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  • The J.A.M.I.E. Group » Friday the 13th – Part 2 – Wrapping up a Rough Day
    part of the day Oh my God When we re back in the room ready to tend to the wounds on her backside it may have already been over two hours since Jamie received her last pain medications Typically this is fine because every other wound care session took roughly two hours Not this time This time as Jamie s pain meds were wearing off she was about to have her wounds treated on her rear Jamie s right hip butt cheek were treated with minimal or bearable pain on Jamie s part Then sometime between the treatments on right and left sides the pain meds wore off As Michael and Vijay treated her wounds she protested tried to get them to stop cried then screamed Mom who to this point was not in the room because she s not allowed to see the stumps FAMPS came in to see what the F was going on Mom flew to her daughter s side and sent me out to get pain meds I start storming this way and that trying to get Jamie an extra burst of pain medication so she can get through the treatment on her rear and her stumps I ll skip the details of why Jamie s nurses weren t allowed to give her an extra burst of pain meds but because of some discrepancy in Jamie s orders our pleas for pain killers were met by picture this the Monopoly guy on the Pay Poor Tax of 15 Chance card you know with the shrugged shoulders and empty pockets Hey I would but I can t Our best pain reducer at the time was to get a velcro strap for Jamie to bite down on through her screams At this point we haven t even touched the legs I run back to the room to find mom consoling Jamie I felt like I was watching a WWII movie or something Isn t this the freaking future Did they give her a swig of whiskey before tending to her stumps What is going on here I d never seen Jamie or I think anyone in that amount of pain in my entire life She still had not received her pain meds It had become evident that Jamie s pain medication has diminished to the point that is ineffective Finally after what seemed like forever but was probably only 30 or 45 minutes we re able to convince someone to call a doctor to get us some extra pain meds By the time Jamie got the pain meds one of her legs had been unwrapped I mean it was a brutal soul sucking process Lots of fun The legs well they looked pretty good Once we re able to get over the trauma of today I ll let you know what the legs looked like But like with the FAMPS I was very impressed with how they looked DFD and her crew did a great job More on

    Original URL path: http://thejamiegroup.org/2009/02/friday-the-13th-part-2-wrapping-up-a-rough-day/ (2015-03-27)
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  • The J.A.M.I.E. Group » Friday the 13th – Part 1 – FAMPS, Whirlpool and Filler
    I m the only one that s allowed to see the really gross stuff i e when the Austin plastics guy squeezed liquefied muscle out of her palm and calf that was gross I don t know care why that is it just is Maybe my brain is simply broken by now So low and behold I go to the whirlpool room and good surprise It s a Physical Therapy and Wound Care all star team Everyone from Vijay to Monena to Michael to well I m too tired to go on but seriously everyone except the hyperbaric folks were in the room The hyperbaric folks were in the next room over and came to say hello of course Then I finally got a good look at the FAMPS For the most part I m pretty impressed where I m not impressed I m satisfied Here are my observations in list form 1 Dr Foot Doctor DFD was right when she said that she d be leaving an extra centimeter or two of bone on the end of each FAMP If you don t think that s a lot of length go get a ruler and smack yourself in the face with it 2 Bones are weird looking when they re sticking out of your sister s fingers 3 Both hands were still pretty swollen With some physical therapy exercises she ll snap out of this but for now it s hard to ultimately get a read on how her fingers will eventually look 4 Left Hand Thumb A lot longer than I thought it d be There may be some gripping action there but not as much as the right thumb Pinky Didn t notice anything special Ring Finger does appear to be unreasonably long compared to the others but as DFD said the point was to save as much length as possible for her eventual wedding ring Middle Not much to say here either Index shortest of all ten fingers In fact when people ask if Jamie was able to keep any fingers I ll say she was able to keep nine 5 Right Hand Thumb Lots of gripping more than the left Not any bending Index Middle Ring All three have good length I m not sure what I was expecting but assuming the groin flap goes well there should be some good length there Pinky shrug s shoulders and this is where things get messy See today s whirlpool session was different than all others and not just because it was her first one This is also part of the reason that it took a long time It s a new process so I understand Also it was an unusual one because we didn t have all the equipment available to us that we would ordinarily have In the future we ll use a lifting machine that Jamie will rely upon to be raised from and lowered into the whirlpool Unfortunately that machine was broken today

    Original URL path: http://thejamiegroup.org/2009/02/friday-the-13th-part-1-famps-whirlpool-and-filler/ (2015-03-27)
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  • The J.A.M.I.E. Group » Trying to Transition
    s say their arms Therefore making it difficult if not impossible to move their arm In Jamie case her brain believes her legs are still there and continues to send these messages This is a good thing Why When she begins walking with her prosthesis her brain will believe that Jamie still has her legs and help transition easier This is a bad thing Why Because Jamie is still having intense pain in her feet along with every point of impact where her amputation took place Keep in mind Jamie still has wounds on her legs and buttock Back again to cautious 2 Things work a little different when we re on the floor Patient nurse ratio is high making it a little longer to get pain meds we ll talk pain meds later It very important that we don t lapse with these meds We don t want to play catch up This transition went well especially with everybody working on the same team But it s the worse of two evils stay in ICU where Jamie receives constant attention I get to sleep on the most uncomfortable chair ever Or get back to the floor where I return to a more comfortable pull out bed but I have to be more alert and aware of Jamie s needs Oh well what can I say So we re here in Room 563 where meds seem to be crazy Pain meds adjust continually Morphine by IV 2 4 mg has been discontinued ultram reduced to every 12 hours and morphine pump dropped from every 10 minutes to every 20 minutes as needed Fentanly patch has been added to be changed every 72 hours It s important to keep Jamie comfortable and pain free but we also don t want her

    Original URL path: http://thejamiegroup.org/2009/02/trying-to-transition/ (2015-03-27)
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  • The J.A.M.I.E. Group » Tough day of Many to Come
    day when we would do the first removal change of bandages First I figured it would be painful and it was according to Jamie it was the most excruciating painful thing she ever felt I was not allowed in the room during wound care and I m sorry to say that I was glad I feel guilty saying that and although I ve seen alot since this horrible illness I just couldn t bear seeing my Jamie going thru this pain The weight on my heart is to much too bear But in typical Jamie mode she endured it So along with her Doctor doctors assistant 2 nurses nurses aide 5 doses of dilaudid a couple of pushes on her PCA of morphine it all only took 1 hour The nurses admitted to me later that it took everything out of them not to cry A few new medicines have been added to jamie s smorgasbord of meds A pill has been added for an infection another antibiotic for a wound culture that has come back positive Needless to say the pain meds have been increased So here it is Scheduled Pain Med Morphine 2 mg IV every AM before wound care MS Contin 30 mg oral every PM Ultram 50 mg every 6 hours Lyrica 75 mg twice a day this is for phantom pain PRN Pain Meds As Needed Vicodin 1 tablet every 6 hours Dilaudid 0 2 mg IV every hour Morphine 2 4 mg IV every hours Morphine PCA every 10 minutes pump Remember the 4 above is AS NEEDED She doesn t need to have it all all the time So as you can imagine it seems to be enough to knock out a horse and just enough to manage the pain Jamie is going

    Original URL path: http://thejamiegroup.org/2009/02/tough-day-of-many-to-come/ (2015-03-27)
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  • The J.A.M.I.E. Group » 2/7 Part 2 – Wrapping up day 1
    in Press We re almost through Jamie s first day after her amputation surgery She s become a bit more accepting of what has happened but she s in way too much pain to realize anything more about it Physical Therapy came to the room earlier today to test Jamie s range of motion She didn t like that too much That was very painful for Jamie After PT she had Occupational Therapy come in OT worked on her range of motion of her upper body in greater detail That was a bit better As for now Jamie phases in and out of consciousness She s taking a lot of medications and will be doing so until the pain becomes more tolerable This is still the day after surgery so its supposed to be the worst day Also I should mention that before when we were in the ICU I bitched about how there was only one TV in the ICU Now there s two TVs I guess people listened now if they could do something about the two gigantic families that are in our waiting room I can t hear either of the lovely tvs with these people making

    Original URL path: http://thejamiegroup.org/2009/02/27-part-2-wrapping-up-day-1/ (2015-03-27)
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  • The J.A.M.I.E. Group » Press
    More MAJOR UPDATE draft Jamie s Amputation Surgeries on Friday Posted on Feb 5 2009 in Press I ll come back tomorrow to edit this further but there is a big update coming about Jamie s amputation surgeries and this is just to give everyone the important facts I m just exhausted right now its been a bit of a draining week After consulting with our team of doctors in Houston we ve decided to go Read More Jamie s News Report to Air Tomorrow Posted on Feb 3 2009 in Press Another late night but I wanted to write to update you with Jamie s new information It s been a little crazy trying to get Jamie to eat and keep it down The antibiotic thatshe is on causes alot of nausea So we try to counteract with nausea medicine Thelast time I posted I mentioned Protein Well that Read More Exciting News for Jamie Posted on Jan 31 2009 in Press Where do I begin where I left off would be a good idea First let me apologize for taking so long to post but flying solo makes it a little difficult My days tend to be sooooooooo long In fact it s Friday 11 30 pm and all is well quite nice Anywho Jamie Read More Fun Times for Jamie Posted on Jan 26 2009 in Press What a week It s Monday morning right now but I m going to go over last week what a week Let s start with the fact that I ve officially moved out of my apartment in the valley put everything in storage and am totally displaced again Oh well my heart soul is with my Read More 1 21 Progress made KC s impressions after 12 days away Posted

    Original URL path: http://thejamiegroup.org/category/press/page/12/ (2015-03-27)
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  • The J.A.M.I.E. Group » 2/7 – Jamie is awake, intubated and aware of what happened. Questions?
    wasn t a question 2 Sorry How s Jamie She s doing ok She was just taken off of the ventilator Just now She just hates being on those things KC and mom are in there now with her I m sure she s trying to talk but though things really do a number on your throat She has seen her amputations and she s on an emotional roller coaster right now OK perhaps it isn t a roller coaster since she s not ever super enthusiastic about her amputations maybe she s on an emotional subway right now She s healthy though and that s all we re hoping for right now 3 How long is she going to be in the ICU for She ll probably get out on Sunday or Monday Though as I said yesterday when the plan was for her to leave the ICU today or Sunday you really can t rely too much on hospital time tables 4 And you guys How are you all doing We re holding it together pretty well Look at that someone just delivered a box of flowers to us while mom and I are sitting here so that

    Original URL path: http://thejamiegroup.org/2009/02/27-jamie-is-awake-intubated-and-aware-of-what-happened-questions/ (2015-03-27)
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  • The J.A.M.I.E. Group » 2/6 – Post-Surgery Report
    to deal with personally From our perspective Jamie s surgeon did an excellent job on her legs and her fingers Jamie went into surgery shortly after noon and concluded around 5 Dr Lin came to give us a few updates during the surgery but didn t want to answer all of our questions out of professional courtesy for Dr Foot Surgeon Well after surgery she came into the waiting room to tell all of us me mom KC Roni Uncle Joe Aunt Cindy Uncle Danny Aunt Letty cousin Sara and A teamer Michelle about how surgery went One of the first things that she made clear for us was that we couldn t really have waited much longer before doing these surgeries Apparently Jamie s feet and much of her ankles were dead and filled with puss In short there was lots of infection in her lower extremities and this will remain a concern as we go forward during these next few weeks skin flaps on the legs and months groin flap for the fingers The final result on the legs is that the length on both are equal and sufficient for prosthetics That is a welcome sign Dr Foot Surgeon told us that she started cutting on Jamie s toes then her feet then her ankles and so on but it was infected and dead up until the calf This is the approach that we begged the surgeon to take with her feet and so we feel confident that every inch of good tissue was saved We needed to feel that way after the surgery so that s good As for the hands we didn t get the clearest answer ever Some of the fingers are going to have some length on the first PIP joint if I had more time I d link to the old post here with the picture of the hand but none of them will have the entire thing Some won t have any length beyond the palm Her left ring finger was left a bit longer than Dr Foot Surgeon would ordinarily leave it because its the ring finger and she ll be needing that one day I don t know why I m still calling her Dr Foot Surgeon but whatever Jamie s right thumb will have some gripping action and in conjunction with her right pointer middle and ring fingers will have some good pinching ability Her fingers on her left hand are worse than the ones on her right How much worse We can t be too sure We re glad to be back with our old friends in ICU Steve and Sarah greeted us when we returned to the ICU They were glad to see how far Jamie has come and told us that as long as Jamie is here she ll be treated like a queen Megan one of Jamie s old favorites will be taking care of her tonight I should go say hi to Marci again

    Original URL path: http://thejamiegroup.org/2009/02/26-post-surgery-report/ (2015-03-27)
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