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  • BendyLue's Blog - Ostomyland Community
    Most Viewed feeling lost By BendyLue 9 Mar 2014 im suddenly faced with a surgery that will change my life Its happening 4 11 14 Laproscopic Abnominal Colectomy w ileorectal anastomosis I have a congenital birthdefect that caused my colon to grow in a loopy twisted path that has twisted and been bound by scar tissue another surgery to remove kidney cancer in 2010 caused much more scar tissue and now its to the point of blockages that could kill me Needless to say I scared to death I dont know much except what iv read on here about ostomy and care Im going back a forth with excitement and fear I have an out of town specialist who will be doing the procedure and iv met him 1 time ill meet him again the day before the surgery His nurse is going to talk to me then the day before i go in I feel very unprepared and the more i learn the more i realize i need to find out what this is going to do to my life Everyone tells me I will feel so much better and its a lifesaving thing i cant refuse I understand

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/blog/164-bendylues-blog/ (2016-04-25)
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  • BendyLue - Ostomyland Community
    2014 2 comments 1 BendyLue started following BendyLue s Blog 9 Mar 2014 BendyLue started following feeling lost 9 Mar 2014 feeling lost BendyLue posted a blog entry in BendyLue s Blog im suddenly faced with a surgery that will change my life Its happening 4 11 14 Laproscopic Abnominal Colectomy w ileorectal anastomosis I have a congenital birthdefect that caused my colon to grow in a loopy twisted path that has twisted and been bound by scar tissue another surgery to remove kidney cancer in 2010 caused much more scar tissue and now its to the point of blockages that could kill me Needless to say I scared to death I dont know much except what iv read on here about ostomy and care Im going back a forth with excitement and fear I have an out of town specialist who will be doing the procedure and iv met him 1 time ill meet him again the day before the surgery His nurse is going to talk to me then the day before i go in I feel very unprepared and the more i learn the more i realize i need to find out what this is going to do to my life Everyone tells me I will feel so much better and its a lifesaving thing i cant refuse I understand that And the pain is very hard to handle somedays I want it to stop now i am faced with this colostomy I have to get ahold of my local doctor and see if a stoma nurse can speak with me here in BEND OREGON soon Till then i would love to hear some others who have gone through this BendyLue 9 Mar 2014 1 comment BendyLue started following O land Anniversary 9 Mar 2014 BendyLue liked

    Original URL path: http://www.ostomyland.org/ostomyboardipb/profile/5473-bendylue/ (2016-04-25)
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  • feeling lost - blogs_blog_164 - Ostomyland Community
    9 Mar 2014 91 views im suddenly faced with a surgery that will change my life Its happening 4 11 14 Laproscopic Abnominal Colectomy w ileorectal anastomosis I have a congenital birthdefect that caused my colon to grow in a loopy twisted path that has twisted and been bound by scar tissue another surgery to remove kidney cancer in 2010 caused much more scar tissue and now its to the point of blockages that could kill me Needless to say I scared to death I dont know much except what iv read on here about ostomy and care Im going back a forth with excitement and fear I have an out of town specialist who will be doing the procedure and iv met him 1 time ill meet him again the day before the surgery His nurse is going to talk to me then the day before i go in I feel very unprepared and the more i learn the more i realize i need to find out what this is going to do to my life Everyone tells me I will feel so much better and its a lifesaving thing i cant refuse I understand that And the pain is very hard to handle somedays I want it to stop now i am faced with this colostomy I have to get ahold of my local doctor and see if a stoma nurse can speak with me here in BEND OREGON soon Till then i would love to hear some others who have gone through this BendyLue Sign in to follow this Followers 1 1 Comment Alice 164 Posted 1 May 2014 Hi BendyLue It is almost May 1st and I am hoping you are doing well Looking forward to hearing how you are doing now that your surgery has

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/entry/501-feeling-lost/ (2016-04-25)
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  • Kay's Blog - Ostomyland Community
    Hi Soozi I m Kay My stoma nurse gave me a powder I use under my flange I apply a small amount of the powder Brava Powder by Coloplast to the irritated skin then I pat on a No Sting Skin Prep by Smith Nephew and let it dry Looks like a glazed donut it s called crusting Just go easy on the powder and skin prep a little goes a long way and make sure it is completely dry Then I apply my flange like normal Most of the time it clears up the rash by my next bag change However I only change my bag every third day unless accidents occur which is rare Please ask you nurse about this before trying it Source Advice Please for Rash stoma arrived on 23 February Read more 0 comments 74 views From What is the best diet for an Ostomist By Kay 22 Mar 2013 I think once you have a stoma you become very aware of what you put into your body because when it comes out you can know about it I d been eating whatever I wanted and had a well behaved stoma However since my surgery my out put has been irregular and I had alot of stringy material coming out I had to pull it out of the stoma and help it along not sure if this is the right thing I think it was beansprouts I m worried I have a blockage as today I ve had runny output very watery but I only ate porriage and one slice of toast yesterday as I d been up to the hospital I don t have anyother symptoms like pain and as I ve never had a blockage I don t know how it would feel Anyway my main question is what is the idea diet to keep everything in balance and good working order What are the best foods and what is important to avoid Reno I can only pass on to you the information I was given in the hospital I m still relatively new at this I acquired my stoma last May I was told to avoid things like nuts and seeds unless ground up into a butter Peanut butter is good but not the chunky kind No corn popcorn pineapple or okra too hard to digest Tender well cooked meats are good avoid too much fat and grease Garlic or asparagus may cause odorus output I m concerned from what you just wrote that you may not be eating enough Porriage and one slice of toast is not even a balanced meal and certianly not enough on a daily basis to keep a person healthy I do hope you are eating more than that Source What is the best diet for an Ostomist Read more 0 comments 81 views Putt putt By Kay 22 Mar 2013 Last May I went on vacation little did I know it would be the most life

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/blog/144-kays-blog/ (2016-04-25)
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  • Kay - Ostomyland Community
    granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips 4 Mar 2014 0 Kay Hello this is Beth Kay s granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips 4 Mar 2014 0 Kay Hello this is Beth Kay s granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips 4 Mar 2014 0 Kay Hello this is Beth Kay s granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips 4 Mar 2014 0 loisw OMG That s awful news What happened I saw her a few months ago and she was doing so well I feel terrible My sympathy to her family 4 Mar 2014 0 Kay started following To Kay s friends 4 Mar 2014 To Kay s friends Kay posted a blog entry in Kay s Blog Hello this is Beth Kay s granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips 3 Mar 2014 5 comments 1 Kay started following Alice 11 Dec 2013 Alice started following Kay 11 Dec 2013 Please keep Av Nz in your thoughts and prayers Kay replied to Trekkie Monster s topic in Ostomyland s Community Website Announcements Welcome home Av my thoughts and prayers are with you I hope you ll be feeling 100 soon 19 Oct 2013 17 replies Spooktacular XI Coming to an Ostomyland Near You SOON Kay replied to Trekkie Monster s topic in Ostomyland s Community Website Announcements I can do without snakes and spiders A few skeletons and monsters are OK I know their not real 14 Oct 2013 5 replies The Next O land Meet is being discussed on the FB group Kay replied to Trekkie Monster s topic in Ostomyland s Community Website Announcements

    Original URL path: http://www.ostomyland.org/ostomyboardipb/profile/4900-kay/ (2016-04-25)
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  • To Kay's friends - blogs_blog_144 - Ostomyland Community
    1 Entry posted by Kay 3 Mar 2014 154 views Hello this is Beth Kay s granddaughter I am sorry to write that Kay has passed this morning in her sleep Thank you for all of your help and friendship you had with Kay She talked about this site often We know that it has helped her through some tough times and good troubleshooting along with hints and tips Nancy likes this Sign in to follow this Followers 1 Previous entry From Advice Please for Rash stoma arrived on 23 February 5 Comments Alice 164 Posted 4 Mar 2014 I will truly miss her We were trying to get a meet up started with all the folks here on the east coast Now I can meet her in her new perfect body when we see each other in heaven I will keep all of her family in prayer as then come to terms with the loss of such a lovely lady Nancy likes this Share this comment Link to comment Share on other sites paulinenz 346 Posted 4 Mar 2014 I am sorry to hear of kays passing Share this comment Link to comment Share on other sites av nz 200 Posted 5 Mar 2014 Sorry to hear about Kay my she rest in peace and my thoughts go out to her family at this sad time for them Share this comment Link to comment Share on other sites Nicola from NZ 265 Posted 6 Mar 2014 Oh what a shock I m so sorry to hear of this lovely ladies passing Until we meet again Kay x Share this comment Link to comment Share on other sites Nancy 128 Posted 8 Mar 2014 I am so sorry to read this Very sad I don t think I knew Kay

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/entry/495-to-kays-friends/ (2016-04-25)
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  • From: Advice Please for Rash (stoma arrived on 23 February) - blogs_blog_144 - Ostomyland Community
    from stoma is the upset rash it is painful beyond words Size wise for rash he is about 2 cm s by 1 cm not perfect circle with a few tiny others and is slightly raised and angry I also have a few very small red bits which are probably normal for just having a stoma installed I only use barrier cream the kind in all chat rooms they recommend every 3 days on the advice of the stoma nurse on the phone and water when cleaning I change the bag once a day although with the intense pain yesterday 3 times thinking the new bag might help To relieve the pain I put an icepack just underneath the bag and it works The pain is ok at night on my back after about 10 minutes Standing up and walking round is very painful right now I have my icepack on and although the pain maybe there I can t feel it which is great My question is can I not put a rash cream on the rash area only Surely the bag will still stick around the rash bit and it should be fine If I am allowed then what type of cream is best a nappy cream Any help welcome and I will also call the stoma nurse today Thank you Hi Soozi I m Kay My stoma nurse gave me a powder I use under my flange I apply a small amount of the powder Brava Powder by Coloplast to the irritated skin then I pat on a No Sting Skin Prep by Smith Nephew and let it dry Looks like a glazed donut it s called crusting Just go easy on the powder and skin prep a little goes a long way and make sure it

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/entry/405-from-advice-please-for-rash-stoma-arrived-on-23-february/ (2016-04-25)
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  • From: What is the best diet for an Ostomist? - blogs_blog_144 - Ostomyland Community
    become very aware of what you put into your body because when it comes out you can know about it I d been eating whatever I wanted and had a well behaved stoma However since my surgery my out put has been irregular and I had alot of stringy material coming out I had to pull it out of the stoma and help it along not sure if this is the right thing I think it was beansprouts I m worried I have a blockage as today I ve had runny output very watery but I only ate porriage and one slice of toast yesterday as I d been up to the hospital I don t have anyother symptoms like pain and as I ve never had a blockage I don t know how it would feel Anyway my main question is what is the idea diet to keep everything in balance and good working order What are the best foods and what is important to avoid Reno I can only pass on to you the information I was given in the hospital I m still relatively new at this I acquired my stoma last May I was told to avoid things like nuts and seeds unless ground up into a butter Peanut butter is good but not the chunky kind No corn popcorn pineapple or okra too hard to digest Tender well cooked meats are good avoid too much fat and grease Garlic or asparagus may cause odorus output I m concerned from what you just wrote that you may not be eating enough Porriage and one slice of toast is not even a balanced meal and certianly not enough on a daily basis to keep a person healthy I do hope you are eating more than that Source

    Original URL path: http://www.ostomyland.org/ostomyboardipb/blogs/entry/403-from-what-is-the-best-diet-for-an-ostomist/ (2016-04-25)
    Open archived version from archive