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  • Just a Closer Walk - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    turned to me at some point during the visit looked directly at me and told me to put everything on Jesus Later that weekend the minister in church talked about putting your trust in Jesus This seemed to be added emphasis to the messages that I had heard earlier from my dad and uncle Burdett After the diagnosis was confirmed that I had multiple myeloma I was at the post office in our local community I was staring off in space thinking about what to do as a result of the diagnosis A woman whom I did not know came up to me and said that she thought I needed a hug I opened my arms and received her embrace When the hug was over she offered to pray with me right in the middle of the post office Well I received the prayer I really do not know what she said but I do know I felt better I know that I was moved by the woman and felt inspired by her actions When I started chemotherapy and radiation I often thought of the messages of my dad uncle and stranger at the post office I prayed to Jesus daily for comfort and strength I asked Jesus to show me the way Although three years later I think about those early days in a haze of memory I know that because of the spiritual message I was blessed I had the knowing that I would make it through I have continued to receive hope from family friends and acquaintances From my experience with cancer I have learned how connected we all are in this world The things we do each day make a difference not only for ourselves but for all who walk this earth Copyright 2008 Back to

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_just_a_closer_walk.htm (2015-03-27)
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  • There Really Is a Light at the End of the Tunnel... and Many Sparkles in Between - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    presented challenges for my family and me but I always hear my Grandma s voice when things seem overwhelming She told me that life will throw us challenges You see how you face those challenges makes all the difference You can either get scared and run or you can chunk the challenges into smaller bits and pieces and take them on one at a time Then when there are things you have no control over leave them to a higher power It s really about attitude faith and hope She knew from experience because life had not been easy for her Yet she always seemed happy and contented So I listen to my Grandma s voice I chunk the seemingly insurmountable hurdles that seem to be part of any serious illness into small pieces and sort out what I can do to help myself and what others can help me with I have faith I completely trust that nothing happens without a greater design My attitude is that of a fighter Bring it on I can deal with it and amazingly I can I have learned that nothing is impossible especially not living life to the fullest regardless of how I feel at any given time I ve been able to experience a myriad of happy and wondrous occasions even during times when my health seemed to be spiraling downward I call those times my sparkles Now here I am I am a survivor and I know for a fact that there is indeed light at the end of the tunnel I have gained so many wonderful insights during this journey insights that make me appreciate every new day and all the exciting things that are still waiting for me You see I m planning to live a long and

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_many_sparkles_in_between.htm (2015-03-27)
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  • For a friend lying in intensive care waiting for her white blood cells to rejuvenate after a bone marrow transplant - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    green swords bearing cups of light The forsythia comes back spraying its thin whips with blossom one loud yellow shout The robins They come back They pull the sun on the silver thread of their song The iris come back They dance in the soft air in silken gowns of midnight blue The lilacs come back They trail their perfume like a scarf of violet chiffon And the leaves come back on every tree and bush millions and millions of small green hands applauding your return From Poets On 1994 And The White Poems The Barnwood Press 2001 Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself and You ll Come Through with Flying Colors Time is a Friend You Will Feel the Rain on Your Face Again Inspirational Guidelines Achieving Serenity Through My Own Hands Frequently Asked Questions A Lesson in Humility We All Need Hope Just a Closer Walk There Really Is a Light at the End of the Tunnel and Many Sparkles in Between For a

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_for_a_friend.htm (2015-03-27)
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  • Wake-up Call - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    a wake up call we ve missed a major opportunity in our life The wakeup call need not mean dramatic life changes It may be a decision to spend more time with friends and family It may mean more time to play or as the cliché goes smell the roses It may mean a return to a lifelong love of painting It may mean reconnection to church or synagogue It may mean becoming pro active for a cause you always believed in It has to mean something As Arthur Frank writes recovery is worth only as much as what you learn about the life you are regaining Wake up Call from Cancer Etiquette by Rosanne Kalick Lion Books Publisher 2005 Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself and You ll Come Through with Flying Colors Time is a Friend You Will Feel the Rain on Your Face Again Inspirational Guidelines Achieving Serenity Through My Own Hands Frequently Asked Questions A Lesson in Humility We All Need Hope

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_wakeup_call.htm (2015-03-27)
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  • Little Flower - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    was convinced my life would never be good again I am glad I was wrong The years since our transplants have been good We have lived our lives to the fullest My sister has traveled extensively received her Master s Degree gotten married and just adopted her first child I have become a mother via adoption and gestational surrogacy to three wonderful children Our lives have turned out exactly how we had hoped Ten years ago my world changed forever Quickly my life went from possibilities to never Never again would I see the sun or touch the sand Mom wouldn t be uttered by a child holding my hand I would not live to see any hopes or dreams come true My carefree existence turned to dark shades of blue Non Hodgkin s lymphoma would end my life Just two years after I became a wife Chemo radiation and a bone marrow transplant My chance to fight to live no I can t I fought very hard and endured much pain The isolation and fears would drive me insane Endured many things but I m still here Different but with great reason to cheer Three wonderful children have come my way They fill my life with laughter and love each day I would never have believed ten years ago That cancer would create so many ways to grow Thank you Little Flower for showering me With so much opportunity I have not forgotten the special prayer Which lets me see roses everywhere It helped me through my darkest hours And continues to show sun through any showers Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_little_flower.htm (2015-03-27)
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  • What Cancer Has Given Me - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    taught me that getting old with all of its changes and infirmities looks a whole lot better if you think you re not going to get to do it 6 I have learned there are many many ways to provide support and comfort to another person and not all of them require words Now when I don t know what to say I understand that just being there is enough 5 Cancer pointed out to me that the vast majority of the activities I frantically try to fit into every day are really not very important after all 4 One of the hardest lessons cancer taught me was how to be a gracious receiver For me the secret to that was realizing that refusing to be a receiver deprives another person of the joy that giving brings 3 Through my cancer experience I learned that the best way to cope with fear or distress or anger or loneliness is to look around and find someone else to help 2 Because I had cancer I am not nearly as afraid of dying as I used to be When I went into congestive heart failure and my temperature shot up to 104 posttransplant it was terribly hard on the people who loved me but I simply don t remember the next three days Although I have no desire to go back to that place any time soon it is far less scary to me now 1 The most important thing cancer has given me is the certain knowledge that there is a God Before cancer I used to say I believe there is a God and if I find out at the end of my life it was all a bunch of hooey at least it makes life better for me now

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_what_cancer_has_given_me.htm (2015-03-27)
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  • Julie Ann in the Bone Marrow Unit, Zion, Illinois - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    below your hospital window lofting fish or birds that graze against my hands and fly off juggling cancer cells and carnations slipping in the bowling pin we snuck out of that alley in Maine Then I m juggling freight trains and angels and elephants dropping them all I don t care so long as you can stand near your high window and laugh So long as you stand near your hospital bed clapping your hands From Rybicki John Julia Ann in the Bone Marrow Unit Zion Illinois from We Bed Down to Water Evanston Northwestern University Press 2007 Back to Voices Main page Acknowledgements Never Look Back Traits of a Warrior A Donor for What Those Amazing Stem Cells Got a Joke I Had Leukemia Okay I Smile The Gift of Life One Year Out Believe in Yourself and You ll Come Through with Flying Colors Time is a Friend You Will Feel the Rain on Your Face Again Inspirational Guidelines Achieving Serenity Through My Own Hands Frequently Asked Questions A Lesson in Humility We All Need Hope Just a Closer Walk There Really Is a Light at the End of the Tunnel and Many Sparkles in Between For a

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_julie_ann.htm (2015-03-27)
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  • The 100th Day - Voices of Hope & Healing - Resources and Support - National Bone Marrow Transplant Link
    shorts a crisp white blouse and a wide brimmed straw hat She had a cute haircut peeking out from under the brim of her hat I supposed she was a post transplant patient well beyond her days of baldness and prednisone bloat She looked so normal I appreciated the normalcy and hoped I would eventually return to my vital self I wanted to know how long it would take for me to reach the stage that I supposed she must be at so I asked Excuse me but how many years since your transplant She smiled sincerely and said Today is my 100th day It was not the answer I had anticipated She looked so normal so vibrant and healthy Immediately I was filled with joy and hope I couldn t believe that she was only 100 days post transplant There was a transformation that took place in me that day I transitioned from looking at what I had lost during the transplant process my hair and my strength to looking at what was ahead wellness and hope of survival and vitality I have come a long way since that September afternoon in 1997 I passed my own 100th day and wore white shorts and a straw hat to my doctor s appointment on that day I have seen my daughter graduate high school graduate college and even complete her Master s Degree I even found new love at age 44 and married a wonderful man in 2009 Judy was the woman on that memorable day at my appointment She was such an inspiration and has become a dear friend We see each other at the annual BMT events and recognize the blessings we ve each received in our lives This year I celebrate my 13th BMT birthday but will

    Original URL path: http://www.nbmtlink.org/resources_support/voices/vhh_the_100th_day.htm (2015-03-27)
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