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  • Collaborative Response to the U.S. Department of Health and Human Services RFI: Voluntary Storage of Personal Data in Preparation for Emergencies | Markle | Advancing America's Future
    A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Collaborative Response to the U S Department of Health and Human Services RFI Voluntary Storage of Personal Data in Preparation for Emergencies Publication Date Monday July 24 2006 Publication Source Markle Summary Markle Connecting for Health a public private collaborative group whose goal is to advance health information technology in the public interest is pleased to offer the following response to the U S Department of Health and Human Services s HHS request for information1 RFI issued on May 23 2006 We limit the scope of this response to personal health information We therefore exclude other types of personal information such as wills or birth certificates which fall outside the domain of our work In sum we applaud the department s recognition of the importance of having access to electronic records in the case of an emergency However we suggest that HHS broaden the scope beyond mass disasters to include individual health emergencies as well as chronic care and self management We have very modest expectations for an approach that relies solely on consumers to store their own health information for emergency retrieval It is appropriate for the federal government to encourage people to maintain backup and protect key information virtually Clearly Americans can be more personally responsible and better prepared However even the most effective government efforts to encourage this behavior will inevitably fail to motivate a very large percentage of the population Vulnerable populations i e the older sicker poorer uninsured non English speaking etc are particularly difficult to reach and will require focused attention from HHS and others We discourage the creation of a new centralized information silo that will likely be out of date and unfamiliar to health care providers when the next disaster strikes Instead we urge HHS to coordinate all health IT efforts within a vision of a decentralized nationwide health information network NHIN A variety of solutions will likely be necessary to support the availability of essential health information in an emergency as opposed to a single centralized nationwide database HHS should prioritize near term emergency preparedness work on achieving minimum consensus on identification authentication and

    Original URL path: http://www.markle.org/publications/877-collaborative-response-us-department-health-and-human-services-rfi-voluntary-storag (2016-02-10)
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  • Letters in support of the nomination of Carol Diamond to the American Health Information Community | Markle | Advancing America's Future
    Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Letters in support of the nomination of Carol Diamond to the American Health Information Community Publication Date Friday August 5 2005 The Honorable Michael O Leavitt Secretary of the Department of Health and Human Services 200 Independence Avenue SW Suite 615F Washington DC 20201 Dear Secretary Leavitt We are honored to nominate Dr Carol Diamond Chair of Connecting for Health and Managing Director of the Markle Foundation as a voting member of the American Health Information Community AHIC The organizations we represent and more than 100 others have been deeply engaged in Markle s Connecting for Health Collaborative CFH the multi sector effort that has advanced the goal of nationwide electronic health information exchange based on open common standards Dr Diamond has led this effort which has forged a remarkable consensus on key principles nearly identical to those underpinning the AHIC We view Dr Diamond s participation in the AHIC as the

    Original URL path: http://www.markle.org/publications/876-letters-support-nomination-carol-diamond-american-health-information-community (2016-02-10)
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  • Designing the National Health Information Network: Patient and Consumer-focused Principles | Markle | Advancing America's Future
    Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Designing the National Health Information Network Patient and Consumer focused Principles Publication Date Tuesday January 18 2005 Modern health care depends upon accurate timely understandable and relevant information Complete and useful information needs to be in the hands of patients families professionals and health system managers to improve individual health the performance of the health care system and the nation s well being A properly planned information environment may achieve these functions without central databases or new physical networks or new entities Though referring to a network the

    Original URL path: http://www.markle.org/publications/875-designing-national-health-information-network-patient-and-consumer-focused-principl (2016-02-10)
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  • The Collaborative Response to the ONCHIT Request for Information | Markle | Advancing America's Future
    s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos The Collaborative Response to the ONCHIT Request for Information Publication Date Tuesday January 18 2005 Publication Source Markle David J Brailer MD PhD Office of the National Coordinator for Health Information Technology U S Department of Health and Human Services Dear Dr Brailer The organizations listed below are pleased to submit this collaborative response to the Request for Information issued by your office This submission represents an extraordinary diversity of stakeholders who share a commitment to improving the health care system through more effective use of health information These thirteen major health and technology organizations have endorsed a Common Framework to support health information exchange in the United States while protecting patient privacy We have identified the vital design elements of standards policies and methods for creating a new information environment that would allow health care professionals institutions and individual Americans to exchange health information in order to improve patient care Together and individually we are committed to collaborating with your office and the many other dedicated and creative partners to achieve the vision of a more effective and connected health care system Thank you for the opportunity to provide this contribution to the national dialogue on this vital topic Sincerely The American Health Information Management Association The American Medical Informatics Association The American National Standards Institute Healthcare Informatics Standards Board The Center for Information Technology Leadership The Connecting for Health Steering Group The eHealth Initiative The Healthcare Information and Management Systems Society Health Level Seven Inc HIMSS EHR Vendor Association Integrating the Healthcare Enterprise Internet2 The Liberty Alliance Project The

    Original URL path: http://www.markle.org/publications/874-collaborative-response-onchit-request-information (2016-02-10)
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  • David Lansky's Cover Letter to HHS | Markle | Advancing America's Future
    Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos David Lansky s Cover Letter to HHS Publication Date Tuesday January 18 2005 Publication Source Markle Foundation Dear Dr Brailer It has been our privilege to convene the patient and consumer organizations listed below to develop a statement of Patient and Consumer focused Principles for design of the National Health Information Network in response to your Request for Information They identified what they believe to be the critical concerns and hopes of the American public as we all work together to build a more effective and efficient health care system that capitalizes on the benefits to health that can come from the use of information The development of these principles involved the participation of AFL CIO Consumers Union Families USA Health Privacy Project International Association of Machinists and Aerospace Workers

    Original URL path: http://www.markle.org/publications/872-david-lanskys-cover-letter-hhs (2016-02-10)
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  • Dissenting Statement on PHR Certification to the American Health Information Community | Markle | Advancing America's Future
    Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Dissenting Statement on PHR Certification to the American Health Information Community Publication Date Thursday March 1 2007 We acknowledge a need for federal governmental leadership that accelerates the potential of PHRs to empower the consumer However certification should not be a governmental focus at this time The risks outweigh any potential benefits If this recommendation goes forward it will create momentum for certification is likely to ignore a broad range of critical policies and as well stifle innovation by prematurely locking in current approaches to PHRs and deter new entrant in a

    Original URL path: http://www.markle.org/publications/870-dissenting-statement-phr-certification-american-health-information-community (2016-02-10)
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  • The Right General Direction | Markle | Advancing America's Future
    Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos The Right General Direction Collaborative Comments on the Office of the National Coordinator s Interim Final Rule on the Initial Set of Standards Implementation Specifications and Certification Criteria for Electronic Health Record Technology Publication Date Monday March 15 2010 Publication Source Markle The Interim Final Rule IFR on health information technology IT standards marks a positive step forward in the nation s efforts to improve health care by putting modern IT tools at the fingertips of medical professionals and consumers alike We applaud the US Department of Health and Human Services for drafting an initial set of standards that in general support the goals of Meaningful Use of health IT and allow for sufficient flexibility in a

    Original URL path: http://www.markle.org/publications/866-right-general-direction (2016-02-10)
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  • Collaborative Statement on CMS and ONC Issuance of Proposed Regulations on Meaningful Use and Standards for the Electronic Health Record Incentive Program | Markle | Advancing America's Future
    Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos About Markle Page Sections About Markle A Message from Zoë Baird Our Principles Our Impact Board of Directors Senior Team Our History Quick Links Conference Space Events Markle in the News Media Releases Past Initiatives President s Letters Rework America Page Sections About Rework America A Message from Rework America Opportunity for All Our Impact Initiative Members Expert Advisors Quick Links Rework America Connected Our Book America s Moment Initiative Overview Latest News Letters to Members Member Commentary Personal Stories Rework America Library Health Page Sections About Health Our Impact Steering Group Consumer Work Group HIE Committee Quick Links Blue Button Common Framework Health IT Health Library National Security Page Sections About National Security Post 9 11 Legacy Our Impact Task Force Quick Links National Security Library Reports and Recommendations Sharing and Collaboration The Lawfare Blog Library Quick Links Our Book America s Moment Archive Media Releases Member Commentary President s Letters Videos Collaborative Statement on CMS and ONC Issuance of Proposed Regulations on Meaningful Use and Standards for the Electronic Health Record Incentive Program Publication Date Tuesday January 26 2010 The release of proposed federal health information technology IT meaningful use regulations and standards marks a major positive step forward in the nation s efforts to improve health care by putting modern IT tools at the fingertips of medical professionals and consumers alike The public comment period is critical for ironing out workable details and clearly we believe some important revisions will be necessary in the final regulation But we must not lose sight of the urgent priorities of this effort to improve health increase cost effectiveness protect privacy and encourage innovation and

    Original URL path: http://www.markle.org/publications/864-collaborative-statement-cms-and-onc-issuance-proposed-regulations-meaningful-use-an (2016-02-10)
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