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  • The J.A.M.I.E. Group » 6/23 – Brisket!
    father s day everyone We had a wonderful weekend in Austin KC came to visit her sister for a few days and the three of us got to play video games together more on that in the next post Th e biggest news from the weekend is that the Men s Club at St Ignatius in Austin sold briskets to raise funds for Jamie It was a great turn out They sold over one hundred briskets raising an amazing amount of money The fathers of two of Jamie s best friends Eddie Cantu and Steve Palmer they re in the front row with Jamie in the picture fathers to Andy and Michelle are in the Men s Group and we can t thank them enough for their efforts on Jamie s behalf I wanted to thank everyone involved before too much time had passed I wish I this post was wittier or more laudatory but you can t squeeze water from a rock wait that s not it you can t unring the bell no Ah forget it I m just out of good material Here s some fun pictures from the even t Thank you all so much you deserve much more than this brief post Mom instead of telling me what this post lacks just add it in the comments Love you Oh I should say that the briskets were delicious Want to know what they looked like Too bad Here they are You already saw them anyway didn t you 2 Comments Racheli June 23 2009 Jamie who knew short hair would be so cute on you It makes your eyes look very big and pretty Nick June 24 2009 Thanks Racheli That s very nice of you to say Come visit sometime soon and you can

    Original URL path: http://thejamiegroup.org/2009/06/623-brisket/ (2015-03-27)
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  • The J.A.M.I.E. Group » The Jamie Schanbaum Act
    went through Congress three times before it successfully passed with the help of Jamie Schanbaum and her amazing story In early summer of 2009 shortly after Jamie was released from the hospital the entire Schanbaum family was invited to meet with Rick Perry as he officially signed what is now and forever known as The Jamie Schanbaum Act From Left to Right K C Schanbaum Nick Schanbaum Roni Schanbaum Patsy

    Original URL path: http://thejamiegroup.org/2009/06/blog-1/ (2015-03-27)
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  • The J.A.M.I.E. Group » 6/19 – Legs!
    supposed to be hard asses Jamie needs to keep up the hard work on her own She s been keeping up her part of the bargain in this regard and has been doing PT twice a day Just for fun here s a picture of Jaime doing physical therapy at St David s Fun stuff huh Here s an example about how the little things make the biggest difference in Jamie s recovery As you know we ve spoken at length about the wounds on Jamie s kneecaps that were not closing well Since her surgery a few weeks back to take care of her problematic right kneecap both kneecaps began healing and we re happy to announce that Jamie has been given the OK to wear her prosthetics by her PT OT folks at St David s and JP Jamie Peronne from Hanger Prosthetics for the uninitiated She needs to build her tolerance to the weight of the prosthetics She ll be wearing them while in the wheelchair and she ll use in order to balance herself when transitioning from the chair to the couch or elsewhere Even though she can t stand on her own yet I helped her from her stand up yesterday out of the wheelchair It was very cool to help her stand and I m looking forward to the day where she can stand next to me without my supporting her did I mention how tall she is She s at least 5 7 but may be as tall as 5 9 On a related note I m getting shorter But there s more to love about wearing the prosthetics Finally Finally she can put her feet on the ground to support herself She hadn t been able to stabilize herself on the ground

    Original URL path: http://thejamiegroup.org/2009/06/619-legs/ (2015-03-27)
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  • The J.A.M.I.E. Group » 6/18 – Hair!
    old mother of four Just kidding she was a lot of help Just like any other move there are still boxes sitting around the house but it will get done today I hope I just leaned over to mom and said We need to get this done today FYI I m sitting with mom at the TISWG meeting in Austin That stands for Texas Immunization Stakeholder Working Group we re following up on The Jamie Schanbau m Act to see what we can do to help advance this issue in the state So starting today I m going to be writing up a storm I know I ve said this before but this time I mean it As you probably aren t aware I ve been away in Dallas for a week and when I got home did I just refer to Austin as home on Tuesday I was shocked by how much progress Jamie had made This is what I m going to post on today my impressions of Jamie following my week long absence First Jamie s hair looks wonderful As a family the Schanbaum s have very very thick hair Unfortunately Jamie s hair had fallen out more or less due to the shock her body experienced from the disease and the medications Jamie was on Over the past few months it s been clear that Jamie s hair was starting to grow again Last week she got a haircut which basically meant that we trimmed her hair down to a uniform length Now its growing in well and she looks adorable Her hair actually looks sort of like Rizzo s from the movie Grease Don t you agree I m so happy about this development I mean we d always told Jamie that her hair would

    Original URL path: http://thejamiegroup.org/2009/06/618-hair/ (2015-03-27)
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  • The J.A.M.I.E. Group » 6/11 – Live in Austin? Need food for Father's Day? Want to help Jamie's medical expenses?
    you re in luck The fathers of two of Jamie s best friends are involved in an annual Father s Day benefit where their group of altruistic men appropriately called the Men s Club sell brisket to families on Father s Day and then donate the proceeds to a worthy cause This year the worthy cause is Jamie We are so happy and have already had some orders come in from Jamie supporters and we haven t even put the word out on the blog So here s the details The event is formally hosted by St Ignatius Martyr Church Men s Club Mr Palmer 512 565 0361 and Mr Cantu 512 658 3393 are the people to call if you want a brisket The briskets are 40 a piece but all that extra money you re spending and it isn t that much because the briskets are apparently great goes to Jamie You pick up the briskets on Sunday June 21 Father s Day between 8am and 12 noon at the church located at 126 W Oltorf NW corner of Oltorf and Congress Our family is so grateful for efforts like this A whole organized event organized entirely by someone else all for Jamie It s just so great to see that kind of charity and thoughtfullness in today s society Anywho you should definitely get your brisket from there Give your mom wife a break and order the brisket You ll get so many brownie points you won t know what to do with them You can donate them to Jamie too if you d like Happy early Father s Day to all 1 Comment Karen Naomi June 14 2009 Best of luck with the fundraiser I m in Austin although I won t be in town Father

    Original URL path: http://thejamiegroup.org/2009/06/611-live-in-austin-need-food-for-fathers-day-want-to-help-jamies-medical-expenses/ (2015-03-27)
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  • The J.A.M.I.E. Group » 6/9 – A day trip to Houston; playing the Wii
    met with Jamie and sent us back to Austin with an appointment to undergo surgery on that hand on July 1st We re excited to be moving forward on her hands and her legs like I said I m very excited that Jamie s knee looks to be healing on its own We should be up in our prosthetics in a week or so I hope I think everyone would be happy to know that Jamie and I played the Wii together over the past few days With a clever use of Ace bandages and some other hospital materials I affixed Jamie s right hand to a Wiimote and she was good to go provided that the games didn t require any button pushing She was able to play Tennis Baseball and she was able to play Boom Blocks check it out but it was kind of difficult It s the little things that matter most and this was a nice little treat for us Finally I m going to try to get better with the timeliness of the updates I ll rededicate myself to posting on the blog over the next few weeks There s always something to add I like the silence however so maybe I should just try to avoid jinxing us Don t want to disturb the peace there s some healing going on 1 Comment Nick June 10 2009 ANGELA Sorry about deleting your comment when it came up for moderation I reproduced it below I just got an iphone and having fat fingers accidentally pushed reject when I meant to publish Such a nice comment too Please send me your email address you can mail me at schanbaum AT gmail com and I ll send you our home address for letters we re getting

    Original URL path: http://thejamiegroup.org/2009/06/69-a-day-trip-to-houston-playing-the-wii/ (2015-03-27)
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  • The J.A.M.I.E. Group » There's No Place Like Home
    days but as with all the other adventure this new one took a lot of work before we were to go home So here are all the details 1 Wheelchair Who would of thought that a wheelchair had so many parts and details to consider The angle of the seat 70 or 90 degree angle of the front leg rest where the wheel actually falls in relation to Jamie s torso We have to decide where the back support of the chair will lay on her back preferably mid back so she can turn look back without obstruction The brake system had to be well thought out since Jamie s hand are still not up to applying to much pressure on anything An additional wheel is added with a series of 12 quad knobs that protrude about 2 inches to help Jamie push and stop The chair is a titanium rigid frame and once the removable wheels yes that can to done too are removed weighs less that 20 lbs Arm rests footrests side quards cushion and of course the all too important color all these things are decision to be made Oh and we need a loaner until we get our final chair One final neat add on by Jamie who by the way could care less about all the details will be her front caster wheels the light up while moving As well as this wonderful new wheels for Jamie a few other necessary items were ordered and delivered by medical supply company so that Jamie s transition would and could be as comfortable as possible 2 Wound Care Well your looking at her it s Nurse Patsy doing wound care well almost Jamie does have a wound care office that she will go see on occasion The day of Jamie s release from hospital we went to meet our new friends Very nice group and we will be seeing them about once a week till all things heal up But hey in reality I ve seen it done so often that I feel like I could do it with my eyes shut or maybe I should do it with eyes wide open But when we did see wound care Dr Mailman suggested we see bone and joint specialist to see about that nasty knee problem which leads me to 3 Austin Bone and Joint Clinic We had an appointment with Dr Malone Friday 6 5 to see why and what could be done to help heal the wound on her right patella I love that word right knee cap to us lay people Seems that a little calcification has set and keeps wound from healing Dr Malone recommended we do minor surgery debriedment thought we would never have to do that again So surgery is scheduled for Thursday 6 4 and we have to be there at 5 am for surgery at 7am Now I will only say this once but this is when been in a

    Original URL path: http://thejamiegroup.org/2009/06/theres-no-place-like-home/ (2015-03-27)
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  • The J.A.M.I.E. Group » 5/30 – A preview of mom's post, due out today!
    OT and other doctors visits You know someone made an observation that now that Jamie is back home mom will have to do all the work That s true I guess but Nurse Sake is there to help Or mom could be talking about Jamie s upcoming surgery on her right knee Remember how those wounds aren t closing The more troubling one is the result of a calcium buildup an ulcer actually can it be both on her knee cap that prevents the wound from closing thereby preventing Jamie from acclimating to her prosthetics Dr Mailman who does our Wound Care referred us to Dr Malone who s the bone doctor He ll be doing the surgery Its not a major procedure but you know Jamie and she d rather be knocked out There s more details but I ll let mom handle it afterall this is supposed to be a preview Actually mom might be intending to talk about SB 819 The Jamie Schanbaum Act It passed through the legislature this week I ll let mom handle the details but all that s left is for Governor Perry to sign it or rather not veto it We re cautiously optimistic Did you see the piece in your local paper about how the Senate literally pulled the plug on the official clock at 11 58 so that they could submit all the bills by the midnight deadline Interesting huh It s kind of new news but maybe mom will be talking about our upcoming trip back to Houston for Jamie s second flap procedure Dr Boutros is back from his Doctors Without Borders expedition to Vietnam and he says we re ready to proceed So Houston we re coming back for a few days at least Oh Mom may

    Original URL path: http://thejamiegroup.org/2009/05/530-a-preview-of-moms-post-due-out-today/ (2015-03-27)
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