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  • Send page by email | HemAware
    Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Need info Ask NHF Contact HANDI NHF s resource center for additional information on bleeding disorders Home Glossary Site Map Donate Advertise Privacy Policy Subscribe Contact Us Life Stages

    Original URL path: http://www.hemaware.org/printmail/246 (2016-02-18)
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  • Dogs' Priceless Contribution to Hemophilia Research
    We transfuse the mother dogs weeks before delivery and continue until their postpartum bleeding stops Nichols says The blood for the hemophilic dogs transfusions comes from a separate colony of blood banking dogs Most are large breeds with easily accessible veins such as hound dogs or greyhounds Like human blood the donor dogs blood is typed We have about eight dogs that are donors says Lillicrap They have their blood taken every week or two Canine Care The dogs at both colonies are cared for by trained veterinary technicians some of whom have worked with them for more than 25 years The people who work here love animals and are extremely knowledgeable about them says Nichols At UNC the dogs have indoor outdoor runs and an acre of outdoor play area to romp in They re not kept in cages but in runs that are cleaner than our hospital says Roberts partially joking They re out in paradise next to University Lake The dogs are socialized with each other and receive plenty of human contact Just like family pets they are taught commands and receive treats as rewards The dogs are in the lab all the time with people says Nichols Since they stay there for years they become more than just lab animals They become companion animals says Lillicrap They are very well looked after and nurtured The dogs have names At the Canadian facility litter mates receive names starting with the same letter of the alphabet Mindy and Matteo for instance are siblings At the UNC lab the dogs are named for personality or looks One of our inhibitor dogs Cliffy named for Clifford the Big Red Dog is the lab prince right now One of the vet techs is a dog groomer and gives Cliffy s black and white coat special attention He is groomed to look like he has a great big mustache Nichols says with a laugh Most of the dogs live out their lives at the labs being used for research in middle and older age Lillicrap says We don t breed for a specific experiment and then euthanize the dog We now have dogs that are 13 years old Other Animal Models Researchers cannot limit their animal subjects to only one species Protocol requires them to progress from rodents for instance to larger animals if the experiment is successful at each stage Larger animals help researchers obtain the proper scale in terms of physiology and anatomy Eventually experiments are approved for human studies called clinical trials See Clinical Trials 101 This progression from one animal model to another and eventually to humans can take years Michele Calos PhD professor in the genetics department at the Stanford University School of Medicine in California is a bleeding disorders researcher who uses a variety of lab animals A huge amount of work has been done on mice throughout genetics because they are less expensive have a shorter life span and you can do experiments with such

    Original URL path: http://www.hemaware.org/print/246 (2016-02-18)
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  • Dogs' Priceless Contribution to Hemophilia Research | HemAware
    than 25 years The people who work here love animals and are extremely knowledgeable about them says Nichols At UNC the dogs have indoor outdoor runs and an acre of outdoor play area to romp in They re not kept in cages but in runs that are cleaner than our hospital says Roberts partially joking They re out in paradise next to University Lake The dogs are socialized with each other and receive plenty of human contact Just like family pets they are taught commands and receive treats as rewards The dogs are in the lab all the time with people says Nichols Since they stay there for years they become more than just lab animals They become companion animals says Lillicrap They are very well looked after and nurtured The dogs have names At the Canadian facility litter mates receive names starting with the same letter of the alphabet Mindy and Matteo for instance are siblings At the UNC lab the dogs are named for personality or looks One of our inhibitor dogs Cliffy named for Clifford the Big Red Dog is the lab prince right now One of the vet techs is a dog groomer and gives Cliffy s black and white coat special attention He is groomed to look like he has a great big mustache Nichols says with a laugh Most of the dogs live out their lives at the labs being used for research in middle and older age Lillicrap says We don t breed for a specific experiment and then euthanize the dog We now have dogs that are 13 years old Other Animal Models Researchers cannot limit their animal subjects to only one species Protocol requires them to progress from rodents for instance to larger animals if the experiment is successful at each stage Larger animals help researchers obtain the proper scale in terms of physiology and anatomy Eventually experiments are approved for human studies called clinical trials See Clinical Trials 101 This progression from one animal model to another and eventually to humans can take years Michele Calos PhD professor in the genetics department at the Stanford University School of Medicine in California is a bleeding disorders researcher who uses a variety of lab animals A huge amount of work has been done on mice throughout genetics because they are less expensive have a shorter life span and you can do experiments with such larger numbers she says Using mice helps researchers build confidence about treatments and techniques but they have limitations Their size and blood volume are two factors so is their genetics For most if not all gene therapies the delivery is a barrier says Calos Even with the sometimes successful delivery in mice however the results do not translate well You cannot go from a mouse model to humans she says It s too risky The intermediary can take the form of anything from pigs to primates The UNC lab has housed pigs with severe type 3 VWD since

    Original URL path: http://www.hemaware.org/story/dogs-priceless-contribution-hemophilia-research?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Send page by email | HemAware
    Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Need info Ask NHF Contact HANDI NHF s resource center for additional information on bleeding disorders Home Glossary Site Map Donate Advertise Privacy Policy Subscribe Contact Us Life Stages Infants

    Original URL path: http://www.hemaware.org/printmail/158 (2016-02-18)
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  • Making Better Food Choices
    each year It contributes to heart disease osteoarthritis diabetes stroke hypertension cancer and sleep apnea So what can you do to ensure that you are as healthy as you can be Exercise and proper nutrition must be incorporated into a healthy lifestyle plan in order for you to maintain a healthy weight Improving your nutrition and physical exercise program should begin with a visit to your physician to make sure you are able to endure physical activity with no health risks Appropriate exercise should then be performed Thirty minutes of exercise daily is recommended to maintain weight 60 minutes per day to lose weight Gradual changes in eating habits such as the ones mentioned here are most likely to yield long term results Be aware of portion sizes read labels and avoid snack foods Steer clear of foods that are high in fat and calories and offer little in the way of nutritional value Be mindful of hidden or overlooked sources of excess calories such as large glasses of juice and soft drinks Increase your consumption of fruits and vegetables Dark leafy greens and orange fruits and vegetables are excellent sources of vitamins and minerals They are also a rich source of fiber which helps you to fill up and maintain intestinal health Try to eat at least half of your grains from whole grain products Try oats barley whole wheat flax seed bran brown rice and pasta Whole grains help to satiate the appetite lower cholesterol and stabilize blood glucose levels to avoid an afternoon slump Eat baked snack items instead of fried Use low fat dairy sources such as 1 or skim milk and low fat cheeses These contain plenty of vitamins and minerals without the fats that have been linked to heart disease If you cannot consume milk look for other sources of calcium such as calcium fortified orange juice Bake broil or grill lean meats poultry and fish Avoid heavy gravies sauces and toppings that are often full of calories from fat Include some meatless meals during the week by incorporating dried beans nuts and seeds into your menus Dried beans provide an excellent source of protein and are high in fiber and low in fat with no cholesterol Cholesterol is found only in animal derived food sources such as meats eggs and milk Reduce fat intake and increase the use of good fats These include olive and canola oils Limit the use of butter stick margarine shortening and lard A few other nutritional suggestions are especially important for people with hemophilia In addition to maintaining healthy weight people with bleeding disorders need to maintain normal blood volume and blood cell production There are several nutrients involved in blood cell production such as iron protein copper vitamin C vitamin B12 vitamin B6 vitamin E and folic acid But it would be wise for patients to avoid vitamin E supplements since they may increase the risk of bleeding A diet that incorporates all of the food groups

    Original URL path: http://www.hemaware.org/print/158 (2016-02-18)
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  • Nutrition Info for People With Hemophilia | HemAware
    eating habits such as the ones mentioned here are most likely to yield long term results Be aware of portion sizes read labels and avoid snack foods Steer clear of foods that are high in fat and calories and offer little in the way of nutritional value Be mindful of hidden or overlooked sources of excess calories such as large glasses of juice and soft drinks Increase your consumption of fruits and vegetables Dark leafy greens and orange fruits and vegetables are excellent sources of vitamins and minerals They are also a rich source of fiber which helps you to fill up and maintain intestinal health Try to eat at least half of your grains from whole grain products Try oats barley whole wheat flax seed bran brown rice and pasta Whole grains help to satiate the appetite lower cholesterol and stabilize blood glucose levels to avoid an afternoon slump Eat baked snack items instead of fried Use low fat dairy sources such as 1 or skim milk and low fat cheeses These contain plenty of vitamins and minerals without the fats that have been linked to heart disease If you cannot consume milk look for other sources of calcium such as calcium fortified orange juice Bake broil or grill lean meats poultry and fish Avoid heavy gravies sauces and toppings that are often full of calories from fat Include some meatless meals during the week by incorporating dried beans nuts and seeds into your menus Dried beans provide an excellent source of protein and are high in fiber and low in fat with no cholesterol Cholesterol is found only in animal derived food sources such as meats eggs and milk Reduce fat intake and increase the use of good fats These include olive and canola oils Limit the use of butter stick margarine shortening and lard A few other nutritional suggestions are especially important for people with hemophilia In addition to maintaining healthy weight people with bleeding disorders need to maintain normal blood volume and blood cell production There are several nutrients involved in blood cell production such as iron protein copper vitamin C vitamin B12 vitamin B6 vitamin E and folic acid But it would be wise for patients to avoid vitamin E supplements since they may increase the risk of bleeding A diet that incorporates all of the food groups should provide nutrients adequately During a bleed it is estimated that a miniscule amount of iron roughly 75 micrograms is lost with each tablespoon 15 ml of blood Maintain your iron levels by eating naturally iron rich foods such as liver lean red meat and poultry all of which provide the best and most readily absorbed iron sources Other excellent sources of iron are leafy green vegetables broccoli dried beans grains and raisins Combining iron rich foods with good sources of vitamin C such as orange juice can enhance iron absorption Being realistic you know that you re not going to make perfect choices at every meal

    Original URL path: http://www.hemaware.org/story/making-better-food-choices?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Pilates and Bleeding Disorders | HemAware
    the popular Winsor and Stott Pilates The basic foundation of Pilates is focused movements that concentrate on strengthening the core part of the body which includes the powerhouse the abdomen lower back and buttocks The hips and shoulders are also important areas of focus Building a strong core enables people to do activities that involve the extremities without putting as much stress on the joints explains Sherry Herman Hilker PT a physical therapist in the University of Michigan Hemophilia and Coagulation Disorders Program at the C S Mott Children s Hospital in Ann Arbor Michigan If core muscles are strong you are stabilizing your pelvis and spine so that when you are doing things with the arms and legs you are operating from a strong base she notes Like other Eastern based exercises Pilates strongly emphasizes correct breathing Proper form is also crucial such as having what is known as a neutral spine along with correct pelvic rib scapular shoulder blade and head placement Pilates can be done on a mat or on an apparatus such as the Reformer where one lies down and uses attached springs and straps to perform resistance exercises Workouts may also incorporate balls foam rollers and resistance bands But experts say that first timers should begin with mat exercises before transitioning to the more complex equipment Shoes are not generally worn in Pilates and it is best to wear loose fitting clothing for unrestricted movement One can benefit from taking Pilates once a week but three one hour sessions a week are ideal Getting Started Although Pilates exercises are low impact injury is possible This is because Pilates is multifaceted involving correct movement and breathing simultaneously The exercises are more about the mind body connection and the concentration on form says Patty Connors PT OMPT a physical therapist at the University of Michigan Spine Program in Ann Arbor who is also a certified instructor of Stott Pilates When form is off injuries can occur For example she says If you are doing a back exercise with your legs in the air and your spine is pivoting and your legs are out of control you can injure yourself Most Pilates exercises can be modified to place less pressure or strain on specific joints and muscles For example since the most vulnerable area to bleeding is the hip flexor it is best to avoid aggressive stretching of the front of the hip says Connors She adds that it s best to avoid overstretching Individuals with bleeding disorders should also be careful of some of the weight bearing exercises involving the wrist Consider working with a trainer to use an assistive device to keep the wrist in a neutral position Connors advises working one on one with a well qualified trainer when starting out This person ideally should be a physical or occupational therapist who is also Pilates certified Your instructor will help you know when you are doing the exercises incorrectly and increasing your risk of injury

    Original URL path: http://www.hemaware.org/story/help-your-joints-pilates (2016-02-18)
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  • Vitamin D and Hemophilia | HemAware
    a wake up call to orthopedists that vitamin D deficiency is widespread not necessarily tied to age sex or background and screening for it should be part of routine pre surgical care for adults said Joseph M Lane MD a study co author He is chief of the metabolic bone disease service at HSS For people with hemophilia bone health may be compromised by multiple factors including repeated joint bleeds HIV and hepatitis C Some HIV drugs prevent bone mineralization which leads to osteoporosis Further some components of HIV can stimulate cells that break down bone Chronic liver disease from long term infection of hepatitis C also contributes to osteoporosis Because the damaged liver cannot change vitamin D to a usable form calcium is not absorbed properly A number of articles have documented the fact that many hemophilia patients have reduced bone density says James V Luck Jr MD chief of orthopedics Hemophilia Treatment Center Los Angeles Orthopaedic Medical Center See Learn More section This may be the result of many causes such as limited activity nutritional imbalances and even possibly some medications RDA of Vitamin D In November 2010 the Institute of Medicine the health arm of the National Academy of Sciences published a consensus report stating that most Americans are currently getting enough vitamin D and calcium The Recommended Dietary Allowance RDA for people ages 1 to 70 is 600 international units IU per day For people 71 and older the amount is 800 IU daily However people with existing osteoporosis HIV and or hepatitis C may need more If you re concerned about your bone health ask your doctor about vitamin D and bone density tests Learn More Institute of Medicine report on vitamin D Khawaji M et al Bone density and health related quality of life

    Original URL path: http://www.hemaware.org/story/vitamin-d-and-hemophilia (2016-02-18)
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