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  • Traits of a Warrior! - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    Enemy will Inevitably Throw Knows the Battle will Not Be Easy the Warrior may even Get Hurt Trains for the Fight Gets Ready for Combat Mentally and Physically A Lean Mean Fighting Machine The Best Conditioned will have the Stamina for the Battle Knows Beyond a Shadow of a Doubt that He She is Going to Survive He KNOWS He is Going to be Victorious She has Total Confidence There is No Hesitation when It s Time to Fight Odds and Statistics are Irrelevant He has Implicit Trust in His Leader A Good Warrior is a Very Poor Loser She Hates to Lose at Anything Winning isn t Everything It s the Only Thing No One Can Fight His Fight for Him That would be Someone Else s Fight He has Support Beside Him and Behind Him but Ultimately It s His Fight It s Difficult if not Impossible to Fight while Running Away You have to Fight Head On If She Gets Knocked Down She Gets Right Back Up and Into the Fight She Takes Setbacks in Stride He Doesn t Hold Anything Back when the Fight is On Every Ounce of His Strength is poured into The Attack There is No Event Occasion or Happening More Important than This They are Proud To Be Warriors They Wear the Scars of Battle With Pride They Hold the Banner of Victory High So DIG IN YOUR HEELS YOU ARE IN A BATTLE Be A Warrior Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself and You ll Come Through with Flying Colors Time is a Friend You Will Feel

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_traits_of_a_warrior.htm (2015-03-27)
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  • A Donor for What? - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    one cares that we were once highly productive athletic healthy individuals because we are now defined by our medical diagnoses and the complicated work ups and intensive treatments that they require We are set up for constant scrutiny and judgment from doctors which invariably engenders fear and anxiety in our pass fail system This is enough to make anyone lose a sense of control over one s life and personal identity perhaps even worse for us because we are also bald and faceless behind our protective masks As you move forward with your transplant preparations and recovery it is important to appreciate that your diagnosis does not define you nor does the situation in which you now find yourself You are not a disease and you are not a statistic That piece of paper with your lab results isn t you the you that is comprised of your soul and your beliefs your feelings and memories of past experiences and your mighty spirit that has enabled you to come this far in spite of having a serious illness Each day try to do something that nurtures who you are inside watch a funny movie or listen to a book on audiotape that you connect with devise your own menu with food choices that suit you I found out early on that the kitchen could make me things other than turkey Tettrazini and Salisbury steak choose your visitors even though we are stuck in there it is our room and assert your needs when it comes to the management of your nausea physical discomfort and emotional stability Your medical team should make clear your options here which will probably involve some combination of IV anti nausea drugs narcotics and sedatives and you can decide what works best In the immediate aftermath

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_a_donor_for_what.htm (2015-03-27)
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  • Those Amazing Stem Cells - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    back it is like yesterday to me I feel it all again and there are tears in my eyes Yet somehow it becomes a rather simple decision to go for the transplant Please know that this is a real chance for a cure if not at least remission But did you know how incredibly amazing these stem cells are I kid you not These naïve baby stem cells enter your body and miraculously travel to your bone marrow where they begin to mature and grow and rebuild your immune system And they work They kill the cancer cells that your faulty immune system allowed to grow and your new donor graft immune system takes over restoring order to your body Are there side effects Yes and they are as individual as you are some minor some more debilitating Yet somehow they are all tolerable because know you are alive with a future ahead of you and the knowledge some of these complications will subside over time You can you will do this Stem cells have been utilized successfully in a huge variety of clinical applications besides cancer A man lost his eye in a chemical accident stem cells from his hip were used to bring back his eyesight Stem cell research is being conducted on people with diabetes heart conditions spinal cord injuries auto immune diseases and the list continues There are several different types of stem cell transplants each requiring a different set of pre conditioning regimens to get your cancer count down below 10 This gives the new stem cells a better chance to engraft in your bone marrow and go to work Some people also require radiation as part of their preparation for transplant How long you stay in the hospital varies by type of transplant and

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_those_amazing_stem_cells.htm (2015-03-27)
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  • Got a Joke? - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    usually found humor in the absurdities of life Hers was a dry wit My Dad s was the out loud guffaw kind So when I needed a stem cell transplant for leukemia I marshaled my defenses I asked my friends and family to supply jokes and funny stories I suspected there would be times during the process where I d have trouble finding something funny There were Transplants are scary must be something about not having any white cells Or being stuck in a small room for several weeks with only the staff to talk to when they pop in for blood pressure readings and blood samples and only the occasional visitor my transplant site was an hour from my home making it difficult for friends and family to come There is also chemo brain an actual phenomenon that makes baseball look fast paced So the jokes funny stories and funny cards I took at my pace I d re read the funniest jokes and laugh again There were as it turns out several benefits I discovered laughter eased my pain and anxiety about treatment I shared them Transplant floors aren t always the cheeriest of places As for my friends one told me sending jokes was something she could do for me It was then I realized standing on the sidelines wasn t easy either I m around one and a half years posttransplant Took a lickin and kept on tickin thanks Timex Every day I get stronger Every day I laugh Life somehow just seems better that way Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_got_a_joke.htm (2015-03-27)
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  • I Had Leukemia, Okay - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    coffee had cooled slightly a tight bitter taste Something Anything There would be a sudden flash in my brain telling me that the tingling sensation is exactly the way my legs felt after seven weeks in a hospital bed emaciated weak and thin They throbbed when I tried walking up the stairs at home That exact sensation would come crashing down on my head sitting in a comfortable chair on the back porch warm morning sun good coffee all of that but my legs are weak and tired and in so much pain And then I d be tasting the chemo again tasting it bad like it was during the first round Mystery fevers out of nowhere again And burning from the inside out with those damn toxicity burns on my hands and feet These had been real It s not fair to call them memories It s been five years since I d been in the hospital Five years since chemo and baldness but the colors would be so clear the smells the sounds that nasty metallic taste The constant hum of leukemia would transform into a brief shout Pay attention it says Do not forget me I can make your body remember even if your mind wants to forget Today is five years since a total stranger gave me a second chance Today he became the brother I never had Five years ago today leukemia became part of my past and not a part of my future Today I give thanks for five amazing years And thank God for 5 10 15 20 more Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_i_had_leukemia_okay.htm (2015-03-27)
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  • I Smile - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    chemotherapy 60 tiny pills a day What a deal it was easy Thinking only 8 more days of this and I ll go home Then the 24 hour IV drips began and I drooped Then one day I heard someone playing a piano I baby stepped with my IV pole toward the sound and discovered a lounge with a physician playing I also noticed an exercise bike buried behind IV poles that would eventually become my means to gaining my energy back My sister arrived to donate her stem cells bringing my brother for support It hadn t occurred to me that she was facing something scary too Providing the needed stem cells was not easy for my donor With three tries a four week break between each attempt she was on the machine about 30 hours Usually it takes 3 to 8 hours What a trooper I am so fortunate she did not give up As the months of waiting went by I was excited to finally reach transplant time to get on with my life Partially defrosted to slush the stem cells were ushered into the port There was no chance of sleeping so I mostly joked with the team while they seriously worked the process Writing this has been very therapeutic for me I began as a very quiet and submissive person now I m very open and talkative I kid my sister that her blood changed me into her twin It seems true to me though learning to ask for and accept help from loving friends opened me to a new view of the world I m thankful to be here to share with you and hopefully encourage someone in some way I m most thankful for the people God provided to save me my transplant

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_i_smile.htm (2015-03-27)
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  • The Gift of Life - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    can be collected directly from bone marrow or a patient s blood using a collection machine Blood stem cells have the ability to develop into all of the various crucial components of healthy blood red cells the carrier of oxygen white cells the infection fighters and platelets blood s natural coagulation agent These stem cells are delivered as a simple transfusion and find their way to the patient s bones where they replace the diseased marrow that has been destroyed by chemotherapy and or radiation These stem cells then set up shop and effectively replace the patient s former immune system In the process they kill any residual blood cancer found in the patient The patient will even take on the blood type of the donor All of this occurs under a blanket of drug mediated immunosuppression designed to prevent any rejection Because the patient has no immune system until the new one takes hold she is temporarily at risk for opportunistic infections Great care is taken to minimize introduction of infection by monitoring the patient during this period Once the new immune system matures the patient recovers and resumes life There can be residual effects associated with a bone marrow transplant Pam will always be more susceptible to infection She will have to avoid overexposure to the sun But the specter of leukemia will largely be removed While Pam s journey is still ongoing a major hurdle has been overcome In a year Pam will have the opportunity to communicate with her donor Until then we thank you from the bottom of our hearts for your donation You can take part in the gift of life by becoming a bone marrow donor By being in the registry you join a pool of over 11 million individuals worldwide that stand

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_the_gift_of_life.htm (2015-03-27)
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  • One Year Out - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    week It is 100 his So is my immune system his And so is the blood rushing through my heart and head his Now that I am medically A genuine chimera with some expected longevity I am allowed through confidential procedures To exchange addresses with my donor If we both agree to it Which we now have His name is Dean Martin And he lives in Las Vegas no kidding One Year Out from Transplant by Macklin Smith Shaman Drum Books 2002 Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself and You ll Come Through with Flying Colors Time is a Friend You Will Feel the Rain on Your Face Again Inspirational Guidelines Achieving Serenity Through My Own Hands Frequently Asked Questions A Lesson in Humility We All Need Hope Just a Closer Walk There Really Is a Light at the End of the Tunnel and Many Sparkles in Between For a friend lying in intensive care waiting for her white blood cells to rejuvenate after a bone

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_one_year_out.htm (2015-03-27)
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