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  • Blog - Picker Institute Europe
    Labour Party Conference learning disabilities Long term Conditions maternity Maternity Survey Mental Health National Survey Programme NHS NHS England parents Partnerships patient experience Patient Experience Network Awards Patient feedback Patient Opinion PEN Person centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 1 of 1 Next 24 October Amy Tallett View Author Biog Close Amy Tallett Associate Director Health Experiences Amy joined Picker Institute Europe in 2009 following completion of her PhD at the University of Leeds where she gained in depth experience of quantitative research and data analysis techniques As an Associate Director in the Health Experiences team Amy specialises in obtaining patient experience feedback from lesser heard and vulnerable groups She has developed a number of innovative feedback tools for children young people and their parents including transition from paediatric to adult care acute paediatric hospital services and specific conditions for example sickle cell disorder Close See all by Author ISQua Conference 2014 our highlights from Brazil Tags ISQua 18 June Amy Tallett View Author Biog Close Amy Tallett Associate Director Health Experiences Amy joined Picker Institute Europe in 2009 following completion of her PhD at the University of Leeds where she gained in

    Original URL path: http://www.pickereurope.org/blog/?author=Amy%20Tallett (2016-02-12)
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  • Blog - Picker Institute Europe
    and Young People Circles of Support collaboration Commissioning communication Community Mental Health Survey Cultural Change Dementia Election 2015 End of life care families Friends and Family Test Health and Social Care health and social care policy Healthcare Healthtalk org Healthwatch Oxfordshire Individual Clinician Feedback informed consent Inpatients Survey Internet Involvement ISQua Jeremy Corbyn Labour Labour Party Conference learning disabilities Long term Conditions maternity Maternity Survey Mental Health National Survey Programme NHS NHS England parents Partnerships patient experience Patient Experience Network Awards Patient feedback Patient Opinion PEN Person centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 1 of 1 Next 21 May Vincent Coole View Author Biog Close Vincent Coole Senior Project Manager Vincent joined the Picker Institute in March 2013 and works as a Senior Project Manager Vincent is currently responsible for managing the National Inpatient Survey and Picker Day Case survey which includes presenting clients results at regional and trust levels He also designed the Picker Institute s Freetext Coding framework and report format for sentiment analysis Prior to joining the Picker Institute Vincent spent three years as a Surveys Assistant at Patient Perspective He has an MA in English and Medical Humanities Kings

    Original URL path: http://www.pickereurope.org/blog/?author=Vincent%20Coole (2016-02-12)
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  • Blog - Picker Institute Europe
    of Support collaboration Commissioning communication Community Mental Health Survey Cultural Change Dementia Election 2015 End of life care families Friends and Family Test Health and Social Care health and social care policy Healthcare Healthtalk org Healthwatch Oxfordshire Individual Clinician Feedback informed consent Inpatients Survey Internet Involvement ISQua Jeremy Corbyn Labour Labour Party Conference learning disabilities Long term Conditions maternity Maternity Survey Mental Health National Survey Programme NHS NHS England parents Partnerships patient experience Patient Experience Network Awards Patient feedback Patient Opinion PEN Person centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 1 of 1 Next 16 May Amanda Attwood View Author Biog Close Amanda Attwood Senior Project Manager Amanda joined the Health Experiences team in 2009 and has over 18 years experience of managing market healthcare and social research projects Amanda specialises in obtaining patient experience feedback from community delivered and specialist services including the young the elderly and those receiving end of life care These also include people living with specialist or long term diseases such as MND and dementia Amanda joined Picker Institute Europe from SPA Future Thinking She has expertise in undertaking all aspects of quantitative and qualitative survey processes Amanda has

    Original URL path: http://www.pickereurope.org/blog/?author=Amanda%20Attwood (2016-02-12)
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  • Blog - Picker Institute Europe
    Survey Mental Health National Survey Programme NHS NHS England parents Partnerships patient experience Patient Experience Network Awards Patient feedback Patient Opinion PEN Person centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 1 of 1 Next 12 May Sir Donald Irvine CBE MD FRCGP FRCP FMedSci View Author Biog Close Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Patron Sir Donald is Patron of Picker Institute Europe He was chairman of the Board of trustees from 2001 2013 and a trustee of Picker Institute Inc in Boston Massachusetts He has been a longstanding advocate of patient centred health care He is Honorary Professor School of Health in the University of Durham a Vice President of the Patients Association and President of Age UK Northumbria Sir Donald was President of the General Medical Council from 1995 to 2001 Modernising professional regulation and promoting ideas about patient centred professionalism in medicine were the central themes of his Presidency He was responsible for the initial development of Good Medical Practice the code of practice that is basis for medical practice medical education and medical licensure in the UK and several Commonwealth countries today and for initiating the development of

    Original URL path: http://www.pickereurope.org/blog/?author=Sir%20Donald%20Irvine%20CBE%20MD%20FRCGP%20FRCP%20FMedSci (2016-02-12)
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  • Blog - Picker Institute Europe
    centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 2 of 19 Next 4 January Veena Raleigh Senior Fellow at The King s Fund See all by Author Trusts need to make more effective and informed use of their data Veena Raleigh The King s Fund discusses organisational goals and the new report on trends in the inpatient survey Tags Inpatients Survey NHS patient experience the King s Fund 21 December Giuseppe Paparella View Author Biog Close Giuseppe Paparella Policy Officer Giuseppe works as the Picker Institute s Policy Officer having originally joined the organisation on the Graduate Trainee Programme Close See all by Author It s been a busy year for health and social care policy 2015 in review Tags health and social care policy Healthcare NHS patient experience Person centred care politics 17 December Dr Andrew McCulloch View Author Biog Close Dr Andrew McCulloch Chief Executive Officer Andrew has been CEO of the Picker Institute Europe since 2013 Previously Andrew was CEO of the Mental Health Foundation Director of Policy at the Sainsbury Centre for Mental Health and an Assistant Secretary at the Department of Health He has a PhD in Psychology from Southampton

    Original URL path: http://www.pickereurope.org/blog/page/2/ (2016-02-12)
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  • Self management is a planned collaborative step 
    evidence to suggest that supporting people to self manage can improve their motivation to look after their own health and positively impact how they engage with services This approach can be seen as one of two things a suite of techniques and tools used to support patients to choose healthy behaviours and as a fundamental transformation of the patient care giver relationship into a collaborative partnership de Silva 2011 Understanding the need and value of working in partnership with patients is key Self management must not be used as an unmonitored alternative to clinical treatment To be effective it must be used in collaboration with services sitting as part of a long term ladder of care no step more important than the other but all necessary to achieve the top step goal of better long term health and a quality experience Whether administered by the patient themselves or the care provider treatment must be planned and reviewed at all stages as both parties work together to set goals that will lead to better health Supporting people with bi polar disorder for example to recognise the signs of mental deterioration and to understand how they can contain or manage symptoms independently will prevent breakdown and support people to rely less on services and more on themselves leading to better long term engagement with clinical services in general Patient dignity and independence This is particularly pertinent for the chronic condition community of which there are over 15 million members in England alone As the most frequent users of health care services accounting for approximately half of all GP appointments and almost 70 per cent of all inpatient admissions King s Fund supporting these people to manage their own conditions not only provides much needed relief for over burdened A E services reducing repeat hospital admissions in the process but essentially puts the service user in the driving seat of their own care People with long term conditions understand their illness better than anybody therefore with support information and resources could self manage Diabetes and Sickle Cell Disorder are good examples of conditions where a consistent level of self management and autonomy are essential for people to maintain their quality of life and have some independence Supporting people to go from an anxious helpless my condition controls me my life mentality to feeling they at least have a level of control I control my condition Staff have a key role to play Significant work has been done around supporting service users to understand the value of managing their own care but less so to educate clinicians about their role in the process Improving the way patients engage with self management is as reliant on changing healthcare staff attitudes and providing them with the skills to better support people to self manage as it is on the development of more patient centred interventions Existing fears around clinical outcomes compliance and more irrational concerns over losing control of their patients have led some in the

    Original URL path: http://www.pickereurope.org/news/blog/self-management-is-a-planned-collaborative-step-on-the-ladder-of-care-not-an-alternative-treatment-option/ (2016-02-12)
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  • Blog - Picker Institute Europe
    of Support collaboration Commissioning communication Community Mental Health Survey Cultural Change Dementia Election 2015 End of life care families Friends and Family Test Health and Social Care health and social care policy Healthcare Healthtalk org Healthwatch Oxfordshire Individual Clinician Feedback informed consent Inpatients Survey Internet Involvement ISQua Jeremy Corbyn Labour Labour Party Conference learning disabilities Long term Conditions maternity Maternity Survey Mental Health National Survey Programme NHS NHS England parents Partnerships patient experience Patient Experience Network Awards Patient feedback Patient Opinion PEN Person centred care Policy politics principles of patient centred care Quality Royal College Midwives Ruth Evans Safety self management service user feedback Shared Decision Making Sickle Cell Disorder Social Media Staff the King s Fund Transition Transparency Trends Waiting Times February 2016 January 2016 December 2015 November 2015 October 2015 September 2015 August 2015 July 2015 June 2015 May 2015 April 2015 March 2015 February 2015 January 2015 December 2014 November 2014 October 2014 September 2014 August 2014 July 2014 June 2014 May 2014 Dr Andrew McCulloch Giuseppe Paparella Steve Sizmur Bridget Hopwood Steve Bough Chris Graham Phil Stylianides Amy Tallett Vincent Coole Amanda Attwood Sir Donald Irvine CBE MD FRCGP FRCP FMedSci Previous 1 of 1 Next

    Original URL path: http://www.pickereurope.org/blog/?author_guest=Ruth%20Evans,%20Patient%20Experience%20Network%20%28PEN%29 (2016-02-12)
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  • Ruth Evans, PEN shares her 10 steps to delivering high quality maternity care to parents with learning disabilities - Picker Institute Europe
    only lack confidence in themselves but also in the system They can feel they are constantly being judged and the fear of having their child taken away is never far from their mind I was nervous and scared I was worried that my child would be taken away It feels like a crime to have a baby people who drink and take drugs have babies why shouldn t a person with a learning disability have a child I m always fearful that they will take my baby away Many are afraid to raise things or to ask for help for fear that they will be judged and have their child ren taken away from them While it is important to stay pragmatic and understand that there are often legitimate reasons why people have their children taken away at the same time there really isn t enough support for parents with learning disabilities Particularly support for those parents that want to keep their children and to learn how to do so in the right way In healthcare we often talk about people with learning disabilities having a different set of needs but actually they don t Service users of all demographics want the same thing providing high quality maternity care and positive experiences for people with learning disabilities doesn t need a separate approach to one taken for any other service user maternity or otherwise it just needs time and consideration Something that in such busy cash strapped times it is hard to prioritise but no less essential Aside from loving the experience of working with Catherine Carter and CHANGE and the challenge of working on this very fulfilling project I learnt a great deal and I want to share with you some important steps in delivering high quality maternity care

    Original URL path: http://www.pickereurope.org/news/blog/3205/ (2016-02-12)
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