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  • Organic Acidemia Association | OAA
    patients and families through knowledge connections and support Subscribe to Organic Acidemia Association Email Visit this group Also complete our questionnaire to be added to our mailing list for our newsletter Click on Join Us tab The world s leading source for Organic Acidemia metabolic disorder support and information Welcome to the Organic Acidemia Association We are a volunteer non profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders We support early intervention through expanded newborn screening solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders What s New 2014 FOD OAA Conference OAA Families July 26 2014 Arlington VA Click this link Our ending ceremony video thanks for Raymonde mom to Marc Antony Cbl C for creating this video for our ending ceremony OAA Families attending family conference in Portland OR July 2012 Ending Ceremony Slide show OAA included in USAToday s Charity Spotlight June 2012 Organic Acidemias A guide for patients parents and families EIMD European Document Urea Cycle and Organic Acidurias For Younger People EIMD European Document Recent Articles Mechanism of metabolic stroke and spontaneous

    Original URL path: http://www.oaanews.org/ (2014-12-02)
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  • Board of Directors | OAA
    Contact Us OA Disorders Home Links Memorials Informational Websites Nutrition Links Education Resources Newborn Screening Your OAA Parent Volunteers Menta Pitre Director MMA Cbl C parent 201 East 14th Place Larose LA 70373 Email menta oaanews org Phone 985 856 5631 Central Time Kathy Stagni Executive Director Propionic Acidemia parent 13210 35th Avenue North Plymouth MN 55441 Email kstagni oaanews org Phone 763 559 1797 Central Time Cay Welch Director

    Original URL path: http://www.oaanews.org/board.htm (2014-12-02)
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  • Medical Advisors | OAA
    Genetics Laboratory Department of Laboratory Medicine Mayo Clinic 200 First Street SW Rochester MN 55905 Stephen Cederbaum MD Mental Retardation Research Ctr NPI 635 Charles E Young Dr South Rm 347 Los Angeles CA 90095 7332 Mendel Tuchman MD Vice Chairman for Research Scientific Director Children s Research Inst Professor of Pediatrics Biochemistry Molecular Biology Children s National Medical Center 111 Michigan Avenue NW Washington DC 20010 2970 Kimberly A Chapman MD PhD FACMG Assistant Professor of Pediatrics Section of Genetics and Metabolism Children s National Medical Center 111 Michigan Avenue N W Washington D C 20010 Keiko Ueda MPH RD LDN Clinical Dietitian Specialist Biochemical Diseases Metabolism Program British Columbia Children s Hospital 4480 Oak Street K3 211 Vancouver BC V6H 3V4 CANADA Carla Cuthbert PhD FACMG FCCMG Chief Newborn Screening and Molecular Biology Branch And the Newborn Screening Quality Assurance Program Division of Laboratory Sciences NCEH Centers for Disease Control and Prevention 4770 Buford Highway MS F43 Atlanta GA 30341 Charles P Venditti MD PhD Genetic Disease Research Branch National Human Genome Research Institute National Institutes of Health Bldg 49 Room 4A56A Bethesda MD 20892 4472 Elaina Jurecki MS RD Biomarin Medical Information Services 105 Digital Drive Novato

    Original URL path: http://www.oaanews.org/advisors.htm (2014-12-02)
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  • Organic Acidemia Association | OAA
    Insurance Information OAA Google Group OAA Inspire Forum Page Translator Events Join Us Support Us OAA Research Support Our Organizations Fundraising Contact Us OA Disorders Home Links Memorials Informational Websites Nutrition Links Education Resources Newborn Screening Downloading The Organic Acidema

    Original URL path: http://www.oaanews.org/brochure.htm (2014-12-02)
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  • OAA Newsletter | OAA
    Organic Acidemia Association Newsletter which includes updates editorials and articles from and for affected families three times a year for a suggested donation of 25 in the US or 35 outside of US members with 5 for a copy of the roster When you join OAA you join a mailing list of over 1 000 families and professionals who receive this informative publication Obviously you can read past issues of

    Original URL path: http://www.oaanews.org/newsletter.htm (2014-12-02)
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  • Parent Connection | OAA
    Translator Events Join Us Support Us OAA Research Support Our Organizations Fundraising Contact Us OA Disorders Home Links Memorials Informational Websites Nutrition Links Education Resources Newborn Screening Welcome to Holland By Emily Perl Kingsley I am often asked to describe the experience of raising a child with a disability Parent Connection The Organic Acidemia promotes connecting with other parents with the same or similar disorders After you complete our questionnaire

    Original URL path: http://www.oaanews.org/connection.htm (2014-12-02)
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  • Nutrition & Recipes | OAA
    Emily Evans MS Frances Stern Nutrition Center Dietetic Intern Tufts University Friedman Graduate School of Nutrition Boston MA State Laws on Formula Coverage What s the Law for Formula Coverage in Your State Low Protein Food Products Metabolic Formula Suppliers Low in Protein BIG in Taste Nutricia North America Introduces Milupa Line of Low Protein Foods http www myspecialdiet com Nutricia North America is excited to announce the availability of

    Original URL path: http://www.oaanews.org/nutrition.htm (2014-12-02)
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  • Organic Acidemia Association | OAA
    Genetic Services and Clinics GeneTests Listing of Metabolic Clinics Metabolic Testing Facilities Baylor Institute of Metabolic Disease Dallas TX Phone 800 4 BAYLOR for Supplemental NBS testing Phone 214 820 4533 for diagnostic testing Fax 214 820 4853 Raphael Schiffmann MD Medical Director Email raphael schiffmann baylorhealth edu Larry Sweetman PhD Mass Spec Lab Director Email larrys baylorhealth edu Xiaowei Fu MD PhD Assistant Lab Director Email xiaoweif baylorhealth edu

    Original URL path: http://www.oaanews.org/clinics.htm (2014-12-02)
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