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  • Login - Human Variome Project
    Membership Requirements of Consortium Members Home Login Login Email Password Remember me Forgot login Register Navigate Home About Activities Solutions Resources Meetings Blog Donate Members Login More Sitemap Privacy Policy Search Login Contact Us Contact the International Coordinating Office Human Variome Project International Ltd Level 1 200 Berkeley Street University of Melbourne Victoria Australia P 61 3 9035 9519 E info variome org Connect Copyright 2014 Human Variome Project International

    Original URL path: http://www.humanvariomeproject.org/member-login.html (2016-02-10)
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  • Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents - Blog - Human Variome Project
    Genomics ACMG recommend Points to Consider Ethical Legal and Psychosocial Implications of Genetic Testing in Children and Adolescents Image titled A Climb on DNA Model sourced under Creative Commons via Flickr from James Gentry Tagged in ACMG ASHG children position statement social New Board Appointments Birds buckets beaches An analogy about genomic Comments No comments made yet Be the first to submit a comment Leave your comment Don t forget to log in If you re a member of the Human Variome Project Consortium you might want to log in before posting a comment Not a member Why not sign up Guest Wednesday 10 February 2016 Captcha Image I have read and agree to the Terms Conditions Categories News Press Releases Statements Speeches Capacity Building Collaborating Projects HVP Country Nodes China Czech Republic Republic of Korea South East Asia Regional USA United Kingdom Venezuela Ethical Legal Social Issues Microattribution Subscribe by Email Get fresh blog posts delivered straight to your inbox Subscribe Popular Posts Human Variome Project International Limited Response to the Global Alliance for Genomics and Health Draft Constitution African genomics projects highlighted at major international scientific meeting A Global Alliance to Enable Responsible Sharing of Genomic and Clinical

    Original URL path: http://www.humanvariomeproject.org/blog/points-to-consider-ethical-legal-and-psychosocial-implications-of-genetic-testing-in-children-and-adolescents.html (2016-02-10)
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  • HVP6: The 6th Biennial Meeting of the Human Variome Project Consortium | HVP Biennial Meetings | HVP Meetings & Events | meetings - Human Variome Project
    Meeting December 2014 HVP6 The 6th Biennial Meeting of the Human Variome Project Consortium HVP Biennial Meetings Wednesday June 1 2016 8 30 Friday June 3 2016 17 30 Meeting Website Navigate Home About Activities Solutions Resources Meetings Blog Donate Members Login More Sitemap Privacy Policy Search Login Contact Us Contact the International Coordinating Office Human Variome Project International Ltd Level 1 200 Berkeley Street University of Melbourne Victoria Australia

    Original URL path: http://www.humanvariomeproject.org/meetings/biennial/hvp6-the-6th-biennial-meeting-of-the-human-variome-project-consortium.html (2016-02-10)
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  • HVP Biennial Meetings | HVP Meetings & Events | meetings - Human Variome Project
    Variome Project Consortium 20 Jun 2006 HVP1 Inauguration 25 May 2008 HVP2 Planning 10 May 2010 HVP3 Implementation and Integration 11 Jun 2012 HVP4 The 4th Biennial Meeting of the Human Variome Project Consortium 20 May 2014 HVP5 5th Biennial Meeting of the Human Variome Project Consortium Navigate Home About Activities Solutions Resources Meetings Blog Donate Members Login More Sitemap Privacy Policy Search Login Contact Us Contact the International Coordinating

    Original URL path: http://www.humanvariomeproject.org/meetings/biennial.html (2016-02-10)
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  • Open Knowledge Human Genomics Meetup | Special HVP Meetings | HVP Meetings & Events | meetings - Human Variome Project
    our individual makeup talents and weaknesses including disease risks Are you better off knowing your genomic code What can the code reveal what not If you have your genome sequenced who has access to your code Should you be in control the hospital your insurance company or the state Who has control at the moment Johan den Dunnen proposes the DNA bank as a way to give control to the owner of the DNA but this relies on excellent data security and good informed consent protocols Is this a good idea Speaker Professor Dr Johan den Dunnen is an extensively recognised expert in medical genomics from Leiden University Medical Center in the Netherlands As a researcher Prof Dr Johan believes We need to share everything we know long before we start writing a formal publication As a leading member of the Human Variome Project Prof Dr Johan looks towards a future where our grandchildren will wonder how we could have lived without access to our own genetic data Meeting Timetable 6 00 6 15 arrival mingling 6 20 Johan speaks about the promises and challenges of individual genome sequencing and proposes a system for being able to access and control our own genomic data 7 30 Light snacks and drinks 8 00 Further discussion on to what extent and how we should be aiming for open genomic data 9 00 End Notes Please read our code of conduct http au okfn org get involved code of conduct and make sure to abide by it Please arrive no earlier than 5 30PM to avoid disrupting ThoughtWorks employees The meetup officially opens at 6PM and there will be somebody to let people upstairs until about 6 15 If you arrive after 6 15 you ll need to call and someone will let

    Original URL path: http://www.humanvariomeproject.org/meetings/special/open-knowledge-human-genomics-meetup.html (2016-02-10)
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  • Special HVP Meetings | HVP Meetings & Events | meetings - Human Variome Project
    Initiatives Home Meetings ISAC Meeting March 2016 Special HVP Meetings 8 Oct 2015 Human Variome Project Networking Event ASHG 17 Feb 2016 Open Knowledge Human Genomics Meetup Navigate Home About Activities Solutions Resources Meetings Blog Donate Members Login More Sitemap Privacy Policy Search Login Contact Us Contact the International Coordinating Office Human Variome Project International Ltd Level 1 200 Berkeley Street University of Melbourne Victoria Australia P 61 3 9035

    Original URL path: http://www.humanvariomeproject.org/meetings/special.html (2016-02-10)
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  • ISAC Meeting - February 2016 | ISAC Meetings | Committee & Council Meetings | meetings - Human Variome Project
    Fora Project wide Initiatives Home Meetings ISAC Meeting February 2016 ISAC Meeting February 2016 ISAC Meetings Thursday February 25 2016 12 00 13 00 Navigate Home About Activities Solutions Resources Meetings Blog Donate Members Login More Sitemap Privacy Policy Search Login Contact Us Contact the International Coordinating Office Human Variome Project International Ltd Level 1 200 Berkeley Street University of Melbourne Victoria Australia P 61 3 9035 9519 E info

    Original URL path: http://www.humanvariomeproject.org/meetings/isac/isac-meeting-february-2016.html (2016-02-10)
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  • ISAC Meetings | Committee & Council Meetings | meetings - Human Variome Project
    25 Jun 2015 ISAC Meeting June 2015 30 Jul 2015 ISAC Meeting July 2015 25 Aug 2015 ISAC Meeting August 2016 27 Aug 2015 ISAC Meeting August 2015 17 Sep 2015 ISAC Meeting September 2015 8 Oct 2015 ISAC Meeting October 2015 19 Nov 2015 ISAC Meeting November 2015 17 Dec 2015 ISAC Meeting December 2015 28 Jan 2016 ISAC Meeting January 2016 25 Feb 2016 ISAC Meeting February 2016

    Original URL path: http://www.humanvariomeproject.org/meetings/isac.html (2016-02-10)
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