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  • Connecting Americans to their Health Care: Consumer Input | Markle | Advancing America's Future
    Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Connecting Americans to their Health Care Consumer Input Publication Date Thursday December 7 2006 Susan Christensen from the Agency for Healthcare Research and Quality Vicki Estrin from Tennessee Volunteer eHealth Initiative Lisa Fenichel Health Care for All and Art Levin from Center for Medical Consumers share their views and work on consumer input and PHRs

    Original URL path: http://www.markle.org/publications/933-connecting-americans-their-health-care-consumer-input (2016-02-10)
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  • Connecting Americans to their Health Care: Consumer Empowerment | Markle | Advancing America's Future
    America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Connecting Americans to their Health Care Consumer Empowerment Publication Date Thursday December 7 2006 David Lansky from Markle Foundation Kelly Cronin from the Office of the National Coordinator for Health Information Technology Kathleen Mahan from SureScripts and Rose Marie Robertson from American Heart Association discuss how the private sector and public sector are making advances in medication lists and PHRs

    Original URL path: http://www.markle.org/publications/932-connecting-americans-their-health-care-consumer-empowerment (2016-02-10)
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  • Connecting Americans to their Health Care: Networked PHRs | Markle | Advancing America's Future
    Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Connecting Americans to their Health Care Networked PHRs Publication Date Thursday December 7 2006 Publication Source Markle In this presentation James Ralston from Group Health Cooperative Paul Shiels from eHealth Aetna Inc and Omid Moghadam from Intel Corporation talk about their efforts to create electronic patient health information and networked PHRs Download the

    Original URL path: http://www.markle.org/publications/930-connecting-americans-their-health-care-networked-phrs (2016-02-10)
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  • Parallel National Surveys: The Similar and Contrasting Views of Consumers and Clinicians Toward Electronic Personal Health Records | Markle | Advancing America's Future
    Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Parallel National Surveys The Similar and Contrasting Views of Consumers and Clinicians Toward Electronic Personal Health Records Publication Date Wednesday March 3 2010 Publication Source Markle Connecting for Health The Markle Foundation and the American Medical Association AMA joined together to present coordinated surveys that examine physician and patient views of electronic personal health records PHRs at the

    Original URL path: http://www.markle.org/publications/929-parallel-national-surveys-similar-and-contrasting-views-consumers-and-clinicians-to (2016-02-10)
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  • Presentation to the HIPAA Summit | Markle | Advancing America's Future
    Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Presentation to the HIPAA Summit Connecting for Health Common Framework for Networked Personal Health Information Publication Date Wednesday August 20 2008 In this presentation to the HIPAA Summit Carol Diamond provides an overview of the Markle Connecting for Health Common Framework for Networked Personal Health Information Key points include Consensus practices among health sectors and technology innovators can help internet health information products flourish A stable set of principles and practices will foster innovation and improve consumer choice for emerging services The Markle

    Original URL path: http://www.markle.org/publications/928-presentation-hipaa-summit (2016-02-10)
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  • Models for Data Storage & Exchange, Aggregate Data, De‐identification and Re‐identification | Markle | Advancing America's Future
    Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Models for Data Storage Exchange Aggregate Data De identification and Re identification Publication Date Friday September 18 2009 Publication Source Health IT Policy Committee In this testimony Claudia Williams addresses this goal of maintaining public trust by making privacy a critical enabler of information sharing and health IT adoption and in particular the architecture choices needed to support trusted information sharing The remarks focus on three key points Adopt a Framework Based Approach The full array of foundational privacy principles sound network design and strong governance and accountability are all needed and must work together to assure trusted information sharing Ensure that Policy

    Original URL path: http://www.markle.org/publications/916-models-data-storage-exchange-aggregate-data-de-identification-and-re-identification (2016-02-10)
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  • Implementing a Trusted Health Information Exchange | Markle | Advancing America's Future
    Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Implementing a Trusted Health Information Exchange Publication Date Thursday April 6 2006 Keynote speech which discusses Markle s mission programs and values the context of the current US health care the disruptive power of information technology Connecting for Health and the Common Framework the launch of Resources for Implementing Private and Secure Health Information Exchange and nine privacy

    Original URL path: http://www.markle.org/general-markle-health-networked-life-health/implementing-trusted-health-information-exchange (2016-02-10)
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  • Comments on FTC Breach Notification Rulemaking | Markle | Advancing America's Future
    secured through the use of a technology or methodology specified by the Department of Health and Human Services HHS in guidance as rendering the information unusable unreadable or indecipherable to unauthorized individuals 3 HHS has recently issued guidance on this issue the HHS Guidance on which we have submitted separate comments 4 Simultaneous with the issuance of the HHS Guidance HHS published a request for information RFI in advance of its rulemaking to implement the breach notification provisions that apply to HIPAA covered entities and their business associates We have also submitted comments on the RFI 5 The breach notification provisions in ARRA accomplish two important goals First they provide for individuals to receive notice in certain circumstances when their health information is at risk Second they create a powerful incentive for custodians of personal health information to adopt strong privacy and security practices in order to avoid a breach It is important to recognize the interaction of the rulemaking process being undertaken by FTC and HHS FTC will promulgate breach notification rules that apply to PHR vendors and related entities Breach notification rules promulgated by HHS will apply to HIPAA covered entities or business associates of such entities However the rules to be issued by both HHS and FTC will set breach notification standards for PHRs To avoid creating confusion for consumers it is critical that PHRs be subject to consistent rules governing how they store and share consumer data Our comments below are mainly directed at achieving this consistent regulatory framework We understand this issue will be broadly addressed in the forthcoming HHS and FTC privacy and security recommendations for PHRs but we strongly recommend that HHS and FTC take this early opportunity to align policies and make them meaningful to consumers who must be able to navigate their use of PHRs In June 2008 Markle Connecting for Health released the Common Framework for Networked Health Information 6 outlining consensus privacy and security policies for personal health records and other consumer access services This framework which was developed and supported by a diverse and broad group including technology companies consumer organizations and HIPAA covered entities 7 was designed to meet the dual challenges of making personal health information more readily available to consumers while also protecting it from unfair or harmful practices A foundational principle of this work is that a consistent and meaningful set of policies for protecting information in personal health records is desirable for consumers whether the PHR is offered by a HIPAA covered entity or not However this does not imply that it is appropriate to simply extend HIPAA rules in their current form to uncovered entities supplying PHRs or new health information products In summary we urge FTC to Work with HHS to apply consistent information and breach policies to PHRs in order to provide consumers with a reliable framework of protections Ensure that individuals acting in a personal capacity are not considered to be a PHR related entity Maintain its interpretation of

    Original URL path: http://www.markle.org/publications/912-comments-ftc-breach-notification-rulemaking (2016-02-10)
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