archive-org.com » ORG » T » THEGFPD.ORG

Total: 130

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • Links | Global Foundation For Peroxisomal Disorders
    High prevalence of primary adrenal insufficiency in Zellweger spectrum disorders Mast A Drosophila Model for the Zellweger Spectrum of Peroxisome Biogenesis Disorders Poll The Peroxisome Biogenesis Disorders with Prolonged Survival Raas Rothschild PEX 6 Defective PBD infant vs Ushers Shimozawa Molecular and Clinical Findings and Diagnostic Flowchart of Peroxisomal Disorders Steinberg Peroxisome Biogenesis Disorders Zellweger Syndrome Spectrum Tran Infantile Refsum Disease with Enamel Defects Zhang Recovery of PEX1 Gly843Asp Peroxisome

    Original URL path: http://www.thegfpd.org/for-families/links (2015-03-27)
    Open archived version from archive


  • Registry | Global Foundation For Peroxisomal Disorders
    Guardian Names Email s for parents guardians Address Street Address Address Line 2 City State Province Region ZIP Postal Code Afghanistan Albania Algeria American Samoa Andorra Angola Antigua and Barbuda Argentina Armenia Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia Bosnia and Herzegovina Botswana Brazil Brunei Bulgaria Burkina Faso Burundi Cambodia Cameroon Canada Cape Verde Cayman Islands Central African Republic Chad Chile China Colombia Comoros Congo Democratic Republic of the Congo Republic of the Costa Rica Côte d Ivoire Croatia Cuba Cyprus Czech Republic Denmark Djibouti Dominica Dominican Republic East Timor Ecuador Egypt El Salvador Equatorial Guinea Eritrea Estonia Ethiopia Fiji Finland France French Polynesia Gabon Gambia Georgia Germany Ghana Greece Greenland Grenada Guam Guatemala Guinea Guinea Bissau Guyana Haiti Honduras Hong Kong Hungary Iceland India Indonesia Iran Iraq Ireland Israel Italy Jamaica Japan Jordan Kazakhstan Kenya Kiribati North Korea South Korea Kosovo Kuwait Kyrgyzstan Laos Latvia Lebanon Lesotho Liberia Libya Liechtenstein Lithuania Luxembourg Macedonia Madagascar Malawi Malaysia Maldives Mali Malta Marshall Islands Mauritania Mauritius Mexico Micronesia Moldova Monaco Mongolia Montenegro Morocco Mozambique Myanmar Namibia Nauru Nepal Netherlands New Zealand Nicaragua Niger Nigeria Norway Northern Mariana Islands Oman Pakistan Palau Palestine Panama Papua New

    Original URL path: http://www.thegfpd.org/for-families/registry (2015-03-27)
    Open archived version from archive

  • Equipment Exchange | Global Foundation For Peroxisomal Disorders
    a member of GFPD to receive our quarterly newsletter Join our support group and be connected with other families Make a donation to help support our cause Every little bit helps Equipment Exchange Do you have medical or therapeutic equipment that your child is no longer using Another PBD parent may be able to use it for their child Please fill out our public Google Doc spreadsheet and tell us

    Original URL path: http://www.thegfpd.org/for-families/equipment-exchange (2015-03-27)
    Open archived version from archive

  • Make a Donation | Global Foundation For Peroxisomal Disorders
    connected with other families Make a donation to help support our cause Every little bit helps Make a Donation Thank you for your interest in The Global Foundation for Peroxisomal Disorders GFPD GFPD is a 501 c 3 tax exempt public charity incorporated in the state of Oklahoma By investing in GFPD you are supporting children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder in the Zellweger

    Original URL path: http://www.thegfpd.org/donate/make-a-donation (2015-03-27)
    Open archived version from archive

  • Global Foundation for Peroxisomal Disorders Fundraising | Global Foundation For Peroxisomal Disorders
    more information Past Events Pound the Pavement for PBDs Exercising for Ethan was held on September 27 2014 in Decatur IL Visit http www facebook com ExercisingforEthan for news Art for Archer 2104 was held on October 17 18 at the Havelock Chili Festival in Havelock NC Visit http www facebook com ArtForArcher for news Pound the Pavement for Peter 2014 was held on March 29 2014 at Capital City Club in Atlanta GA Visit http www poundthepavementforpeter com for photos and more information Ilan a thon 2014 was held on June 8 2014 at Patterson Park in Baltimore MD Visit http ilanathon org for photos and information Second Annual GFPD Dinner Dance in memory of Diego and Adrian Alfaro hosted by Jose and Carolina Alfaro Saturday October 5th at the Denair Community Center in Denair California The Mike Torres Band performed to a nearly sold out crowd The evening also featured presentations by Carolina and Jose Alfaro Dr Joseph Hacia of University of Southern California and a silent auction and raffle For information visit www diegoandadrian com Ilan a thon 2013 was held on April 21 2013 The 5K Run Walk Jog around Patterson Park in Baltimore Maryland was planned in memory of Ilan Betzer son of Mousumi Bose and Andrew Betzer Read more about the event view pictures and learn about upcoming events at www ilanathon org GFPD Dinner Dance honoring the memory of Diego and Adrian Alfaro hosted by Jose and Carolina Alfaro Saturday August 11 2012 5 30 to 11 30 p m Denair Community Center 3850 N Gratton Rd Denair CA USA for tickets visit http dinnerdance2012 eventbee com Pound the Pavement for Peter was hosted by the family of Peter Hopkins and Peter s Pals on Saturday April 14 2012 Atlanta Georgia Visit http

    Original URL path: http://www.thegfpd.org/donate/fundraising-events (2015-03-27)
    Open archived version from archive

  • Fundraising Resources | Global Foundation For Peroxisomal Disorders
    ways to raise money for the GFPD For example you can 1 Create a birthday donation wish through Causes com 2 Use GoodSearch com or iGive com for your online searching and shopping When you use GoodSearch and iGive to shop online they donate a percentage of your purchases to GFPD Plus their web browser toolbar features make shopping and searching easier 3 Ask your employer about their matching gifts program For more information contact melissa thegfpd org 4 Host a Pound the Pavement for PBD ZSD event Pound the Pavement for PBD ZSD is the official Run Walk Fundraising Event for the Global Foundation for Peroxisomal Disorders Pound the Pavement for PBDs events are held in communities across the world to raise awareness of Peroxisomal Biogenesis Disorders and funds for the Global Foundation for Peroxisomal Disorders 5 Add your own variation to the for PBD ZSD format above GFPD families have held Bowling for PBD ZSD Painting for PBD ZSD and Pancakes for PBD ZSD events around the US 6 Shop with AmazonSmile When you shop at Amazon though AmazonSmile a donation of 0 5 of your purchase is made to the GFPD Global Foundation For Peroxisomal Disorders 7

    Original URL path: http://www.thegfpd.org/fundraising-resources (2015-03-27)
    Open archived version from archive

  • Our Shop | Global Foundation For Peroxisomal Disorders
    will fill your orders as quickly as possible typically within 2 3 weeks Embroidered items are made to order and may take additional time to ship More Details To ensure delivery before December 24 2013 orders should be placed by December 14 2013 Product Options Colors Please Select Black White Grey Slate Lavender Slate Leaf Slate Pacific Navy Red Slate White Grey Size Please Select 2X Large Small Medium Large X Large Quantity Old Price from 60 00 Price from 60 00 You save 0 00 Updating cart Women s Sport Tek Fleece Full Zip Hooded Jacket Embroidered GFPD logo on left chest 7 ounce 100 polyester Gently contoured silhouette Open cuffs and hem Thumbholes to keep hands warm Front pockets Left sleeve zippered pocket Price includes tax For international orders please contact us at orders thegfpd org before ordering so that we can calculate the shipping rate The GFPD is staffed by volunteers who will fill your orders as quickly as possible typically within 2 3 weeks Embroidered items are made to order and may take additional time to ship Product Options Colors Please Select Black Grey Heather Pink Raspberry True Navy True Red True Royal White Size Please Select 2X Large 3X Large 4X Large Small Medium Large X Large Quantity Old Price 65 00 Price 65 00 You save 0 00 Updating cart Men s Sport Tek Tipped V Neck Raglan Wind Shirt Embroidered GFPD logo on left chest 100 polyester Jersey lining with mesh insets at gussets for added breathability Rib knit v neck collar Side pockets Elastic back hem Price includes tax For international orders please contact us at orders thegfpd org before ordering so that we can calculate the shipping rate The GFPD is staffed by volunteers who will fill your orders as quickly as possible typically within 2 3 weeks Embroidered items are made to order and may take additional time to ship Product Options Colors Please Select Black True Red Black White Forest Green White Maroon White Purple White True Navy Gold True Navy White True Red White True Royal White Size Please Select X Small Small Medium Large X Large Quantity Old Price 48 00 Price 48 00 You save 0 00 Updating cart Women s Sport Tek Windbreaker Embroidered GFPD logo on left chest 100 polyester shell Jersey lining with mesh insets at gussets for added breathability Drawcord hood with toggles Front zippered pockets Drawcord hem with toggle Price includes tax For international orders please contact us at orders thegfpd org before ordering so that we can calculate the shipping rate The GFPD is staffed by volunteers who will fill your orders as quickly as possible typically within 2 3 weeks Embroidered items are made to order and may take additional time to ship Product Options Colors Please Select Black White Forest Green White Maroon White Pink Raspberry White Purple White True Navy White True Red White True Royal White Size Please Select 2X Large 3X Large 4X Large Small

    Original URL path: http://www.thegfpd.org/products-page (2015-03-27)
    Open archived version from archive

  • Blog | Global Foundation For Peroxisomal Disorders
    fund 3 critical aspects for children with disabilities Research Medical Care and Inclusion in Education The specific charities we will support this year are the Global Foundation for Peroxisomal Disorders the Adaptive Learning Center and the Palliative Care Program at Children s Healthcare of Atlanta One third of the raised will go to our Global Foundation for Peroxisomal Disorders Help us raise more money for our Foundation by either a MAKE A DONATION BELOW or b BECOME A FUNDRAISER yourself It is easy and you can send an email out to your friends for donations I can set up your own site for you https runsignup com anneparkhopkins is my donation page No donation is too small and every cent will be appreciated and used to the fullest Help us spread the word and make a difference Let me know if you want to become a Fundraiser as well Message me or email me at aphopki icloud com and I will sign you up Anne Park Hopkins High School Robotics Team Creates Car for GFPD Kid A high school robotics team in Illinois built and donated a custom motorized car to Ethan a child with PBD Great work Mars Wars team http www centralillinoisproud com story d story metamora robotics team donates car to easter seals 28149 EtVsB6QB3EqBmaGfHsgPoA GFPD Make a Wish Kid Donates Wish Levi a boy with PBD who is not well enough to travel for his Make a Wish vacation donated his trip to his best friend Emma Emma went on Levi s trip to Florida and she took Flat Levi along with her Read about Levi and Emma s friendship and view pictures from her trip http www huffingtonpost com 2015 01 29 make a wish trip levi mayhew emma broyer n 6571668 html GFPD Medical

    Original URL path: http://www.thegfpd.org/blog (2015-03-27)
    Open archived version from archive



  •