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  • Resources and Support - National Bone Marrow Transplant Link
    many prospective transplant recipients experience feelings similar to those described by former General Motors Corporation Vice Chairman Harry Pearce in the film I did what any tough minded strong willed executive might do Pearce says I fainted I fell dead to the floor You feel you are in a unique situation Jacobs says about the decision to create a film devoted to the bone marrow stem cell transplant experience There s so much to be gained from knowing what to expect While bone marrow stem cell transplant is still a medical procedure that involves a substantial risk the advances made since the first human transplant in 1968 have been no less than miraculous A bone marrow transplant in many diseases offers the only hope of cure for that disease explains transplant specialist Lyle L Sensenbrenner MD Still despite the remarkable strides in treatment the idea of a bone marrow transplant is understandably overwhelming It is a life changing experience one that all survivors refer to in one way or another as the start of a second life a new normal The New Normal looks at the bone marrow stem cell transplant procedure in three parts Part One examines the challenge six transplant recipients from all walks of life tell how they dealt with the news that a bone marrow transplant could be their only hope for life Part One also offers practical advice on how to choose the right transplant team how to deal with financial concerns and the reactions patients can expect from friends and family Part Two looks at the transplant process itself what patients can expect once they enter the hospital Part Three shows the recovery process and the joy experienced by patients and their families as they regain their new normal lives This 45 minute film

    Original URL path: http://www.nbmtlink.org/resources_support/video.htm (2015-03-27)
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  • Resources and Support - National Bone Marrow Transplant Link
    Work and Caring for Your Body Throughout the publication Stronach weaves in the experience of 61 other transplant survivors providing advice and information on what to expect the years following transplant Prices include tax and shipping 1 10 copies cost 14 copy Please call us for quantity discounts Quantity 1 2 3 4 5 6 7 8 9 10 Caregivers Guide for Bone Marrow Stem Cell Transplant Practical Perspectives A spotlight now shines on the significant role of the BMT caregiver This book offers practical suggestions for getting through the difficult days from people who have been there More importantly it lets you know that you are not alone that it is worth the struggle and that your role is critically important and appreciated Major funding for this book was provided by the National Marrow Donor Program Prices include tax and shipping 1 10 copies cost 12 copy Please call us for quantity discounts Quantity 1 2 3 4 5 6 7 8 9 10 Bone Marrow Stem Cell Transplant Frequently Asked Questions Helpful Information for Patients Caregivers and Families Preguntas Frecuentes sobre el Trasplante de Médula Ósea Células Madre Información útil para pacientes cuidadores y familias Bilingual English Spanish Bilingüe Inglés Español This booklet is intended for patients caregivers and families as they prepare for and enter the world of bone marrow stem cell transplant It was written as a helpful resource to give patients and families tools information encouragement and support during their transplant journey Este folleto está dirigido a los pacientes los cuidadores y las familias durante su preparación e ingreso en el mundo del trasplante de médula ósea células madre Se redactó como un recurso útil para ofrecer a los pacientes y sus familias herramientas información aliento y apoyo en su jornada hacia un trasplante The printed booklet contains both the English and Spanish versions of the booklet They do not come separately nor are they sold separately Prices include tax and shipping 1 10 copies 20 copy Costo 1 10 copias 20 copia Please call us for quantity discounts Quantity 1 2 3 4 5 6 7 8 9 10 Voices of Hope Healing for Bone Marrow Stem Cell Transplant Offering Inspiration Support Hope To Patients Survivors their Caregivers We hope that this collection of inspirational stories poems and practical advice from bone marrow stem cell transplant survivors caregivers and their families serves as a source of support and warming comfort Prices include tax and shipping 1 10 copies cost 12 copy Please call us for quantity discounts Quantity Video in new DVD Format The New Normal Life After Bone Marrow Stem Cell Transplant A remarkable 45 minute film for anyone whose life has been touched by bone marrow stem cell transplant The New Normal is an incredible story told through the voices of transplant survivors and their caregivers Although no film can fully prepare an individual for what they will face during a bone marrow stem cell transplant The New Normal provides information inspiration

    Original URL path: http://www.nbmtlink.org/resources_support/order.htm (2015-03-27)
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  • Resources and Support - National Bone Marrow Transplant Link
    information or to register please call Cindy Goldman at 800 LINK BMT 800 546 5268 or email cindygoldman nbmtlink org Sponsored by the National Bone Marrow Transplant Link with support from The Leukemia Lymphoma Society Amgen and the Meredith A Cowden Foundation Celebrate Your Second Birthday Contact the nbmtLINK at info nbmtlink to receive a specially designed card that recognizes you and your caregiver on your transplant anniversary Since survivorship issues both physical and emotional often continue for years after transplant this program focuses attention on the ongoing needs of BMT survivors and their caregivers creating a community that understands the importance of this second birthday If you or someone you love would like to be recognized please contact Cindy Goldman at 800 546 5268 or email cindygoldman nbmtlink org Reassurance Understanding and Support when you need them the most Peer Support on Call Program is a free service offered by the National Bone Marrow Transplant Link Emotional support is available through one on one conversations with trained peer support volunteers who are bone marrow stem cell transplant survivors caregivers and marrow donors Since they have been through the transplant experience themselves they understand the patient s and caregiver s feelings and can provide an empathetic point of view For patients and caregivers peer support is only a phone call away If you would like to request a phone call from a peer support volunteer please click here or call our office at 800 LINK BMT 800 546 5268 Be The Match Caregiver s Companion Program The road to through and beyond BMT can be challenging for both the patient and the caregiver Often times the needs of the caregiver may go unnoticed The Caregiver s Companion Program combines the confidential support of a Be The Match caregiver coach with

    Original URL path: http://www.nbmtlink.org/resources_support/support.htm (2015-03-27)
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  • News and Events - National Bone Marrow Transplant Link
    DC and featured Guest Speakers Dr Stephanie Lee Fred Hutchinson Cancer Research Center Dr Steven Pavletic National Cancer Institute Dr Ellen Frank a five year transplant survivor and Patti Lee the daughter of a transplant survivor If you were not able to attend the event you can watch listen to their presentations on our YouTube site www youtube com nbmtlink We would like to thank the following for their sponsorship

    Original URL path: http://www.nbmtlink.org/news_events/events.htm (2015-03-27)
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  • nbmtLINK Online Library Search Tips
    However if your search is not successful please feel free to email library nbmtlink org or call us directly at 800 546 5268 or 248 358 1886 Our goal is to help YOU find the information you need whatever it takes The National Bone Marrow Transplant Link s Online Library was created in 2005 as a result of a generous grant from the Jacob and Valeria Langeloth Foundation The Online

    Original URL path: http://www.nbmtlink.org/online_library/ask_librarian.htm (2015-03-27)
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  • nbmtLINK Online Library Search Tips
    2 How did you learn about the National Bone Marrow Transplant Link Website Please check all that apply Internet Search Engine Google Yahoo Mailing or Brochure Health Care Provider Family Member nbmtLINK publication nbmtLINK presentation or forum Other Please list 3 What was your main purpose for using the National Bone Marrow Transplant Link Online Library Please check all that apply General Information Educational Resource brochures Research Information article research summaries Information on support groups Browsing Other Please describe 4 Did you find the information that you were looking for Yes Partially No Please explain your response 5 What type of information did you find Please check all that apply General Information Educational Resource brochures Research Information article research summaries Information on support groups Other Please describe 6 How many useful resources did you find Indicate number 7 Please think about the amount of time it took to find the information you were looking for Did it take Longer than I expected The time I expected Less time than I expected Not Applicable 8 How easy was it to find the information that you needed on the site Very Easy Somewhat Easy Neither easy nor difficult Somewhat Difficult Very Difficult

    Original URL path: http://www.nbmtlink.org/online_library/user_survey.htm (2015-03-27)
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  • Bone Marrow/Stem Cell Transplant Frequently Asked Questions - Resources and Support - National Bone Marrow Transplant Link
    English Spanish Cost 1 10 copies 20 copy Please call us for quantity discounts Cost 11 copies 18 copy includes Shipping Handling Special Offer 50 or more copies 12 each includes Shipping Handling Click here to download a PDF version of this guide 4852K 74pg Click here to download a PDF Spanish only version of this guide 973K 31pg Click here to download a PDF English only version of this guide 4425K 31pg In order to view download and or print documents that are in Adobe PDF format you will need to have the free Adobe Acrobat Reader installed on your computer This booklet is dedicated to the growing population of bone marrow stem cell transplant patients survivors their caregivers and families The National Bone Marrow Transplant Link nbmtLINK hopes that this booklet will provide you with helpful information encouragement and hope We wish all of you a successful journey Founded in 1992 the nbmtLINK is an independent nonprofit organization funded entirely through the generosity of individuals corporations and foundations Tax deductible contributions are welcomed and enable us to create and sustain programs and services The mission of the National Bone Marrow Transplant Link is to help patients caregivers and families cope with the social and emotional challenges of bone marrow stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services The information in this booklet should not be a substitute for medical advice and the listed resources are not intended to be endorsements Please consult with your physician regarding your medical decisions and treatment Acknowledgements Introduction 1 What diseases are typically treated with bone marrow stem cell transplant 2 How can I decide if a transplant is right for me or my child 3 What is a bone marrow stem cell transplant 4 How

    Original URL path: http://www.nbmtlink.org/resources_support/faq/index.html (2015-03-27)
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  • Survivorship Guide for Bone Marrow/Stem Cell Transplant - Resources and Support - National Bone Marrow Transplant Link
    of 61 other transplant survivors providing advice and information on what to expect in the years following transplant The nbmtLINK values your opinions and would like to hear what you think about the Survivorship Guide When you are finished reading this publication please take our five minute online survey at http www zoomerang com Survey WEB22A3DRFVB6B Your feedback will be used to help evaluate the Survivorship Guide and aid us in the creation of future programs and resources for bone marrow stem cell transplant survivors Use the right hand menu to view an online version of this guide Click here to purchase a copy of this guide Cost 1 10 copies 14 copy Please call us for quantity discounts Cost 11 copies 12 copy includes S H Special Offer 50 or more copies 10 each includes S H Click here to download a PDF version of this guide 7334K 74pg In order to view download and or print documents that are in Adobe PDF format you will need to have the free Adobe Acrobat Reader installed on your computer Acknowledgements Prologue Introduction Defining Long term Survivorship Late Effects of the Transplant Quality of Life Post Transplant Adjusting to the New

    Original URL path: http://www.nbmtlink.org/resources_support/spg/index.htm (2015-03-27)
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