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  • Hemophilia and High-Impact Sports | HemAware
    my concerns is that impact particularly for the lower extremities is very important to push calcium into bones and build strength The early pounding she says promotes bone density helping prevent osteoporosis later Planning with Prevention The boys were encouraged to problem solve about injury prevention factor dosing and wearing protective gear I m very impressed that the kids in the study transitioning at age 18 are very good decision makers Manco Johnson says They are very able to weigh risks and benefits of participation But that doesn t mean risky behavior was absent You ll notice in the footnote that we had advised against participation in football and hockey given that these are high risk for head and neck trauma and other injuries says Neil Goldenberg MD PhD study co author A few boys still participated in those activities against medical advice In a state that prides itself on physical fitness another surprise was the high rate of overweight and obesity among the study subjects 19 Boys at the Colorado hemophilia treatment center HTC were thought to be leaner and more active than at other HTCs many in the study participated in an average of four seasons of activity yearly We thought the frequency of obesity would be low Goldenberg says It was an awakening to me that our physically active children with hemophilia are not spared from the national epidemic of childhood obesity With many parents driving their kids to activities children miss out on carefree hours playing outside after school Some may also be discouraged from pursuing active lifestyles after developing a target joint or joint bleed Expectations for fitness are lower than for children without bleeding disorders says Manco Johnson That s something we have to address Learn More Ross C et al Athletic participation in

    Original URL path: http://www.hemaware.org/story/hemophilia-and-high-impact-sports (2016-02-18)
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  • Sensible Snacking | HemAware
    fat dressing spetnitskaya nadya Thinkstock Put Greek style yogurt skim milk and fresh berries in the blender for a tropical smoothie olvas Thinkstock Serve hummus a dip made from chickpeas with whole wheat pita bread triangles robynmac Thinkstock Make trail mix from nuts dried fruit low fat cereal and chocolate bits eyewave Thinkstock Toss hot popcorn with grated Parmesan cheese Eren Dndar Thinkstock For more ideas on healthy eating visit AND s website eatright org View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Related Most Viewed 1 Flu Shot Reminder 2 Blended Families and Bleeding Disorders 3 Managing Migraines 4 Vital Role of School Nurses 5 Latchkey Kids The Pros and Cons of Infusion Devices Pumping Iron Head Bleeds and Hemophilia Dogs Priceless Contribution to Hemophilia Research Think Again Making Better Food Choices Music Therapy Used

    Original URL path: http://www.hemaware.org/story/sensible-snacking (2016-02-18)
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  • Teens With Hemophilia Get in Shape | HemAware
    and nutrition program launched in the spring of 2007 has changed Campbell Eccles life Eight months into the program Campbell now 15 has lost nearly 40 pounds He is at the gym most days lifting weights and running on the track He has given up soda He is even eating some vegetables Before we joined the gym we walked in the neighborhood and did ab crunches on the living room floor said Zach Eccles Campbell s father and exercise partner He is also 40 pounds slimmer The program begins with weekly meetings to discuss and set nutrition and exercise goals Changes in diet and exercise habits are introduced gradually We don t do anything crazy or drastic says program founder Lori Walton RN We give out elastic stretch bands for strength training says Walton We also give them pedometers so that they can measure their daily step count If they start at 5 000 we want them up to 6 000 From there patients can pick from a lot of different activities depending on their interests and abilities One key to the program is family participation If Mom and Dad don t change their habits their kids won t either says Michele Rice executive director of Hemophilia of Indiana an NHF chapter in Indianapolis She is the mother of two sons in the program It floors me now to think that we have been drinking nothing but skim milk for six months not to mention the healthy cereals low fat cheese and whole wheat bread we are now eating Against the Current Jeff Kallberg PT runs a different kind of program at ACCUA Advanced Fitness Center near Minneapolis He has severe hemophilia A yet that did not stop him from earning a black belt in tae kwon do He uses his personal experience to inspire others As a physical therapist he likes to challenge his patients with hemophilia to achieve fitness goals they never believed they could reach or were afraid to attempt When they come here they are often not even sure how to exercise says Kallberg After administering a battery of tests to determine fitness and abilities Kallberg works with his patients individually to design a program that will be both motivating and challenging We exercise together he says With that supervision I can push them a little harder than they would push themselves at home The centerpiece of ACCUA which Kallberg co founded is its HydroWorx pool and its low impact underwater treadmill With their bodies submerged from their chest down users run even sprint on a moving belt that s built into the pool s floor Jets of water create an adjustable current that ranges from 1 5 mph to 8 mph By building the current we can make the workout harder and harder yet it remains easy on the joints says Kallberg We train everyone from patients with hemophilia to professional athletes on the HydroWorx One of those patients is Bobby Strom 25 Like Kallberg

    Original URL path: http://www.hemaware.org/story/shaping (2016-02-18)
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  • Think Again
    to cope with stress depression and anxiety It is also practiced by people with an array of disorders ranging from irritable bowel syndrome to diabetes and chronic pain conditions such as arthritis from hemophilia joint bleeds Steps for Living The Pain Facts and Managing Stress How Meditation Changes You Today there are dozens of studies on meditation and pain covering everything from the physical structures of the brain and perception of pain to the effect of meditation on emotional reactions to pain What they ve found is that meditation can do exactly what McCain describes reduce the experience of pain without having any specific effect on the actual cause of the pain A 2010 study in the journal Emotion found that long time meditators actually reduced the intensity of pain Joshua Grant PhD a postdoctoral candidate at the Max Planck Institute in Leipzig Germany studied 17 longtime Zen Buddhist meditators asking them to sit in meditation while researchers applied extreme cold to their skin to study the effect of pain on the meditators What he found was that meditation may change the structure of the brain In longtime meditators the anterior insula a part of the brain involved in feelings is thicker as is the anterior cingulate cortex a part of the brain with many roles including attention and emotion What we think happens is meditators disengage regions of their brains that interpret the experience as pain Grant says He conducted the Emotion study They still feel it but it s somehow disconnected from the notion of hurt or suffering And it s not just veteran meditators who get results The April 2011 study in the Journal of Neuroscience found that those who had only received four days of meditation training were able to reduce their perception of pain The benefits of meditation seem to be available to everyone Grant says Meditation has been found effective not only in addressing how our brains process and perceive pain but also in how we deal with the emotions that chronic pain creates Diane Dimon DrRS calls this catastrophizing She is a doctor of religious studies and founder of Matters of the Mind a mind body center in Fresno California She speaks on mind body skills for anxiety stress reduction and pain management in hemophilia often at NHF chapter events Pain is complex says Dimon but our perceptions often influence our experience of it Pain triggers your primitive brain the fight or flight response in the amygdala responsible for assessing threats When set off this response shoots the body full of stress hormones and opens pain receptors in the spine both of which intensify the experience of pain When a person sits in meditation he or she can learn to discern whether there s really any danger Dimon says As long as there s no real danger meditation helps people view pain as a challenge instead of a danger she says In other words meditators learn to relax instead of tensing and resisting

    Original URL path: http://www.hemaware.org/print/808 (2016-02-18)
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  • Think Again | HemAware
    on the actual cause of the pain A 2010 study in the journal Emotion found that long time meditators actually reduced the intensity of pain Joshua Grant PhD a postdoctoral candidate at the Max Planck Institute in Leipzig Germany studied 17 longtime Zen Buddhist meditators asking them to sit in meditation while researchers applied extreme cold to their skin to study the effect of pain on the meditators What he found was that meditation may change the structure of the brain In longtime meditators the anterior insula a part of the brain involved in feelings is thicker as is the anterior cingulate cortex a part of the brain with many roles including attention and emotion What we think happens is meditators disengage regions of their brains that interpret the experience as pain Grant says He conducted the Emotion study They still feel it but it s somehow disconnected from the notion of hurt or suffering And it s not just veteran meditators who get results The April 2011 study in the Journal of Neuroscience found that those who had only received four days of meditation training were able to reduce their perception of pain The benefits of meditation seem to be available to everyone Grant says Meditation has been found effective not only in addressing how our brains process and perceive pain but also in how we deal with the emotions that chronic pain creates Diane Dimon DrRS calls this catastrophizing She is a doctor of religious studies and founder of Matters of the Mind a mind body center in Fresno California She speaks on mind body skills for anxiety stress reduction and pain management in hemophilia often at NHF chapter events Pain is complex says Dimon but our perceptions often influence our experience of it Pain triggers your primitive brain the fight or flight response in the amygdala responsible for assessing threats When set off this response shoots the body full of stress hormones and opens pain receptors in the spine both of which intensify the experience of pain When a person sits in meditation he or she can learn to discern whether there s really any danger Dimon says As long as there s no real danger meditation helps people view pain as a challenge instead of a danger she says In other words meditators learn to relax instead of tensing and resisting which make pain worse Depending on their skill level meditators can short circuit the stress response Then there s the effect of meditation on a person s stress level in general Chronic pain can wreak havoc on everything from sleep cycles to exercise routines making it difficult for a person to bounce back Meditation offers an antidote through what Benson calls the relaxation response The heart rate slows blood pressure goes down breathing slows oxygen intake increases and muscle tension decreases When you meditate you produce the exact physiological opposite of the fight or flight response Dimon says Your heart rhythms your biochemistry your whole

    Original URL path: http://www.hemaware.org/story/think-again?quicktabs_story_page_tabs=0 (2016-02-18)
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  • Pain Management Strategies | HemAware
    people with bleeding disorders apply the RICE method they often need pharmaceuticals to also help with pain relief According to the pain study the most commonly used drugs by respondents are acetaminophen and nonsteroidal anti inflammatory drugs NSAIDs However the use of aspirin ibuprofen naproxen and other NSAIDs are harmful for people with bleeding disorders because they can interfere with blood clotting The pain study revealed that many people with bleeding disorders are using prescription NSAIDs despite the risk Many people with bleeding disorders take a type of NSAID known as a COX 2 cyclooxygenase 2 inhibitor which is believed to have a limited impact on blood clotting COX 2 inhibitors include celecoxib Celebrex rofecoxib Vioxx and valdecoxib Bextra In 2005 The Food and Drug Administration FDA withdrew Vioxx and Bextra from the market because of an increased risk of heart attack and stroke among people who took the drugs Pfizer s Celebrex is the only COX 2 inhibitor that remains on the market In June 2005 the National Hemophilia Foundation s Medical and Scientific Advisory Council MASAC issued a recommendation Document 162 that advised caution for the use of all COX 2 inhibitors including Celebrex in people with bleeding disorders especially children The recommendation says If a COX 2 inhibitor is prescribed it should be used at the lowest effective dose for the least necessary duration 1 As with any drug acetaminophen should be taken with caution Prolonged use can result in liver injury or failure The American Liver Foundation recommends that acetaminophen use be limited to 4 000 milligrams per day for people younger than 60 years old and 3 000 milligrams per day for people 60 years old and older Other drugs commonly prescribed for short term pain relief include opioids such as oxycodone Percocet morphine methadone and codeine OxyContin is a commonly prescribed sustained release formulation of oxycodone The most common side effects of opioids include drowsiness nausea and constipation Less commonly people experience itching and breathing problems Opioids and other pain relievers can also lead to abuse dependency and addiction see Un Comfortably Numb HemAware March April 2004 p 36 Chronic Pain Although reliable statistics are not available experts suggest that chronic pain is common among people with bleeding disorders It often has a significant emotional component resulting in stress depression anxiety and anger People with hemophilia who suffer from chronic pain should discuss their options with the staff at an HTC Many people with chronic pain tend to limit their activities to avoid discomfort which can be counterproductive in the long run People with chronic pain tend to baby themselves too much says Bailey Our number one priority for people with chronic pain is to get them moving The longer they don t move because of pain the more they re going to lose It will make it worse and worse over time Bailey recommends that people with bleeding disorders who have chronic pain engage in low intensity activities Start with stretching programs and

    Original URL path: http://www.hemaware.org/story/pain-management-strategies (2016-02-18)
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  • Cold Weather Safety | HemAware
    Keep in mind Check smoke and carbon monoxide detectors to ensure they re functioning correctly Replace batteries yearly Get your gas furnace fireplace and or wood burning stove inspected and cleaned at least once per year Keep flammable materials away from the open flame area of your fireplace Never burn cardboard boxes trash or other items that could contain potentially poisonous chemicals Never use your stove as a heat ing source When using electric space heaters keep a safe perimeter around them and keep them away from water or potentially flammable materials Sources American College of Emergency Physicians FEMA View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Related Most Viewed 1 The Doctor Is In Virtually 2 Melting In Your Mouth 3 Better Blood Typing 4 Safe Soap 5 Flu Shot Reminder The Pros and Cons

    Original URL path: http://www.hemaware.org/story/cold-weather-safety (2016-02-18)
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  • Flu Shot Reminder | HemAware
    old People 65 years or older Anyone who lives or works in close proximity to someone in any of the above groups Flu vaccines now come in a variety of forms from nasal sprays to intradermal vaccines preferred for people with bleeding disorders Find out which one is appropriate for you and get vaccinated before flu season hits Source CDC View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Related Most Viewed 1 Sensible Snacking 2 Buckle Up Kids 3 Kids Guide to Self Infusions 4 The Family Camp Experience 5 Cold Weather Safety The Pros and Cons of Infusion Devices Pumping Iron Head Bleeds and Hemophilia Dogs Priceless Contribution to Hemophilia Research Think Again Making Better Food Choices Music Therapy Used for Pain Management Need info Ask NHF Contact HANDI NHF s resource center for additional

    Original URL path: http://www.hemaware.org/story/flu-shot-reminder (2016-02-18)
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