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  • The J.A.M.I.E. Group » 4/18 – Big Update – Testifying, Mom's TV Interview, Jamie's Awesome Progress
    So was Roni as you probably guessed by the picture The four of us in favor of the bill testified first Mom and I spoke last among these four people Mom s testimony was wonderful and direct I went last but everyone else had already said everything that needed to be said so I tried to limit myself to Don t screw anything up Check back in a bit for the link to the testimony I ll fix this promise Ultimately everything worked out well and the bill was voted through the HEC by a 5 0 vote The next step for the bill is for it to be argued on the floor of the Senate in the next few weeks and if it passes then it goes to the house If you re reading this why not ask your state senator to support this bill The more support this bill has the better so it s worth an email or a letter Thanks for your help Before jumping to the next topic we need to thank Senator Wendy Davis from Fort Worth It s her bill and we wouldn t have had the opportunity to represent Jamie at the state legislature or speak to the Higher Education Committee about Jamie s terrible illness So we re very grateful for that Mom and Jamie were on TV once again Earlier in the week Mom called her friend Ron Olivera a superstar anchorman for Austin s CBS affiliate KEYE and told him that we were going to be testifying at the capitol on an important bill pertaining to meningitis vaccines Being the cool guy that he is he somehow arranged for a cameraman to be at the Higher Education Committee meeting and then arranged for mom to be interviewed by Alexis Patterson one of CBS s reporters for the evening news It is now April 18 its taking me forever to finish this post I could go on and on with details about how Roni and I set up for the interview or how attractive Alexis Patterson is in person but it s a long interview so I ll let mom and Alexis speak for themselves Click HERE to see it This interview was played twice once at 5 and again at 6 Interestingly each showed different footage spliced together with some of the footage from Jamie Mom s interview back in February So wrapping up the non medical news the Senate Bill made it through committee and it is now on its way to the Senate floor It is Senate Bill 819 Call up your state senator and tell them to vote in favor of the bill or else I don t know much about state politics but I assume that direct threats work well Jamie s Amazing Progress I hadn t been in Houston for a week which usually means I m going to be excited by the progress Jamie has made during that time So take that anticipation

    Original URL path: http://thejamiegroup.org/2009/04/418-big-update-testifying-moms-tv-interview-jamies-awesome-progress/ (2015-03-27)
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  • The J.A.M.I.E. Group » Testifying for Senate Bill 819 at the Capitol tomorrow (watch it
    support of Senate Bill 819 which if it eventually gets passed would require college freshmen to be immunized if they live in on campus dorms We re very happy that Senator Wendy Davis Fort Worth is sponsoring such an important piece of legislation I don t think I need to tell you about how our lives would be different if this bill existed a few years ago Want to watch us on TV You can Here s the link http www senate state tx us There should be a link to a Live Video Broadcast on the page Look for Senate Audio Video Live Web Should be pretty easy you may have to download a Real Video Player like I did but I hope you don t have to you ll probably be alright It ll be tomorrow morning but we don t know exactly when At 7am tomorrow the Higher Education Committee will schedule Wednesday s hearings Its a bit complicated but we think we ll be going earlier maybe closer to 8 as opposed to later So if you really want to hear mom and I testify on behalf of Jamie then go ahead and tune in We

    Original URL path: http://thejamiegroup.org/2009/04/testifying-for-senate-bill-819-at-the-capitol-tomorrow-watch-it/ (2015-03-27)
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  • The J.A.M.I.E. Group » 4/13 – Mom and Nick's Excellent Adventure Part 2
    air that usually exists between patient and practitioner see e g Dr Foot Doctor He s frank funny and direct I loved that about him The second thing you may notice is that he was born without a right hand Mom JP and I spoke for a while about his childhood and the effects of having being an amputee his whole life He was raised to believe that he was no different than his brothers and his parents taught him to figure his own way through problems Now he s near the top of his profession pioneering new technologies and working with his idols in the profession Basically I think he kicks ass JP made Hanger sound like the kind of place you want to form a long term relationship with This is great news because he also made it clear that he s not the kind of prosthetist and Hanger isn t the kind of business that will simply give their patients clients still not sure about this terminology either a prosthesis and then not see them again until they need a replacement in 4 years JP told a few anecdotes about how he ll fit someone with a prosthetic on Day 1 call to see how it feels on Day 3 come visit you on Day 4 and ask you to come back for a refitting on Day 6 He s in this for Jamie and wants her to live a great life not just live on a great prosthetic After everything was said and done the three of us spoke for almost two hours We covered Hanger s relationships with other prosthetic manufacturers and with St David s hospital We ll be talking a lot about prosthetics in the future and we do have a lot to

    Original URL path: http://thejamiegroup.org/2009/04/413-mom-and-nicks-excellent-adventure-part-2/ (2015-03-27)
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  • The J.A.M.I.E. Group » 4/13 Happy Easter-Happy Passover – God Bless U
    advances Jamie had made the previous week was going to have a step backwards but nooooooooo way Not only did her prealbumin go up but it went from 15 8 all the way to 29 6 Everyone was shocked and so happy including Allison Jamie s dietician Another sign was needed to celebrate this exciting advancement Jamie is officially in the range she needs to be in between 20 40 Great news What s amazing and the reasons for fighting so hard for these numbers was apparent when wound care was done What a miracle Jamie s bottom is healed but for a small quarter size wound and her legs have a few of the same And as of today drum roll please Her bottom is bandage FREE except for a small bandage Unbelievable Oh yeah and with her exposed bottom it s cold The next step is to get her legs bandage free Although there are only a few wounds left on her legs the bandages are necessary They require the necessary pressure needed to reduce swelling to take her legs to the next step for prosthesis So then along came Doctor Hand Doctor to check the progress and guess what no more bandages are necessary But this is a whole different reality and a not so pleasant reality for Jamie With all her fingers gone it was very very upsetting for Jamie A lot more surgeries are still needed to get Jamie s hand functional but it just not very pleasant BTW an email has been sent to Worcester Polytechnic Institute where they have been granted a contract to research along with The Defense Advanced Research Projects Agency DARPA to regenerate a large body part such as a finger or even a limb Anyone know anything we can

    Original URL path: http://thejamiegroup.org/2009/04/413-happy-easter-happy-passover-god-bless-u/ (2015-03-27)
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  • The J.A.M.I.E. Group » 4/12 – Mom and Nick's Excellent Adventure
    learned lots and we liked almost everything we saw and everyone we met St David s Hospital in Austin is a late entrant into the Where in the world is Jamie going to go for rehab decision making process We d heard a few good things from Austinites a k a people from Austin about their rehabilitation facilities and hadn t heard anything particularly bad in advance Interesting fact when we choose where Jamie will be rehabbing it will be first time we ll actually choose where we ll be staying You may remember Roni took Jamie to Seton because it was the closest hospital and we went to St Joseph s because only Dr Lin would take the case and he wanted to put Jamie in their hyperbaric chambers So we wanted to see what we d be getting ourselves into Roni mom and I met with three folks from St David s Estrella and M Lissa both of whom perform some sort of back office admissions related services that I can t remember and Marianne a physical therapist They took us on a detailed tour of the rehab facility clean and calm and also showed us the main hospital pretty and new the cafeteria delicious and gift shop expensive and coffee First off the good news We ve talked about the requirement that Jamie perform three hours of rehab before she can be an impatient rehabilitation patient So I d venture a guess that she s strong enough to complete those three hours now It s not like its going to be 180 minutes of painful exhausting rehab She ll have options which include using the Wii or rehabbing in the pool She ll have a lot of options which should help ensure that her rehab is challenging interesting and fun There are a lot of patients there who are rehabbing from a variety of injuries We were also impressed by the amount of people they had on staff The ratio of patients to staff looks good or at least it looked good at 11 30 on a Tuesday As for the bad news There isn t any bad news but First off the good news is a good way to get rid of writers block apparently Oh they re doing a remodel of the floor above one of the two rehab floors so that isn t too cool but that s alright Ultimately the most important part of St David s may be its proximity to Jamie s home Austin Roni has been living in the house we ve been renting since November waiting for our arrival If we go to St David s Jamie will finally be back in Austin Let me tell you something it just feels different in Austin Jamie is a child of Austin and she ll benefit from being back without a doubt Her friends will be able to visit more since she ll be practically right across the street Finally and

    Original URL path: http://thejamiegroup.org/2009/04/412-mom-and-nicks-excellent-adventure/ (2015-03-27)
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  • The J.A.M.I.E. Group » 4/5 – Inspirational Meeting with Michael Segal; is Jamie going through withdrawals?
    his then girlfriend they re married and their daughter is a freshman at USC stopped by a gas station on their way back home Mike went inside to pay for the gas and while inside two men entered the store forced Mike into the stores freezer forced him to the ground and shot him in the back of the head execution style The phrase What doesn t kill you makes you stronger must have been written about someone like Mike While Mike s rehabilitation was vastly different than Jamie s will be Mike s story and struggles are directly applicable to Jamie s Whereas Jamie will have to teach herself to walk again and regain her dexterity despite lacking fingers Mike Segal was unable to talk for 8 months Mike is paralyzed on the right side of his body but can go about his daily life without assistance In addition to his other pursuits Mike speaks to individuals and groups of people about what it takes to overcome hardships and disabilities though he d kill me if I didn t say disABILITIES Mike now maintains an inspirational website which can be found by clicking here we re also going to add a link to the blog permanently and here s a video on YouTube Mike spoke to Jamie and Roni Caitlin mom and I listened with rapt attention to his story In total he probably spoke with us for 90 minutes He spoke about how to overcome frustrations and how to focus on the things you can still do as opposed to the things you can t He also spoke about his four keys to recovery 1 a strong support system 2 a positive attitude 3 faith in yourself and 4 faith in God Mike and Jamie smiled and laughed

    Original URL path: http://thejamiegroup.org/2009/04/45-%e2%80%93-inspirational-meeting-with-michael-segal-is-jamie-going-through-withdrawals/ (2015-03-27)
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  • The J.A.M.I.E. Group » 4/4 – Remarkable Dressing Change; Inspirational Meeting
    last dressing change in the OR I think it was a few days earlier on Tuesday but I m not sure Dr Smith had told us that approximately 95 of the skin grafts were taking If you remember we were hoping that 80 would successfully take For that reason Dr Smith was confident that a bedside dressing change was proper alternatively he argued that a dressing change in the OR was a bit of overkill Nonetheless this didn t make Jamie feel much better She had experienced months of bedside dressing changes even before her amputations and they didn t feel too good even with the quick acting intravenous drugs she was taking Another note remember that Jamie no longer has an IV or a Central Line so she can t get a syringe of dilautid or morphine She is limited to taking pills orally which take 30 minutes to be effective So here s Jamie without the use of her IV dilautid and about to undergo her first post amputation bedside dressing change on her legs The anticipation was terrible of the tears shed almost all of them happened before the dressing change began So the dressing change began Dr Smith was in attendance watching Vijay and Michael two of the Physical Therapy Wound Care guys with whom Jamie has enjoyed the longest relationship change the dressings Dr Smith and the St Joseph s Plastic Surgeon resident were very hands on but they were mainly there to make sure that grafts were successfully adhering to her skin They were Dr Smith was very pleased with the work he d done on Jamie s legs and on the graft he retouched on one of Jamie s hands Importantly Jamie s tol erance of this event was far better than I

    Original URL path: http://thejamiegroup.org/2009/04/44-remarkable-dressing-change-inspirational-meeting/ (2015-03-27)
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  • The J.A.M.I.E. Group » Press
    surgery meeting with hospital team on going home Posted on Mar 22 2009 in Press Jamie had another surgery on Friday following her surgery on Tuesday Friday s surgery was comprised only of redressing her wounds this could have been done bedside but it hurts and if it s possible Jamie would prefer to be knocked out for all things painful Dr Smith simply changed the wrappings on Jamie s legs looked Read More 3 19 The Hand Switcheroo Switcheroo Posted on Mar 19 2009 in Press Today is Thursday morning The first Thursday of the NCAA tournament which kicks off the best four days in sports if not the best days in the whole world This is also the first year in which I haven t gambled a lot on the tournament I m pretty sad about that but I didn t watch any Read More 3 15 A post about nothing and how great it is Posted on Mar 15 2009 in Press So it s been quite a while since I wrote on the blog I ve been bouncing from Dallas to Fort Worth to Austin to Houston and it s sort of hard to get my bearings straight Finally I m back in my comfort zone writing I was getting all geared up to talk about all of the new Read More Hump Day Posted on Mar 12 2009 in Press Hump Day It seems to be a relatively calm past few days but what is relative and what is clam in Jamie s world Hey it s so clam that I can post only 2 days after my last post Tuesday s procedure was a visit to the OR with Dr Smith I call it a procedure Read More Jamie s Continuation Surgery Just a

    Original URL path: http://thejamiegroup.org/category/press/page/10/ (2015-03-27)
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