archive-org.com » ORG » H » HEMAWARE.ORG

Total: 1100

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • Ryan White’s Passion
    And in doing so he advocated for all those affected by HIV AIDS His goal was simple He wanted to be back in school with his friends He wanted a normal life He eventually found support and acceptance in Cicero Indiana where his family moved so he could attend school Sadly he died five years later in April 1990 one month short of his high school graduation During his brief 18 years Ryan turned his own personal tragedy into a national movement for change He and his family advocated for social justice and scientific research to improve the lives of those who contracted this life threatening infection not just those with hemophilia but those who acquired HIV via neonatal heterosexual homosexual transfusion and needle transmission Before Ryan AIDS was considered a gay disease Many shunned avoided and discriminated against those with it But Ryan and his supporters worked tirelessly to improve health outcomes and acceptance of all people with AIDS and united the country behind their cause See Remembering Ryan White p 16 His legacy includes the Ryan White CARE Comprehensive AIDS Resources Emergency Act Ryan White HIV AIDS Program and Ryan White Foundation which increased public awareness of the disease those it affected and the families caring for them The Ryan White CARE Act enacted by Congress in 1990 and reauthorized in 1996 2000 2006 2009 and 2013 provided funding and AIDS care programs for those with low incomes The Ryan White HIV AIDS Treatment Extension Act of 2009 carries on this legacy with the goal of continuing to address new and emerging needs for people with HIV AIDS Also the Ryan White Foundation founded by Ryan s mother raised money for medical research and for social support for affected individuals without social services or other resources Ryan set

    Original URL path: http://www.hemaware.org/print/1209 (2016-02-18)
    Open archived version from archive

  • Managing Migraines
    nausea and vomiting send them to the nearest dark cool quiet room to wait out the 30 minute to hours long episode But with the approval of Topamax topiramate manufactured by Janssen Pharmaceuticals Inc in March 2014 by the US Food and Drug Administration FDA to treat migraine headaches in teens relief is on the way The drug was first approved in 1996 to treat seizures then in 2004 to

    Original URL path: http://www.hemaware.org/print/1169 (2016-02-18)
    Open archived version from archive

  • Super Swimmer
    I started competing when I was 10 How often do you train and what s involved I practice three or four times a week for about two hours per day We usually swim medium distance sets five 100 yard sets of individual medley or freestyle or freestyle and backstroke For warmup we usually swim a couple of 400 or 500 yard freestyle sets or a five minute loose kick with a board Each practice totals approximately 3 000 yards How do you think swimming has affected your bleeding disorder Swimming has made my hemophilia easier to manage because it strengthens my muscles and keeps me thin which reduces the amount of pressure on my joints Since I started swimming competitively I have not had any major joint bleeds Do others on your team know you have a bleeding disorder None of the others on my team know just because the subject has never come up My coaches are aware of it because my parents told them but I don t think they told anyone else When we have practices on dry land such as running and stretching exercises I usually take it easy and my coaches are fine with that How did you feel when your team broke the YMCA state record When I realized that my team had broken the Pennsylvania YMCA state record for the 200 freestyle relay I felt that I had made a huge accomplishment I was glad that my coaches had trained me and the rest of the Tri Hampton YMCA 11 12 boys relay team so efficiently I also felt that I could have pushed myself a little bit harder in order to bring our time even lower We ll try again in the long course season that begins in April and runs through

    Original URL path: http://www.hemaware.org/print/1153 (2016-02-18)
    Open archived version from archive

  • Lead On
    in 2002 where he served as principal until early 2013 He is a member of Connect for Bleeding Disorders NHF s young professionals group Shuldiner gave advice on resume building as well as tackling the topic of disclosure in the workplace Mario Nacinovich managing partner at AXON Communications worked with attendees on media training He instructed the attendees on how to present oneself professionally including how to phrase answers to interview questions how to dress and how to avoid common pitfalls He also had the group practice mock interviews We hope that our NYLI members will become spokespeople for the bleeding disorders community in the future says Woods So it s important that we give them concrete skills to help NYLI member Carson Ouellette 20 distributes a passport to guests of the New York City Hemophilia Chapter Lauren O Doherty 19 was challenged by the training The mock interviews were a little outside of my comfort zone says the NYLI member from Denton Texas But that s what allows us to grow as professionals and individuals The youth leaders then volunteered with the NYCHC They gathered with about 375 people from the chapter at the Bronx Zoo for a day

    Original URL path: http://www.hemaware.org/print/1018 (2016-02-18)
    Open archived version from archive



  •