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  • Ear Tubes for Children With Bleeding Disorders | HemAware
    minds My role as a hematologist is to communicate with the ENT the treatment plan for the child says Amy Dunn MD pediatric hematologist oncologist Aflac Cancer Center and Blood Disorders Service Children s Healthcare of Atlanta For a patient with VWD there are fluid guidelines that should be followed when taking DDAVP DDAVP is the synthetic hormone desmopressin acetate which can cause hyponatremia a low concentration of sodium in the blood Because the surgery is minimal and the ear does not contain a lot of blood vessels the bleeding risk is low Factor coverage for patients with hemophilia is less important than in tonsil and adenoid surgery Dunn says For ear tube surgery lower doses are needed with less frequency See Tonsil and Adenoid Surgery in Children hemaware org Jan 11 2012 Tube Types There are a variety of tube types shapes and sizes but most are flexible plastic cylinders about 3 mm in diameter Some have an antimicrobial coating to decrease infection risk Others have flanges or hooks that anchor them in the eardrum for longer periods For a child with very small ear canals I use tubes that are smaller Elmaraghy says If I want a tube to last longer I use a T tube which is a more permanent ear tube that I can leave in there for years Most tubes fall out on their own after six to 18 months but an estimated 5 to 10 have to be surgically removed he says Ear tubes break the vacuum effect With an ear tube or pressure equalization tube you re equalizing the pressure from the middle ear space to the environment says Elmaraghy You don t have that negative suction effect pulling things from the throat into the ear The new ear tube keeps the eustachian tube open allowing air and sound waves to reach the middle ear Fluid can then drain more easily into the ear canal instead of stagnating and causing infection Ear Tube Surgery To insert the ear tube the surgeon creates a small hole in the eardrum about 1 5 to 2 mm in diameter Fluid and debris can be suctioned out before the tube is placed The surgery is typically outpatient even for children with bleeding disorders The procedure requires general anesthesia but it s fairly short Elmaraghy says It usually takes five to 15 minutes There can be very minor bleeding but it can be controlled pretty easily Ben Robbins was 15 months old when he got ear tubes in January 2009 We infused him no less than six hours before he went into surgery then 24 hours after surgery says his mother Becca Handing her firstborn over to the surgical team was a little nerve wracking for her but everything went smoothly We were surprised by the short amount of time that it took and the ease at which Ben came out of the anesthesia He was able to go home that day she says Some patients with bleeding

    Original URL path: http://www.hemaware.org/story/ear-tubes-children-bleeding-disorders (2016-02-18)
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  • Infants & Children | HemAware
    find the right dental home read more Back to School With a Bleeding Disorder By Phyllis McIntosh 08 21 2011 As a new school year begins make sure school personnel know how to address the needs of your child s bleeding disorder read more Passing the Baton By Laura Putre 07 25 2011 Learn how you can prepare your children to manage their bleeding disorder beginning even when they re a toddler read more The Unfamiliar Bleed Letter to the Editor 06 07 2011 A HemAware letter to the editor points out the near impossibility of two brothers with hemophilia having different severity levels read more Medical IDs Could Save Your Life By Kadesha Thomas 05 23 2011 NHF encourages everyone who has a bleeding disorder to wear some form of medical ID Some consumers are demanding more flair than the plain metal bracelet read more The Unfamiliar Bleed By Laura Putre 04 25 2011 Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent Will you know how to recognize and treat a joint bleed when it happens in your child read more The First Years After Your Child s Diagnosis By Melanie D G Kaplan 04 23 2011 Learn how to handle your baby s bleeding disorder read more Factor VII Product Treats Brain Hemorrhages in Inhibitor Patients By Gina Shaw 02 07 2011 NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors read more A Dark Cloud By Eric Metcalf 02 07 2011 About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year read more Making Adherence a Routine By Rebecca A Clay 12 29 2010 The Hemolog iPhone

    Original URL path: http://www.hemaware.org/topics/infants-children?page=1 (2016-02-18)
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  • Career Choices | HemAware
    you explore different subjects without a huge financial fallout Be careful and do your research says Molter Schools that exist only for profit typically don t accept federal grants and prefer private loans which usually have higher interest rates Take action and network You ll need to do more than dream about what you ll be doing five years from now You want to volunteer seek out information and have mentors Orbé Austin explains Volunteering and job shadowing can help shape your future career path Job shadowing can be done in half a day or a couple of hours Molter says If you want to work in a hospital follow a doctor or a nurse These visits will help you be realistic about the requirements and activities of a particular job You ll see firsthand which aspects of the job you like or dislike Consider your health Health insurance and sick leave are important benefits when you re considering jobs Confirm your benefits through the human resources department before accepting a position says Molter Also consider the job setting and level of activity you can handle A factory or warehouse may be more dangerous than an office Traveling can be difficult because you may experience more bleeds or lack access to an HTC If you have severe hemophilia a physical job as a paramedic nurse or vet tech may not be a good fit However working as a health writer or lab tech may be fine In general be realistic Molter advises Focus on what you re good at and talk to your HTC doctor about what you want to do Learn More Find more career resources stepsforliving hemophilia org next step planning for the future jobs and careers Read a previous HemAware article on how to choose an accredited

    Original URL path: http://www.hemaware.org/story/career-choices (2016-02-18)
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  • Runner’s World | HemAware
    I have a big event coming up a longer or more difficult race for instance I will adjust my schedule so that I infuse right before the event You re currently studying abroad at the University of St Andrews in Scotland How did you prepare for that with a bleeding disorder Traveling with hemophilia requires careful consideration Access to care in the UK is relatively easy because as a student I qualify for the National Health Service NHS which is able to provide me with clotting factor Before coming over I did some research to find out if I would be covered by the NHS while studying and located the nearest hemophilia treatment center HTC Locating HTCs is important no matter where you are traveling Whenever I go to a new place I always find out where the closest HTC is in case of emergency I also always bring an ample supply of clotting factor as this can often be difficult to obtain in a foreign country Are there any differences between care and treatment in the US and Scotland The only major difference is that because the UK uses the NHS instead of private healthcare providers the government has contracted a single company to provide clotting factor This meant that I did have to change products when I came over But I have been perfectly satisfied with the treatment I am on now The system seems to work quite well Do you have any advice for anyone your age who is concerned about participating in sports while having a bleeding disorder Don t think of yourself as being limited by your bleeding disorder Obviously there are some sports that are probably not a good idea for a person with hemophilia These are mostly high impact sports with a relatively

    Original URL path: http://www.hemaware.org/story/runners-world (2016-02-18)
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  • Value of Video Games | HemAware
    prepared statement And they become better learners by playing the fast paced action games The researchers found that gamers outperformed nongamers on a number of tasks That s because video games help our brains predict what s likely to come next In order to sharpen its prediction skills our brains constantly build models or templates of the world Bavelier explained The better the template the better the performance And now we know playing action video games actually fosters better templates Source University of Rochester View the discussion thread Life Stages Infants Children Teens Young Adults Adults Aging Research Treatment Hemophilia A B von Willebrand Disease Rare Bleeding Disorders HIV Hepatitis C Surgery Transplants Researcher Profiles Health Wellness Fitness Nutrition Taking Charge Pain Management Parenting Family Parenting Family Hemaware Jr Women Women s Bleeding Disorders Carriers Watchdog Insurance Blood Safety Advocacy Community HemAware Blogs HemAware Videos HemAware Photos Chapters in Action Global Spotlight Community Voices En Español Related Most Viewed 1 Managing Migraines 2 Tattoos and Bleeding Disorders 3 Young Advocates 4 Off to College with a Bleeding Disorder 5 Lead On The Pros and Cons of Infusion Devices Pumping Iron Head Bleeds and Hemophilia Dogs Priceless Contribution to Hemophilia Research

    Original URL path: http://www.hemaware.org/story/value-video-games (2016-02-18)
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  • Financial Aid Facts | HemAware
    source Further the National Hemophilia Foundation s NHF s website hemophilia org has a list of scholarships for which you may qualify Molter also advises that you meet with your school guidance counselor and a social worker at your hemophilia treatment center HTC You may even be able to qualify for work study programs a federal Pell Grant which does not have to be repaid and or state aid And don t be afraid to apply to private colleges Many have internal merit based scholarship programs which can reduce costs Molter says Watch out for scams You should never have to pay to apply for scholarships Molter says Also apply for aid from accredited schools These are schools approved by an accrediting agency a nongovernment agency that reviews schools in a particular region or subject area Try to avoid schools that exist only for profit They typically don t accept federal grants and prefer private loans says Molter Some admissions marketing staff also can work on commission so they may not offer the most reliable educational advice he adds Ask your local accredited college or university if it accepts transfer credits from the school in question he advises If a particular school doesn t offer a four year degree stay away from it until you confirm that credits would transfer he says When it sounds too good to be true it always is Avoid private loans Skip private loans when possible because they have higher interest rates Molter says If private loans are your only option you may want to consider starting your college career at an accredited community college and switching to a four year school after a couple of years Live at home learn to be a college student Molter advises You might save yourself 15 000 a year stock shoppe Thinkstock Remember pharmaceutical funding Drug companies offer scholarships to students with hemophilia and other bleeding disorders but you must earn them Molter says Industry wants a well rounded student he says See sidebar below How to Be a Well Rounded Applicant Companies want you to shine You need to have at least a 3 2 to 3 5 grade point average Industry scholarships can be particularly helpful They tend to span four years and can range from 1 000 per year to about 15 000 per year Molter says Visit NHF s website and see which scholarships are available in 2015 When you re dealing with a bleeding disorder you may already have a lot on your mind But try not to focus only on college costs You have many options for aid Just apply yourself and remember to start your research early Learn More Check out the National Hemophilia Foundation s scholarship page hemophilia org Community Resources Scholarships Search for scholarship opportunities fastweb com Check the accreditation status of postsecondary US schools ope ed gov accreditation Submit a Free Application for Federal Student Aid FAFSA fafsa ed gov Access more information about student financial aid finaid

    Original URL path: http://www.hemaware.org/story/financial-aid-facts (2016-02-18)
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  • Emotional Protection | HemAware
    assistant clinical professor of pediatrics at Oregon Health Science University in Portland When diagnosing clinical depression mental health practitioners consider duration and persistence of symptoms Nguyen says If a person s feelings of depression or anxiety last all day or continue for months treatment is likely needed See Detecting Depression sidebar on p 40 for a detailed list of the most common symptoms of clinical depression If you or a family member is experiencing signs of depression or other mental health concerns let healthcare professionals determine whether the symptoms are chronic Even if it s transient sadness or stress even if it s not diagnosable it can still affect how well you take care of yourself or your child Buranahirun says If there are any concerns it would be a good idea to bring it up at your HTC appointment Just open it up for discussion Although it is becoming increasingly common for HTCs to have mental health professionals on site all members of the healthcare team can assist with mental health concerns Share those concerns with a healthcare provider you feel comfortable with whether it s a social worker physician nurse or therapist says Buranahirun Any HTC professional can help guide patients or family members through the proper channels to get the help they need But give yourself time to find someone you have rapport with You may need to try more than one provider to find the right fit It s important to find someone willing to closely follow you until you are experiencing some relief from your symptoms Iannone says Steps to healing Discussing the changes in mood or feelings you are experiencing is the first step to making things better Although you may start the conversation with your HTC doctor or nurse he or she may refer you to your social worker a psychologist or a counselor Our MDs and nurses are usually swamped with patient care and are not trained as mental health practitioners Nguyen says Mypurgatoryyears Thinkstock Even though mental health concerns are fairly common for people with bleeding disorders they don t have to be a fact of life And forging a relationship with a mental health professional is often a vital step in moving forward Suffering from depression doesn t mean someone is deficient in any way Iannone says Often people can find relief when they develop a good relationship with a healthcare provider clergy member or family member who can help lead them to a new status quo Medication is often part of the successful treatment of depression anxiety and other mental health issues Finding the right medication for each person can take time patience and a good working relationship with a healthcare provider Treating depression is always a process Iannone says Some folks hope they can resolve their depression with medication only However just taking a pill rarely works Getting better usually also requires an educational process and lifestyle changes Many HTCs are working to prevent mental health concerns before

    Original URL path: http://www.hemaware.org/story/emotional-protection (2016-02-18)
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  • Doctors in the Making | HemAware
    hometown There s value in treatments that go beyond the biomedical beyond just factor therapy and other drugs like support groups and camps says Patel There s the inherent value in nurturing the entire person Goldberg a student at Indiana University School of Medicine in his hometown of Indianapolis has mild hemophilia A Over the years he has volunteered at his local chapter Hemophilia of Indiana HOI doing everything from stuffing envelopes and answering phones to leading the teen group at his state s annual meeting Recently he s had paid summer internships with the Indiana Hemophilia Thrombosis Center IHTC assisting researchers there with statistical analysis and database work Goldberg has also volunteered at Camp Brave Eagle run by IHTC and HOI There he had an opportunity to develop his bedside manner as a counselor to the kids in his cabin When I would take them to get infused we d talk about what was going on and if they were nervous how to get past that recalls Goldberg Future plans Patel whose undergrad degree is in psychobiology from the University of California Los Angeles plans to be a pediatrician What attracts me is the opportunity to work with families with parents and caregivers he says That s very deeply rooted in my own personal experiences with hemophilia Goldberg has not yet picked a specialty I ve got a couple that I m interested in and hematology is definitely on that list he says He researched hematology throughout his undergraduate years at Indiana University in Bloomington where he majored in neuroscience I ve been so involved with hematology throughout my life says Goldberg Whichever direction they choose both say that their experiences with hemophilia and the bleeding disorder communities that each became a part of helped guide them to the

    Original URL path: http://www.hemaware.org/story/doctors-making (2016-02-18)
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