Hemophilia on Ice Type of adaptive hockey allows people with hemophilia and other conditions to get out on the ice Family Matters Getting Ready for a Move Contact your new HTC and coordinate with your child s school Generation Next Spotlight on NYLI Three participants explain how the program impacted them Prime Time Building Your Retirement Define your long term goals and stick to a plan In the Pipeline Factoring in Factor X Coagadex is the first FX concentrate available Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Past Issues Summer 2015 Spring 2015 Winter 2015 Fall 2014 Summer 2014 Spring 2014 Winter 2014 Fall 2013 Summer 2013 Spring 2013

    Original URL path: http://www.hemaware.org/current-issue (2016-02-18)
    Open archived version from archive

  • Subscribe | HemAware
    information that is collected via the form is entered into the NHF database You will have the opportunity to opt out of any communication from NHF At no time is the personal information collected from a visitor shared with any individual company sponsor vendor organization or other entity outside of NHF We ask for this information for the sole purpose of gaining a better understanding of our community I am a select one Consumer Person interested in learning more about bleeding disorders Provider physician nurse physical therapist or social worker Industry professional pharmaceutical company or home healthcare provider Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Need info Ask NHF Contact HANDI NHF s resource center for additional information on bleeding disorders Home Glossary Site Map Donate Advertise Privacy Policy Subscribe Contact Us Life Stages Infants Children Teens Young Adults

    Original URL path: http://www.hemaware.org/subscribe (2016-02-18)
    Open archived version from archive

  • Fall 2015 | HemAware
    money and network Partnering for Knowledge Online activities designed for patients with hemophilia and their parents Features Reaching Out to Local Chapters The goal is to expand resources and education to chapters with little effort on the local front Scans in Demand How this technology can identify inflammation or tears in a joint The World Federation of Hemophilia Changes Lives Program helps children and others with hemophilia in developing countries On the Move Gearing Up for a Family Spin Check with your health care provider first then get the right equipment Hemaware Jr 5 Moving Tips Just for Kids Tell your parents how you feel so they can help you Women s Health Prioritizing Balance It Starts With You Seminar warns against trying to multitask Spotlight Sled Hockey Puts Hemophilia on Ice Type of adaptive hockey allows people with hemophilia and other conditions to get out on the ice Family Matters Getting Ready for a Move Contact your new HTC and coordinate with your child s school Generation Next Spotlight on NYLI Three participants explain how the program impacted them Prime Time Building Your Retirement Define your long term goals and stick to a plan In the Pipeline Factoring in Factor X Coagadex is the first FX concentrate available Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Past Issues Summer 2015 Spring 2015 Winter 2015 Fall 2014 Summer 2014 Spring 2014 Winter 2014 Fall 2013 Summer 2013 Spring 2013 Winter

    Original URL path: http://www.hemaware.org/magazine/fall-2015 (2016-02-18)
    Open archived version from archive

  • Polls | HemAware
    2 votes open Have you or your family members ever met with a genetic counselor 25 votes open When is the last time you talked to your doctor about updating your vaccines 7 votes open Have you downloaded HemAware s new iPad app 5 votes open Are you planning to get a flu vaccine this season 27 votes open Do you have any piercings 20 votes open Do you have any tattoos 24 votes open Have you talked to your daughter about what to expect when she begins menstruating 2 votes open Has the support of another family helped you cope with your child s bleeding disorder 1 vote open Do you play in a bowling league 1 vote open 1 2 next last Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Need info Ask NHF Contact HANDI NHF s

    Original URL path: http://www.hemaware.org/poll (2016-02-18)
    Open archived version from archive

  • Swim Time | HemAware
    place a pull buoy a squishy piece of foam between your legs to give your arms a workout Swimming laps provides an excellent workout but it s not for everyone Some people find them dull Others lack the range of motion to perform all of the movements needed For these folks there are plenty of other options for pool workouts Walk it off Water walking is a good exercise for everyone and especially for beginners who don t know how to swim If you can t swim play it safe and wear a life vest while in the pool Durben cautions To work different muscles walk forward backward and sideways says Durben Even in water that is not deep you get resistance to your muscles as you walk she says Safety first While swimming in a pool is generally considered safe there are some precautions that you should take Ask your physical therapist to help you design a program for your specific needs Find out if you should infuse before you swim It is a low impact activity but you are working hard says Durben Why risk a bleed If you re a lap swimmer wear goggles so you can better judge the distance to the wall otherwise you risk colliding with it and causing a bleed Further goggles protect your eyes from chlorine an irritant Other equipment to consider Ear plugs which reduce the risk of ear infections Swim caps which protect your ears from water and your hair from chlorine Swim fins which help you swim more efficiently Water shoes which help prevent cuts and abrasions in and out of the pool Finally don t forget to hydrate You may be in water but you still need to drink plenty to prevent dehydration Durben recommends 20 ounces of

    Original URL path: http://www.hemaware.org/story/swim-time (2016-02-18)
    Open archived version from archive

  • Back-to-School Basics | HemAware
    muscle bleed staff should call you and 911 advises Hatcher If you have preferences about how or when to be contacted advise the school Also tell school staff in advance which hospitals have bleeding disorder medications so they know in case of emergency says Pennick Develop a plan for absences We don t want children to fall behind Pennick says It can affect them emotionally Find out if your school will send classroom work home or have it available online so your child can review it at home Establish a routine Budget time for prophylaxis or prophy We suggest that you infuse in the morning ideally before your child goes to school says Pennick That s because factor is at its highest efficacy during the active portion of the day You may need an extra 30 to 45 minutes in the morning so factor this time commitment in whether you drive your child to school or send him or her on the bus At the end of the day allow time for homework and relaxation Ensure your child gets enough sleep Children 6 to 13 years old typically need 9 to 11 hours per night according to the National Sleep Foundation Try to stick with a consistent bedtime every night of the week Learn to let go Allow your child to try new classes and new pursuits Encourage new friendships Be open to safe activities and sports If a child has severe hemophilia and is on a regular prophy dose schedule his or her clotting factor levels should be high enough that he or she can participate in all but the most aggressive activities says Hatcher Although soccer can be too physical as kids get older some kids successfully play tennis and even team sports like volleyball Just check with

    Original URL path: http://www.hemaware.org/story/back-school-basics (2016-02-18)
    Open archived version from archive

  • New Research on Peanut Allergies | HemAware
    in the study all of whom were at high risk for developing peanut allergies were followed for five years starting when they were less than 1 year old Those in the peanut group were given peanut containing snack foods at least three times weekly those in the other group avoided peanut products In the peanut group only 3 of the children developed peanut allergies vs 17 in the avoidance group The researchers recommend that toddlers as young as 11 months old be given peanut containing foods But check with your pediatrician first Source Immune Tolerance Network press release dated February 23 2015 View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Related Most Viewed 1 Kids Lighten Your Load 2 Depression Detector 3 Kids Guide to Self Infusions 4 Getting Ready for a Move 5 A Balancing

    Original URL path: http://www.hemaware.org/story/new-research-peanut-allergies (2016-02-18)
    Open archived version from archive



  •