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  • About Bone Marrow Transplant - National Bone Marrow Transplant Link
    can help your medical team during this period by letting them know if you experience anything unusual and are feeling pain or other symptoms Be a good communicator Conversations with your health care team are particularly important at this time On the day of transplant you ll receive the stem cells that were taken from either you or a donor through an IV intravenous just like any blood product or medication It takes one to two hours for the infusion In an amazing process stem cells will travel through the bloodstream and migrate to the marrow space in the bone They know exactly where to go The stem cells from the transplant should begin producing lifesustaining blood cells in about two to four weeks When peripheral blood stem cells or cord blood stem cells are used this generally occurs somewhat more quickly You will be monitored frequently for any reaction to the infusion but in most cases the process is uneventful While unlikely it is possible that your body will not allow the stem cells to grow This is referred to as graft rejection or graft failure which is a serious complication requiring additional treatment It is only natural to wonder about other problems that can arise Some complications that may occur in the weeks following your transplant are Infection from immune system deficiency Hemorrhage from lack of platelets Organ damage from chemotherapy and or radiation In allogeneic transplants when the cells of the new marrow are from a related or unrelated donor you may also have complications from graft versus host disease GVHD This condition occurs when the new stem cells perceive your body as foreign and attack the tissues and or organs of your body Graft refers to the donated stem cells and host is the patient This

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_transplant.htm (2015-03-26)
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  • Emotional Aspect of Bone Marrow Transplant - National Bone Marrow Transplant Link
    discuss this immediately with your physician All patients will be seen by a social worker prior to transplant Professional help can positively impact your emotional well being and will directly and indirectly impact your overall treatment experience Although there are many different ways of coping you might find the following suggestions helpful Acknowledge your feelings It is unrealistic to expect yourself to be positive all the time Be honest about how you feel and then begin to plan out first steps in coping with your difficult situation Make time for activities that will make you feel emotionally stronger It is okay to want a greater connection to your loved ones and yet at other times feel the need to be alone Support from others may be a key factor in predicting how well a person will cope with a difficult treatment Asking others to help may actually reduce a sense of helplessness Look into all possible resources for help Let people know exactly what they can do to help you Talk about your specific needs Create a list of tasks and designate responsibilities to others if possible It is important to have multiple caregivers in order to avoid stress and exhaustion among caregivers Patients have frequent follow up appointments in clinics after they are discharged from the hospital Frequency of these appointments can vary among patients and depends on the level of care required Patients are not able to drive on their own for several weeks and require a reliable means of transportation Focus on the issues that bring meaning to your life your religion spirituality interests or passions Use your strengths Capitalize on the positive coping skills that have worked for you in the past Perhaps it was physical exercise taking a walk speaking to friends or spending time

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_emotional.htm (2015-03-26)
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  • Pediatric Bone Marrow Transplant - National Bone Marrow Transplant Link
    answer with reassurance and honesty Allow your child to express emotions and help him her to keep a positive attitude One area of concern in children undergoing stem cell transplant is growth and development The physical effects of treatment and environmental restrictions after transplant may impact their growth and cognitive or emotional development A challenge for parents and medical personnel is to promote the normal aspects of the child s life Many hospitals have programs providing recreational and educational opportunities as well as emotional support This helps children deal with illness and may promote their well being The siblings of children who undergo a stem cell transplant are also a group to be concerned about Siblings may experience feelings of jealousy or anger about the extra time and attention given to the ill child The best way to help these children deal with their feelings is to provide honest age appropriate information about the patient s condition and treatment It may be helpful to have siblings visit the clinic or hospital in order to help them understand what the sick child is experiencing Many times a child s imagination is filled with incorrect information Siblings need special attention support and

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_pediatric.htm (2015-03-26)
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  • Resources and Support - National Bone Marrow Transplant Link
    be more closely matched The goal is to find a match for six key antigens You do not have to have the same blood type as your donor to be a suitable match If blood types are different you will become the donor s blood type after the transplant This is because the stem cells from a donor have been programmed to produce the donor s blood type and will continue to do that in their new environment One potential problem in finding a matched unrelated donor may be the lack of representation of your ethnic or racial group in the registries Because these antigen tissue types are inherited and some are unique to racial or ethnic backgrounds the greatest chance of locating a donor may come from the same group Ambitious efforts to increase the number of minority donors on the bone marrow registries are underway Knowing who should and should not be tested as a donor is often a topic of concern Friends coworkers and others interested in becoming a bone marrow donor may either contact a local Red Cross chapter or one of the large registries like the National Marrow Donor Program These organizations will be aware of when and where bone marrow drives are occurring The general criteria for becoming a donor include factors such as general health status weight and age Those who will generally not be able to serve as a bone marrow stem cell donor include people with a history of severe heart problems cancer hepatitis insulin dependent diabetes or HIV Donors are screened for conditions that would put them at too great a risk to donate as well as for illnesses that could be harmful to the patient How are unrelated matches found There are a number of bone marrow donor registries

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_donor.htm (2015-03-26)
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  • Preparing for the Bone Marrow Transplant - National Bone Marrow Transplant Link
    type of disease and in performing transplants Do your research and ask questions If possible visit the medical center before your transplant There are distinct advantages to having the transplant at an experienced medical center with an excellent track record If however there is no center near your home you have concerns about the center s reported outcomes or the center has performed too few of the kind of transplant you need then the choice may be more difficult Calling the National Marrow Donor Program NMDP to get a listing of centers performing unrelated stem cell transplants is an excellent way to get initial information The NMDP Transplant Center Access Directory contains phone numbers and addresses of most transplant centers with information about the number and type of transplants performed at each center as well as some statistics about survival rates at each center Additionally BMT InfoNet offers a comprehensive listing of transplant centers on its website see Resource Listing Other important considerations may include insurance coverage proximity to family follow up care and living arrangements should you select a center away from home Signing on to stem cell transplant bulletin boards or newsgroups on the Internet can be another useful way to get information It may be helpful to get personal accounts and recommendations but beware that this can also result in misinformation Your health care team should be relied upon for the most accurate medical advice Help get yourself and your family prepared to meet the transplant challenge Put together a notebook or binder to record information from your doctor visits and or take a tape recorder along with you Take a family member or friend with you during discussions with your medical team They ll provide backup support in understanding what was said Don t hesitate to

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_preparations.htm (2015-03-26)
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  • Bone Marrow Transplant Caregiver Role - National Bone Marrow Transplant Link
    you may be able to arrange to have more than one caregiver as the role can be very demanding Even though many people successfully make it through the transplant with only one caregiver having two or more caregivers is an advantage This allows each caregiver a time to rest and return to the hospital more refreshed Since caregivers may experience a high degree of anxiety sharing the responsibility of caring for you can serve to alleviate some of the tension Finally having more than one caregiver provides a safeguard in the event that a caregiver gets sick and is unable to be on the transplant unit Your caregivers are very actively involved during the pre transplant and posttransplant process Their responsibility after discharge from the hospital significantly increases as they are required to alter their lifestyle and needs to assist you It is important that caregivers are provided emotional support and monitored for signs of distress and fatigue The role of a caregiver may include according to Patient and Caregiver Manual Fred Hutchinson Cancer Research Center Transplant Program Providing emotional support Providing physical care during and after hospitalization Caring for the central line catheter Helping with administration of oral medications Recording the medications taken Giving intravenous fluids and medications using a pump device Identifying changes in the patient s condition Obtaining medical care if needed Reporting symptoms to health care staff Gathering information Keeping family members and friends up to date about the patient s condition Monitoring the number of visitors Maintaining a clean home environment after hospitalization Preparing food Providing transportation to and from the hospital for follow up care Knowing that your caregiver is well prepared for his her responsibilities may give you greater confidence Organizations exist that support caregiver needs and it may be worth the time

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_role.htm (2015-03-26)
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  • Bone Marrow Transplant Caregiver Selection - National Bone Marrow Transplant Link
    that your primary caregiver is someone you feel comfortable with and is someone who cares deeply for you Other things you may wish to consider include whether or not the caregiver will feel comfortable in a hospital environment Most SCT units have workshops to train caregivers in necessary skills and are also able to provide additional help with certain tasks for those who need it Back to Resource Guide Main

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_selecting.htm (2015-03-26)
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  • Cost of Bone Marrow Transplant - National Bone Marrow Transplant Link
    ll be told of your financial responsibility It may range from 10 000 to 25 000 Compatibility testing Once a potential donor is identified additional testing will be performed Prices for these tests vary Some centers require advance payment to cover these compatibility tests Frequently more than one test is done Unused portions of this initial fee are typically refunded or transferred to another of your patient accounts These fees may or may not be reimbursed by insurance or government agencies Donor typing of family and friends There is a fee for each test done This is due to the cost of lab work Siblings are tested first and then other family members may wish to be tested Insurance companies will generally cover testing of siblings parents and children but not additional family members Stem cell harvest and donor expenses The cost of the actual collection of cells from the donor his her medical tests and possible travel expenses may be high Usually there is a fixed fee for the collection and delivery of stem cells The average rate is about 3 500 5 000 if it s a related donor The average rate for an unrelated donor is 15 000 50 000 Donors are not paid for any part of their stem cell donation All of their medical and traveling expenses are covered by the patient s insurance so that there are no costs to the donor The actual transplant The procedure is expensive Insurance companies vary widely on coverage It is possible that much of your transplant if not the entire cost will be covered Call your insurer to check on your coverage or have your transplant center make the contact If your insurer refuses to cover expenses be persistent and consider speaking with legal counsel or someone

    Original URL path: http://www.nbmtlink.org/resources_support/rg/rg_costs.htm (2015-03-26)
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