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  • A Military Mom of Four and Former Homeschooler Shares Her PBD Experience | Global Foundation For Peroxisomal Disorders
    is always a challenge It is hard to find activities that we can all enjoy together or to always find a sitter for Archer Often times we split up For example my husband might take the three older kiddos to a movie and I ll stay home with Archer And what are some of the joys Archer is of course a blessing He makes us laugh and smile daily and we delight in his every accomplishment He reminds me that every day is a tremendous gift And I believe my older children have developed a great compassion from having a sibling with special needs Are you able to find time for yourself Or is that impossible at this stage This was our first year that we did not homeschool and it was a necessary break for me I was overwhelmed trying to homeschool with Archer home full time I have really enjoyed the break from being so busy although I feel we will return to homeschooling at some point Making time for myself makes me a much better mom and wife What has Archer s preschool experience been like It has been an amazing learning experience for him Archer is very social and he has thrived in his preschool His class integrates typical and special needs children and they do all classroom activities together Archer also receives therapy at his preschool and his therapists work closely with his caregivers to make sure his needs are met throughout the day Have you noticed changes in Archer s development He recently began walking at almost four years old His balance is still unstable and he cannot stand up unassisted but walking has been the most exciting accomplishment for him He wants to walk so badly Archer is also able to copy most

    Original URL path: http://www.thegfpd.org/a-military-mom-of-four-and-former-homeschooler-shares-her-pbd-experience (2015-03-27)
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  • Recent advancements in PBD research | Global Foundation For Peroxisomal Disorders
    Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps Recent advancements in PBD research Exciting news about recent advancements in the study of peroxisomal disorders at the University of Alberta We are lucky to have Dr Richard Rachubinski on our Medical Advisory

    Original URL path: http://www.thegfpd.org/recent-advancements-in-pbd-research (2015-03-27)
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  • GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge | Global Foundation For Peroxisomal Disorders
    Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge GFPD President Shannon Butalla recently shared some thoughts on the Ice Bucket Challenge benefiting ALS research and on the work of generating

    Original URL path: http://www.thegfpd.org/gfpd-president-on-rare-disease-fundraising-and-the-ice-bucket-challenge (2015-03-27)
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  • Support GFPD with AmazonSmile | Global Foundation For Peroxisomal Disorders
    Pavement for Peter 2015 High School Robotics Team Creates Car for GFPD Kid GFPD Make a Wish Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps Support GFPD with AmazonSmile Now when you shop at AmazonSmile Amazon with donate to Global Foundation

    Original URL path: http://www.thegfpd.org/support-gfpd-with-amazonsmile (2015-03-27)
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  • GFPD Summer 2014 e-Newsletter | Global Foundation For Peroxisomal Disorders
    Team Creates Car for GFPD Kid GFPD Make a Wish Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps GFPD Summer 2014 e Newsletter Read the GFPD 2014 Summer e Newsletter for GFPD news our Family Spotlight story about the Menard family

    Original URL path: http://www.thegfpd.org/gfpd-summer-2014-e-newsletter-3 (2015-03-27)
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  • Winter 2013 President’s Letter | Global Foundation For Peroxisomal Disorders
    support our cause Every little bit helps Winter 2013 President s Letter Dear Friends Holiday greetings from The Global Foundation for Peroxisomal Disorders We have many reasons to celebrate this year with advancements and discoveries that could help children with Peroxisome Biogenesis Disorder Zellweger Spectrum Disorder PBD ZSD in the near future The GFPD marked its three year anniversary in October and we re ecstatic about the impact we ve

    Original URL path: http://www.thegfpd.org/winter-2013-presidents-letter (2015-03-27)
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  • GFPD Fall 2013 e-Newsletter | Global Foundation For Peroxisomal Disorders
    Team Creates Car for GFPD Kid GFPD Make a Wish Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps GFPD Fall 2013 e Newsletter Read the GFPD 2013 Fall e Newsletter for updates on GFPD news our Family Spotlight story about the

    Original URL path: http://www.thegfpd.org/gfpd-fall-2013-e-newsletter (2015-03-27)
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  • GFPD Winter 2013 Newsletter | Global Foundation For Peroxisomal Disorders
    Peter 2015 High School Robotics Team Creates Car for GFPD Kid GFPD Make a Wish Kid Donates Wish Categories Fundraising Events GFPD Families in the News GFPD Family Spotlight GFPD News GFPD Newsletters Rare Disease Community News Research Updates Uncategorized Make a donation to help support our cause Every little bit helps GFPD Winter 2013 Newsletter Check out the GFPD 2013 Winter Newsletter for research updates information about past and

    Original URL path: http://www.thegfpd.org/gfpd-winter-2013-newsletter (2015-03-27)
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