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  • The J.A.M.I.E. Group » 2/5 – Amputation Surgeries are Tomorrow at Noon
    surgery which ended up being Friday at noon 2 What did you all talk about in that meeting on Tuesday Haven t you all been pretty staunchly against the idea of cutting too soon What caused the change of heart While the details of our talk on Tuesday aren t any of your business nosy there isn t too much exciting information that forced us to change our minds We ve always looked at this as sort of a sliding scale On the one hand we had weighed the risks behind waiting to perform the surgeries sepsis infection getting necrotic tissue into the blood stream wet gangrene death and the likelihoods of their occurring On the other side were the benefits saving fingers legs feet walking measured against their percentages Basically our position has never changed but over the last few weeks we ve seen the rate of recovery slow down as has been expected There have been additional complications as discussed by mom in her posts These include the blood clot caused by the pic line some puss action near her foot the flare up of MRSA on her hand the catheter Jamie s had for almost three months and so on The percentage chance that these problems could cause her to lose all of the progress she s made has steadily increased over time It hasn t spiked or anything but it s been looming larger as of late On the other hand the consensus seems to be that despite our major strides in saving a lot of grey area necrotic tissue we physically cannot hope to resurrect what has died a few months ago After all Jesus was only down for three days not three months so I m not sure we can expect a similar miracle Basically the chances for improvement are now outweighed by the chances for disaster In the end after KC Roni Jamie mom and I got together to discuss it was an easy decision albeit a terribly difficult situation 3 OK quit rambling What s the deal with her surgeries Shouldn t you get to that Sheesh OK As I mentioned above Jamie will be having two BKAs performed on duh her legs She ll also have the FAMPS performed on her hands Last time I m saying this but NO her hands aren t being cut off just parts of her fingers The surgery will be at noon tomorrow Friday February 6 No I don t know how long it will take I m sure we ll post something on the internets about this once we know anything UPDATE The surgery should take less than 4 hours Now to the specifics Legs As far as amputation surgeries go BKAs are wait for it pretty cut and dry ZING What we ve been hearing is that you cut the legs so that the stumps fit into the prosthetics I m not sure of the exact length needed but I do know that

    Original URL path: http://thejamiegroup.org/2009/02/25-amputation-surgeries-are-tomorrow-at-noon/ (2015-03-27)
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  • The J.A.M.I.E. Group » MAJOR UPDATE (draft) – Jamie's Amputation Surgeries on Friday
    its been a bit of a draining week After consulting with our team of doctors in Houston we ve decided to go ahead and move forward with Jamie s amputation surgeries on Friday at noon These are the amputation surgeries that we ve always known were coming Jamie will have two below the knee amputations BKAs These are relatively standard They cut the legs so that there is a certain amount of shin bone remaining Jamie has more than enough so she should be fine Jamie s fingers thumbs will be amputated to the extent that the finger tissue is necrotic However this is where things get interesting They will save as much bone length as possible and then in 2 3 weeks they will perform a procedure called a groin flap This means that one at a time Jamie s exposed I think finger tips will be placed within her skin Then surrounded by skin tissue it should encourage real skin to grow around these extra bits of bone finger insides Then after a few weeks of that they ll do a groin flap with respect to her other hands There are other considerations other details and other bits

    Original URL path: http://thejamiegroup.org/2009/02/major-update-draft-jamies-amputation-surgeries-on-friday/ (2015-03-27)
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  • The J.A.M.I.E. Group » Jamie's News Report to Air Tomorrow
    time I posted I mentioned Protein Well that ugly word just seems to raise it s ugly head constantly Jamie s nausea vomiting keeps any nutrients from absorbing into her body causing her protein albumin level to lower almost to the malnutrition level causing her risk for infection to increase which then puts the situation in a serious state A vicious cycle I feed her slowly an 8oz container of yogurt can take an hour to eat just so that she can keep it down The good news is that her temp has been okay within the last few days We decided to d c the time released morphine While Jamie was only on it for a week it was not a good week She slept constantly and was barely awake enough to eat or exercise Two very important things Jamie needs to get healthy I m sure that one week didn t help her protein situation see that word keeps coming up The message here is to remember to eat your proteins it s very important for your health Well most importantly and very exciting is the visit we had today from ABC channel 13 HealthCheck reporter Christi Myers Christi and cameraman Bob we re very pleasant and it was very nice meeting them both The report will air Tuesday night in Houston at 6 pm In fact we ve already seem a commercial on the story Christi has also sent her story to the ABC affiliate in Austin That report for all our Austin friends will air Wednesday at 6 pm If you can t tune in be sure to go to ABC13 com to follow link to Jamie s story Pass the word and let us know what you think Thanks to Fritz Guthrie VP Marketing at

    Original URL path: http://thejamiegroup.org/2009/02/jamies-news-report-to-air-tomorrow/ (2015-03-27)
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  • The J.A.M.I.E. Group » Exciting News for Jamie
    the Steelers or okay one of the Cardinals but not for a cute 20 year old A cute 20 year old who is also taking approx 20 meds daily and has enough difficulty keeping that down So Jamie wakes up around 8 30 I try to let her sleep as late as possible the 4 hour nightly vitals makes it difficult to get a good night sleep speaking of the devil I hear them coming now it s close to midnight right on time Blood Pressure 127 over 53 Heart Rate 103 Temp 99 9 Back to the topic of diet 8 30 am I try to make Jamie eat something anything before morning meds All meds are important but I try to space them out Viagara metropolol ultram are a couple of the more important meds then lets wait and give the vitamins Vitamins are also important put are a little harsh on Jamie s stomach We try and try to keep those down before the next go around she needs each and every one of them I measure every ounce down to every bite just to meet our goal BTW Allison Jamie s dietitian came by and said we re doing a great job My job is to reach those goals Jamie s job is to eat it and not to get too mad at me as I try to shove it down her throat Jamies needs food calories to keep her weight and again more importantly PROTEIN Protein excellent for healing all her wounds So it was a routine week for Jamie but I tried to make it a more intense week Hospital Boot Camp Jamie knows that she must make that push to get us through this so she puts up with the food exercise OT

    Original URL path: http://thejamiegroup.org/2009/01/exciting-news-for-jamie/ (2015-03-27)
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  • The J.A.M.I.E. Group » Fun Times for Jamie
    creeping down Sloooooowly here is where things started going haywire A blood culture was done as they are often done and it tested positive not good So she is back on Vancomycin That s okay just so glad that Dr Thai saw the need and acted quickly The same day Jamie was complaining of chest pains while at the end of her dive again not good Lupe in hyperbaric saw the need to cautiously and slowly bring her up from the dive Afraid that her lung may have collapsed So after slowly coming out of dive she was immediately taken to xray stat love that word for 2 views of her lungs Results came back that she had atelectasis which is the tissue effecting the lung that caused alveoli to deflat In other words a small portion of the right lower lobe had collapsed It will be resolved with daily breathing exercise Jamie was given the thumbs up to continue dives When we got back to room from xray a nurse was waiting for us to place a pic line in Jamie s arm What Well it seems that the Dr s felt that central line in her upper right chest may be cause of infection Okay let s do it so a nurse prepared to prep and it was done under very sterile conditions bedside in her room But it didn t go so well and it didn t feel too good for Jamie The next morning while trying to extract blood nothing happened and it was very painful for Jamie Sooooo Jamie was sent to Interventional Radiology to check for st guided placement of pic line It seems that it was placed in wrong vein Dr Strax said it needs to be redone Whoa Jamie was not a happy camper as you can only imagine So they came and called me from waiting room to tell me that Jamie would only consider it if she were sedated So Super Mom that s me ha came to the rescue So I said Put me in a lead bid to repell the radition and let s get this done Sorry have to find humor some where Well it was done and correctly Thank you Dr Zeke for your quided help I appreciate it Well lastly Jamie has also tested positive for a urinary tract infection It s only to be expected especially having to have a catheter in since Nov 13th Of course it s been replaced several times but regardless it s been there long We ended the week with alot of fabulous visitor Nicholas yeah I can go bathe Roni came in with Jamie s friends Michelle Molly and Jeff Another yeah great movie watching time and thanks to the dvd s sent to us by Uncle Mark and Aunt Debra there was alot to watch Of course thanks to blockbuster Uncle Zeke and Aunt Shirley always great because Uncle Zeke helps me mechanically gets things in order

    Original URL path: http://thejamiegroup.org/2009/01/fun-times-for-jamie/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/21 – Progress made KC's impressions after 12 days away
    drink it So she s biting the bullet on that one and she s forcing them down She s being pretty diligent all around she takes all her pills at once which is around 7 pills on average and is more and more willing to take the nurses suggestions on her pain levels nauseau sleeping aids etc But the big milestone today was her wound care I probably won t even be able to portray how wonderful Jamie s legs butt and hands look but just know that its breathe taking In a situation where things are understandably going to take a long time its nice to know and see that things are progressing well The healing on her legs butt and hands are even impressing Dr Lin and the whole wound care team about 4 people who are so amazing and handle Jamie SOOOOO well Myra they love your cookies actually everyone does So in a little more detail her right leg is the better of the two She still has necrotic skin on both her legs to about half way up her calves so she has raw skin above that necrotic skin line She also has raw and exposed tissue on the top of her knees and a couple of other splotches on her thighs Her left leg is a little worse but compared to what they did look like worse is a relative term She has these wounds on the top of her left thigh the last time I saw these wounds they looked like inch and a half deep bullet holes Today these same wounds are looking extremely shallow and are nearly even with her regular skin level Next her hands they look amazing too The docs have always been waiting for a demarkation line on her fingers which is a definitive line between healthy looking tissue and black necrotic dead tissue I think these demarkation lines have receded a little since the last time I saw her fingers Her right hand is the better of the two and her demarkation line is further away from the palm of her right hand The palms of her hands I would say are probably a couple of weeks from being completely healed They have been wrecked with raw and exposed tissue too but now it s pretty minimal Her arms are entirely exposed which means that she has no need for wound care or constant guazing The only maintenance her arms need are some moisturizing of scabs and keloids So now to her cute butt approx 3 weeks ago Jamie asked me to take a picture of her butt so she could see what she s fighting against needless to say she was pretty shocked Today the wounds on her butt are about 1 3 the size they were in that picture But part of the healing process for her tush is that now they are superficial wounds and they are A LOT more painful which sucks because

    Original URL path: http://thejamiegroup.org/2009/01/121-progress-made-kcs-impressions-after-12-days-away/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/17 Update – Rolling, Eating and, um, Improving Digestive Functions
    t eat too much food without getting nauseous and if she can t eat without getting sick then she can t get the nutrients she needs This brings us to the beginning Jamie needs to eat real food She can t be getting her nutrients through her IV because 1 they said we can t and 2 the stomach needs to digest food its the only way to get her eating like a normal person again So in sum she needs to poop in order to get more protein and other good nutrients Yesterday and today Jamie was given some assistance to help move things along and we re pleased to report that things are working well Sorry to use the same words over and over again Its 1 30 am and I m getting sleepy and stupid We ll take additional measures tomorrow morning to help move things along but enough about poop 2 We re getting closer to wheeling Jamie around the St Joseph medical center Today as part of her physical therapy we moved her into a chair like we usually do We used the purple people mover to move Jamie from the bed to the chair Without a doubt it was the best transfer we ve ever had Smooth and painless AND we moved Jamie into a wheelchair for the first time The wheelchair wasn t too uncomfortable either Mom and I were all set to push Jamie to the ICU and all around the hospital but because Jamie s still in contact isolation gloves gown she s not allowed to leave her room for the time being So we wheeled her around the room Not as much fun as we were planning but its a step in the right direction 3 The other news concerns

    Original URL path: http://thejamiegroup.org/2009/01/117-update-rolling-eating-and-um-improving-digestive-functions/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/16 – Nick and Jamie, reunited and it feels so good
    time Jamie s recent medical news hasn t been as good as Heath Ledger s career ended up Her first issue arose two days ago She was having a problem popping her ears which she needs to do in order to dive in the hyperbaric chamber If she can t pop her ears then she can t release the pressure in her head this is painful So her doctors made the decision to put tubes in her ears like KC had when she was 6 or so Now she doesn t need to pop her ears when she dives Despite this slight improvement its still uncomfortable Then there is the issue of Jamie eating or not eating as the case may be She s having a hard time keeping her food down This is mainly an issue because we want her digestive system to start working food through it She is getting sufficient caloric intake through her IV but she can only stay on the IV for so long and needs to keep eating The problem with eating is that she keeps barfing We spoke with one of Dr Lin s associates and she made a few points about Jamie s stomach She said that her stomach is simply having a difficult time pushing food through normally She said that this could be a result of a a traffic jam in her digestive tract or b a larger than normal stomach ok that isn t what she said but its how she described it Considering that Jamie s had some good poops lately Dr Thai later said that its unlikely that she has a digestive traffic jam Jamie had a stomach x ray this evening to see if we can identify the problem Despite how bad this may sound the

    Original URL path: http://thejamiegroup.org/2009/01/116-nick-and-jamie-reunited-and-it-feels-so-good/ (2015-03-27)
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