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  • Model Sub-Network Organization Terms and Conditions: Topic List | Markle | Advancing America's Future
    The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Model Sub Network Organization Terms and Conditions Topic List Publication Date Thursday December 1 2005 Publication Source Markle Model Sub Network Organization Terms and Conditions Topic List Introduction This document Topic List describes the issues addressed by the Model Terms and Conditions of a Sub Network Organization SNO Background An SNO is to operate as a health information data exchange organization that operates as a part of the National Health Information Network NHIN a nationwide environment for the electronic exchange of health information Use of Model The Model is based on a number of assumptions which are described in the following discussion The Model is not the answer for all SNOs Instead it is intended to assist in the organization of an SNO by providing a basis

    Original URL path: http://www.markle.org/publications/841-model-sub-network-organization-terms-and-conditions-topic-list (2016-02-10)
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  • Homepage News Events | Markle | Advancing America's Future
    National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos News Events There is Security in Sharing The Markle Task Force recommends a virtual reorganization of government through the SHARE Network Executive Order Further Strengthening the Sharing of Terrorism Information to Protect Americans The President made the following executive order regarding the sharing of terrorism information Enhancing Security and Civil Liberties Markle Task Force members make suggestions for how to protect privacy and civil liberties There is Security in Sharing The Markle Task Force recommends a virtual reorganization of government through the SHARE Network Dr Herbert Pardes Nomination Letters to HHS Connecting the Data This article describes the content and reception

    Original URL path: http://www.markle.org/about-markle/news-events?page=20 (2016-02-10)
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  • Search | Markle | Advancing America's Future
    labor initiatives like green job programs and the fight for workers rights for many years starting as a political activist and an organizer at the local union level Prior to her election as Secretary Treasurer of the AFL CIO Shuler worked her way up through the ranks of the International Brotherhood of Electrical Workers IBEW from Local Union 125 in Portland OR to the Executive leadership at the International headquarters in Washington DC During her tenure at the IBEW international Shuler specialized in government affairs oversaw 11 major departments and advised the International President on key policy issues Today as chief financial officer of the federation Shuler oversees six administrative departments and is leading the federation s young worker outreach initiative and repositioning efforts Secretary Treasurer Shuler also represents the AFL CIO on various boards and committees such as the AFL CIO Housing Investment Trust and the Women s Committee of the International Trade Union Confederation Geoffrey Canada In his 30 years with the Harlem Children s Zone Geoffrey Canada has become nationally recognized for his pioneering work helping children and families in Harlem and as a passionate advocate for education reform Since 1990 Canada has been the President for Harlem Children s Zone which The New York Times Magazine called one of the most ambitious social experiments of our time In 1997 the agency launched the Harlem Children s Zone Project which targets a specific geographic area in Central Harlem with a comprehensive range of services The Zone today covers almost 100 blocks and serves more than 10 000 children Using the Children s Zone as a model President Barack Obama created the Promise Neighborhoods initiative to create similar comprehensive programs across the country Canada grew up in the South Bronx in a poor sometimes violent neighborhood Despite his troubled surroundings Canada was able to succeed academically receiving a Bachelor of Arts Degree from Bowdoin College and a Master s Degree in Education from the Harvard School of Education Drawing upon his own childhood experiences and at the Harlem Children s Zone Canada has written two books Fist Stick Knife Gun A Personal History of Violence in America and Reaching Up for Manhood Transforming the Lives of Boys in America Antonia Hernández Antonia Hernández is nationally regarded for a career spanning three decades in social justice expertise in philanthropy and the nonprofit sector and a lifelong devotion to underserved communities Since joining the California Community Foundation CCF in 2004 she has leveraged the foundation s assets and relationships to expand its activities and impact beyond traditional grantmaking to innovation initiatives in civic engagement public policy community development and care for vulnerable populations Previously Hernández was president and general counsel of the Mexican American Legal Defense and Educational Fund MALDEF from 1981 to 2003 a national nonprofit litigation and advocacy organization dedicated to protecting the civil rights of the nation s Latinos through the legal system community education and research and policy initiatives She is a member of the boards

    Original URL path: http://www.markle.org/solr-search?keyword=&page=20 (2016-02-10)
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  • Achieving Electronic Connectivity in Health Care: Summary of Organizational and Governance Recommendations | Markle | Advancing America's Future
    Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Achieving Electronic Connectivity in Health Care Summary of Organizational and Governance Recommendations A Preliminary Roadmap from the Nation s Public and Private Sector Healthcare Leaders Publication Date Thursday July 1 2004 To encourage the government to enable organizational and governance progress as well as the industry to move forward and begin to develop the tools necessary to successfully sustain infrastructure and clinical IT application adoption we make the following four organizational and governance recommendations as starting points Communities should assess their readiness for local and regional data sharing by conducting a rigorous review of the technical clinical organizational community commitment and leadership all critical success factors in building and managing a local health information infrastructure Communities will require a source of activation to catalyze or enforce convening of

    Original URL path: http://www.markle.org/publications/848-achieving-electronic-connectivity-health-care-summary-organizational-and-governance (2016-02-10)
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  • Trust but Verify | Markle | Advancing America's Future
    President s Letters Videos Trust but Verify Jerilyn Heinold of Winchester Massachusetts Publication Date Thursday July 1 2004 A doctor I see for my thyroid tumor recently made a mistake While the recommendation of the specialist an endocrinologist in this case didn t cause me to lose a limb or seriously jeopardize my health the experience did give me first hand insight of how easy medical mistakes happen when doctors don t have access to information when making decisions In 2001 I was diagnosed with a thyroid nodule which thankfully turned out to be benign Recently since I hadn t seen an endocrinologist for three years my primary care physician referred me to a leading expert in the field to see if the tumor had grown The specialist gave me a clinical exam and pronounced the tumor had not grown perhaps even shrunk To substantiate that finding she referred me for an ultrasound The ultrasound report conflicted with the clinical findings and stated that the tumor had grown What happened next eroded my trust in our health care system and convinced me that patients need to play a bigger role in their own health care Those patients who blindly put full faith in our current health care system I m now convinced are those most likely to incur a medical mistake If we are involved it can sometimes mean the difference between getting the right care or getting the wrong care or perhaps life and death Thanks to an effort by Beth Israel Deaconess Medical Center and other Boston area institutions to allow patients to access their medical information on line I am able to electronically track my health care services maintain my medical records and test results and e mail my primary care doctor The initiative called PatientSite is a great resource for patients for many reasons but I m most grateful for how it allowed me to avoid a medical error Before my specialist called me about my ultrasound results I was able to check the results myself from home via PatientSite The first thing I noticed was that the results contradicted what the specialist found from her clinical examination According to the new report my tumor was bigger Puzzled and concerned I pulled up my original 2001 report and compared those results to the new report Then I realized the new radiologist report was wrong The size of the original tumor they were referencing was wrong As I could access my 2001 report to verify the size of the original tumor something the radiologists did not do I saw that my tumor had not in fact changed in size Was the radiologists reference based on someone else s tumor When the endocrinologist called me she told me right away my tumor had grown and I needed a biopsy I knew she too had failed to pull up my original report even though the new results conflicted with the results of her clinical exam When I reminded her

    Original URL path: http://www.markle.org/health-networked-life-health/trust-verify (2016-02-10)
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  • The Mother's Bond | Markle | Advancing America's Future
    and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos The Mother s Bond Cynthia Soloman of Sonoma California Publication Date Thursday July 1 2004 Publication Source Markle My son Alex suffers from hydrocephalus an uncommon condition that forces an abnormal accumulation of fluid inside his brain His condition is treated with insertions of shunts into his skull to let the excess fluid drain If the shunts should fail Alex could lapse into a coma and even die Quick and appropriate intervention for my son and other hydrocephalus patients is critical Since Alex was diagnosed more than 20 years ago with his condition he has had endless encounters with the health care system Between ages 6 and 16 Alex had some 20 surgeries most to replace or repair his shunts When he was 7 Alex

    Original URL path: http://www.markle.org/health/mothers-bond (2016-02-10)
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  • Response to New Federal Health Data Breach Notification Requirements | Markle | Advancing America's Future
    Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Response to New Federal Health Data Breach Notification Requirements Publication Date Thursday May 21 2009 Markle the Center for Democracy and Technology and others comment on the new federal health data breach notification provisions to be administered by the US Department of Health and Human Services Our comments rest on the need for a consistent and consumer oriented approach to privacy and security policies for personal health records PHRs We understand this issue will be broadly addressed in the forthcoming HHS and FTC privacy and security

    Original URL path: http://www.markle.org/publications/838-response-new-federal-health-data-breach-notification-requirements (2016-02-10)
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  • Objective Standards Needed for Evaluating Information Breaches | Markle | Advancing America's Future
    Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Objective Standards Needed for Evaluating Information Breaches HITECH Breach Notification for Unsecured Protected Health Information Rulemaking Publication Date Friday October 23 2009 Markle s Connecting for Health Initiative has since 2002 brought together leading government industry and health care experts to accelerate the development of a health information sharing environment to improve the quality and cost effectiveness of health care while protecting privacy The Center for Democracy and Technology CDT through its Health Privacy Project promotes comprehensive privacy and security policies to protect health data as information technology is increasingly used to support the exchange of health information Markle and CDT along with those listed at the end of this letter submit these comments in response to the interim final rule IFR establishing requirements for notification of breaches of unsecured protected health information and request for comments issued by the Department of Health and Human Services HHS under the American Recovery and Reinvestment Act of 2009 ARRA 1 The HHS IFR which applies to entities covered by the Privacy and Security Rules of the Health Information Portability and Accountability Act HIPAA was issued at around the same time the Federal Trade Commission FTC issued its final rule 2 governing breach notification for personal health record PHR vendors and related entities that are not HIPAA covered entities collectively referred to as PHR vendors 3 Because there is overlap between these two sets of standards we have taken the FTC s final rule into account in formulating these comments on HHS IFR We also address HHS clarification of guidance issued contemporaneously with its IFR which specifies the secure technologies and methodologies that when utilized by HIPAA covered entities or PHR vendors provide a safe harbor from the ARRA s breach notification requirements Our comments are based on a few core principles A comprehensive framework of privacy protections including greater transparency regarding uses and disclosures of personal health data is crucial to consumer trust in health information technology and health information exchange Requiring that individuals and government authorities be notified in the event of a breach of personal health information promotes transparency and acknowledges concerns that individuals have when their health data are inappropriately accessed or disclosed Breach notification requirements are part of a strategy to help health care organizations develop and implement policies and technologies that better protect health data Policies and standards for breach notification should be set in a way that promotes these important goals while also avoiding over notification for inconsequential breaches It is essential to

    Original URL path: http://www.markle.org/publications/837-objective-standards-needed-evaluating-information-breaches (2016-02-10)
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