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  • Creative Couch Time
    friends and family Uno and Crazy Eights allow you to try to outsmart your friends and win Invite your friends over to play Flying Saucers Take Styrofoam TM bowls and staple them together at their lips to make space ships Use markers to color them and then compete with your buddies to see who can throw them the farthest into outer space Be sure to ask the grownup in charge before you throw anything in the house Or try indoor Frisbees fun for throwing and they won t hurt things or you Music Man Or put a LEGO TM or other small toy in the middle of the Styrofoam bowls before you staple them Voila A tambourine Now you ve got an instrument to play while you sing your favorite songs Arm and Shoulder Bleeds Lots of kids like to play their video games when they re lying on the couch But what if it hurts to move the joystick Toe Art Toes aren t just for walking anymore They can also be used to make art Get Mom s or Dad s permission to cover the floor with a big towel and put construction paper on top of that Then dip your tootsies in finger paints to see how talented your toes really are Dive for It Put a towel on the table or kitchen counter and ask a grownup to fill a tub with water to put on top of it Then float some apples in it Dunk your head in the water and try to grab the apple by your teeth Too boring Try bobbing for cherries Be a Mad Scientist Ask your parent to help set up a mini science lab on the kitchen table You ll need vinegar and baking soda With your healthy arm

    Original URL path: http://www.hemaware.org/print/853 (2016-02-18)
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  • Creative Couch Time | HemAware
    or other small toy in the middle of the Styrofoam bowls before you staple them Voila A tambourine Now you ve got an instrument to play while you sing your favorite songs Arm and Shoulder Bleeds Lots of kids like to play their video games when they re lying on the couch But what if it hurts to move the joystick Toe Art Toes aren t just for walking anymore They can also be used to make art Get Mom s or Dad s permission to cover the floor with a big towel and put construction paper on top of that Then dip your tootsies in finger paints to see how talented your toes really are Dive for It Put a towel on the table or kitchen counter and ask a grownup to fill a tub with water to put on top of it Then float some apples in it Dunk your head in the water and try to grab the apple by your teeth Too boring Try bobbing for cherries Be a Mad Scientist Ask your parent to help set up a mini science lab on the kitchen table You ll need vinegar and baking soda With your healthy arm place newspaper or a kitchen towel under a plastic cup Add vinegar to the baking soda and watch it boil over But be careful not to touch it Make Believe Playing pretend doesn t require arms or legs Maybe you are a ruler from outer space whose enemies tried to destroy him by crushing his legs Pile up the pillows get behind the couch and get ready to defend your fortress Whatever you do your bleed will be over soon Having a bleed doesn t mean you have to turn into that boring old stick in the mud Mr

    Original URL path: http://www.hemaware.org/story/creative-couch-time?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Game On!
    to the caring doctors nurses and other staff at your hemophilia treatment center HTC about exercise It s important to listen up and follow their directions That way when you go outside to play you re sure you re protected with prophylaxis or anything else your HTC recommends It s not fun to have to stop playing to treat a bleed but if your parents tell you to you should always do it That way you can get out and begin playing again sooner Look Inside Your joints have their own built in armor your muscles Strong flexible muscles keep your joints just where they re supposed to be so they don t bend too far which can cause a bleed Stronger muscles will also keep your joints better protected as you get older That way you won t bleed as much Look Around Now that you re moving check out what s on your feet and what s under them Playing running and jumping are safer for your joints if you re on grass or a cushioned surface And while you may love to run around barefoot or in socks you need to wear the right shoes even in the house Stick those toes into socks and shoes and practice tying your sneakers tight If your school backpack is too heavy and you can feel it causing a tingly achy bleed talk to your parents You may be able to keep one set of books at school and one at home That way you don t have to lug around your backpack and risk a bleed Get Out There Sometimes it may feel like there s a lot you can t do but if you play it safe there are lots of things you can do It s time

    Original URL path: http://www.hemaware.org/print/822 (2016-02-18)
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  • Learn how to protect your joints | HemAware
    where they re supposed to be so they don t bend too far which can cause a bleed Stronger muscles will also keep your joints better protected as you get older That way you won t bleed as much Look Around Now that you re moving check out what s on your feet and what s under them Playing running and jumping are safer for your joints if you re on grass or a cushioned surface And while you may love to run around barefoot or in socks you need to wear the right shoes even in the house Stick those toes into socks and shoes and practice tying your sneakers tight If your school backpack is too heavy and you can feel it causing a tingly achy bleed talk to your parents You may be able to keep one set of books at school and one at home That way you don t have to lug around your backpack and risk a bleed Get Out There Sometimes it may feel like there s a lot you can t do but if you play it safe there are lots of things you can do It s time to get excited about ways you can play without putting pressure on those joints that bleed most often If you get elbow bleeds try exercising something that works your legs more than your arms If you get a lot of ankle bleeds try bicycling instead But make sure to wear a helmet And swimming like a fish can make you feel great without adding too much stress Before any exercise it s always important to spend a few minutes stretching Paying attention to these things can help keep you playing and keep you off the sidelines So get out there For more articles

    Original URL path: http://www.hemaware.org/story/game-0?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Inhibitor Invasion
    hiyah they destroy them If you have an inhibitor your soldier proteins are also trying to kill your hemophilia factor To them factor is just another alien invader that must be kicked out The trouble is when your soldier proteins attack the clotting factor it can t work So you might bleed more than other kids with hemophilia Scientists aren t sure why some kids have soldiers that cause inhibitors But you aren t the only one with this kind of overactive immune system Kids with allergies to pollen pets or peanuts also have immune systems that attack things they shouldn t And just like kids with allergies some medications will work for you and some won t There is a special kind of factor just for kids with inhibitors but it doesn t work for everyone And because your defense system is so strong and stops the factor from working your bleeds might last longer hurt more and cause more damage Sometimes kids with inhibitors have to use wheelchairs or crutches The good news is that scientists are trying to stop your super strong soldier proteins from overworking or at least find a factor that works for all kids

    Original URL path: http://www.hemaware.org/print/791 (2016-02-18)
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  • Hemophilia Inhibitor Invasion | HemAware
    other kids with hemophilia Scientists aren t sure why some kids have soldiers that cause inhibitors But you aren t the only one with this kind of overactive immune system Kids with allergies to pollen pets or peanuts also have immune systems that attack things they shouldn t And just like kids with allergies some medications will work for you and some won t There is a special kind of factor just for kids with inhibitors but it doesn t work for everyone And because your defense system is so strong and stops the factor from working your bleeds might last longer hurt more and cause more damage Sometimes kids with inhibitors have to use wheelchairs or crutches The good news is that scientists are trying to stop your super strong soldier proteins from overworking or at least find a factor that works for all kids with inhibitors Remember you re on your body s defense team too So gear up Be careful playing with your friends and running around in the house And look for signs that you could be bleeding like areas on your body that feel warm tight tingly or bubbly Let your parents or another grown up know if you feel pain even if it s just a headache Being responsible is important so you can get treated faster and feel better soon Come to your body s defense and don t let an inhibitor get you down View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware

    Original URL path: http://www.hemaware.org/story/inhibitor-invasion?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Walk, Don’t Run!
    a park with lots of people You may even see babies in strollers and dogs on leashes Get started First get permission from your parents to do the Walk Then you and your parents can start asking your family and friends to walk with you Think of a fun and cool name for your Walk team Some people name themselves after hemophilia like the HemTeam or Hemo Warriors A lot of teams even get T shirts made with their team name Once you name your team your parents can help you get on the Internet and create a Web page at hemophilia org walk All the people on your team will start asking their friends to give money called donations to help people with bleeding disorders On your Web page a thermometer will keep track of your donations as they grow bigger and bigger Your parents can help you set a goal for how much money you want to raise You can have fun checking your thermometer every day to see if your team raised more money Get Creative Besides asking people to give donations think of creative ways to raise money Maybe you can hold a yard sale and sell some old toys books or games you don t need anymore Set up a lemonade stand in front of your house on a hot summer day Ask a local store if you can put a can on the counter for customers to drop change into All the money you earn will go toward the Walk To get ready for the Walk you and your friends can create colorful posters that tell people your team name You can carry them during the Hemophilia Walk to show other teams who you are Now the day of the Walk is here You

    Original URL path: http://www.hemaware.org/print/739 (2016-02-18)
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  • Kids Can Participate in Hemophilia Walks Too | HemAware
    All the people on your team will start asking their friends to give money called donations to help people with bleeding disorders On your Web page a thermometer will keep track of your donations as they grow bigger and bigger Your parents can help you set a goal for how much money you want to raise You can have fun checking your thermometer every day to see if your team raised more money Get Creative Besides asking people to give donations think of creative ways to raise money Maybe you can hold a yard sale and sell some old toys books or games you don t need anymore Set up a lemonade stand in front of your house on a hot summer day Ask a local store if you can put a can on the counter for customers to drop change into All the money you earn will go toward the Walk To get ready for the Walk you and your friends can create colorful posters that tell people your team name You can carry them during the Hemophilia Walk to show other teams who you are Now the day of the Walk is here You ve worked so hard raising money and telling people about bleeding disorders While you wait for all the walkers to arrive there will be fun activities There might be a mascot from a local sports team face painters games or music These fun activities are often waiting for you after you finish the walk too There will be many other kids and adults there so you ll be able to make new friends Before you know it all the walkers will be ready to begin the Walk Ready set go View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research

    Original URL path: http://www.hemaware.org/story/walk-don%E2%80%99t-run?quicktabs_story_page_tabs=0 (2016-02-18)
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