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  • The J.A.M.I.E. Group » Press
    a row I don t think since this whole debacle started Read More News from new room new address Posted on Jan 9 2009 in Press It s been awhile since I ve posted I m overdue Everyday seems to be something new for Jamie but not so exciting for her nothing is exciting for her anymore It s seems to be hard to get her out of her funk but who can blame her it s now been officially 8 weeks 4 weeks Read More 1 7 Impressions from afar Posted on Jan 7 2009 in Press Since no one else is posting right now I ll take up the reigns and do the best I can with what limited info I have Don t expect this to be the most insightful or detailed post Those posts will come from Houston today or tomorrow or when I get there on Friday The last day Read More 1 4 Super Bug and New Room KC s post Posted on Jan 5 2009 in Press So I just wrote out a huge update and accidentally pressed the back button and the whole thing was erased so I m sorry if this update isn t as informative as you d like Nicholas and Uncle Todd So today started out with physical therapy which went well Jamie s muscle movement is progressing well She can kick Read More 2009 Happy New Year Posted on Jan 1 2009 in Press Hope everyone had a safe and fun new years eve Michelle Cristina and I brought the new years to Jamie in her cozy room with some hospital bubbly aka Sprite I am back in Houston having returned last night from a 2 day trip to the valley I ve been gone from the valley

    Original URL path: http://thejamiegroup.org/category/press/page/13/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/15 – A big (and long) Thank You to the St. Joe's People [Almost no medical info here]
    Jamie exudes a level of concern that is rare among doctors once you ve observed the bedside manner of over a dozen doctors specialists you learn the difference between Bedside Manner and true compassion Our orthopedist is from the latter group Her advice and counsel with respect to Jamie s hands and feet are wonderful and coated with her warm intentions This woman also went out of her way to introduce Jamie to another woman in the Houston area who was afflicted with the same illness This was done to help Jamie s mindset a part of Jamie that this doctor is not required to concern herself with This willingness to go the extra mile these are the feelings that I m writing about today Her plastic surgeon consult has been equal parts pragmatic and optimistic A welcome change from prior plastic consults Finally we can t forget about Dr Thai or we shouldn t forget about Dr Thai but I did when I first wrote this post He s Jamie s intensivist and oversees a wide range of Jamie s medical issues that are more typical of a usual ICU patient and he s come with us to care for Jamie in her new room s He s an insightful man and more than almost anybody he presents ideas that are outside the box Seems like a great guy to rely on when you re in a bind ICU Nurses Of course when the doctors are needed elsewhere Jamie has benefited from the careful and caring attention of many of the finest nurses we ve seen that IS a compliment we HAVE seen a lot Specifically we want to mention Cody Sarah Jessica Megan and Donna We appreciate the fact that some of these individuals come find Jamie in the George Strake Building to say hi after pulling back to back to back shifts These people have invested parts of themselves in Jamie s recovery Each of these nurses spent long nights with Jamie helping her when she needed painkillers or when she needed to barf They ve seen Jamie at her best and worst and have seen us Jamie s family go through the same mood swings Cody in particular had the fortitude to tell us read Jamie s mom when we needed to reign things in and I really appreciate that because it couldn t have been easy to do read its not easy to tell Jamie s mom anything about how to take care of her own babies damnit Also I d like to personally thank Marciella the well I don t know what she does I guess she s the main admin nurse I made up that job title To me she basically runs the show in the ICU well except for the man with grey hair and rockin moustache that actually does run the ICU Fred She showed me the ropes let me know what the rules were she was quick to let me

    Original URL path: http://thejamiegroup.org/2009/01/115-a-big-and-long-thank-you-to-the-st-joes-people-almost-no-medical-info-here/ (2015-03-27)
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  • The J.A.M.I.E. Group » Same Address Different Room – from Room 565 to Room 563
    3 foot long tube down her throat pass her stomach to her small intestines all under the watchful eye of the X ray or pull it out all together and hope for the best Hope that Jamie eats enough not to require the tube feeding Well good news not only is it out but she is eating up a storm and not throwing up or the least bit nauseated I her mom am soooooo happy I hated seeing her throw up every day two to three times a day But today she ate and ate and ate even a foot long hot dog from Sonic Great news and by the way I love seeing her sweet face without all those tubes We must keep a constant watch on her blood counts temp and heart rate all very important info because Jamie is off all antibiotics As of today her white blood count went up slightly hemoglobins went down and temp is OK all OK but I say that loosely I m very gun shy very cautious and maybe a bit too anxious about all these numbers But I watch and talk with all the docs I must of talked enough because they have redrawn blood to cross check blood types to give her a transfusion in anticipation of her next surgery debriedment on Wednesday She looses blood at each surgery so lets take care of blood now boost it up Jamie now takes all her med s orally awesome The only foreign object in her body is her central line where she receives fluids and transfusion also awesome Her body is healing at a remarkable rate but as of toady we are on the other side of our treatments We re in this for 50 hyperbaric treatments and we are

    Original URL path: http://thejamiegroup.org/2009/01/same-address-different-room-from-room-565-to-room-563/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/10 – Building Momentum – Nick's Impressions After 10 Days Away
    on her own Among the things that she can do on her own for the most part include 1 scooting herself almost unassisted to the edge of the bed so she can do her kicking leg swinging physical therapy 2 rearrange herself easily and click her necrotic fingers against the walls when she s in the hyperbaric chamber 3 pick at her scabs which have shrank or receded to a great extent we all tell her not to do this and finally 4 when she was having her cute little Babble sleeps last night she was restless and she had the jimmy legs like Kramer and it was just nice to look at her and think She looks peaceful and even if she didn t she can rearrange herself on her own 2 Jamie s Daily Routines Mom s post from two days ago presents a wonderful picture of Jamie s routine in the new room and how it is different from the ICU Her new digs are much better Jamie really doesn t need the constant monitoring that comes part and parcel with the ICU I don t know what else to add other than to remind everyone that Jamie s worst days are those where she doesn t see many people beyond her sisters and mom Trust me those are my worst days too so I understand If you have the time especially before school starts Jamie would love to see you and show you her new tricks Right now Jamie has a bunch of her guy friends here so Jamie s happy about that 3 Big Advances in Wound Care I missed her wound care treatment yesterday That was really what I wanted to see It was definitely worth the wait For those who aren t in the know part of Jamie s daily routine involves a session with Wound Care WC involves the undressing cleaning debriding and dressing of her wounds It involves the removal of the dead tissue from the wounds that cover a lot but not as much as before of her arms leg hips and ass The reason its done is so that live healthy tissue will come to the top and become skin If there are scabs or fatty deposits in the way then its hard if not impossible for the skin to rise to the surface She also gets one weekly surgical debridement This is where Dr Lin who we still love lots removes some of the fatty tissue from her wounds To analogize the difference between daily debridements and her weekly debridements are like the difference between getting your car washed and getting your car detailed Jamie has had two of these surgical debridements since I saw her last so I was expecting to see something awesome during today s WC OK all on the same page Can you tell I missed writing about this So today was the first WC session that I d seen and well Hot Damn

    Original URL path: http://thejamiegroup.org/2009/01/110-building-momentum-nicks-impressions-after-10-days-away/ (2015-03-27)
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  • The J.A.M.I.E. Group » News from new room/new address
    meds to us as fast as being in ICU but we have more privacy here not as much interruption Jamie does not have to be monitored nor has to have blood pressure cuff on poor sore arm The nurses do check her vitals every 4 hours and everything is still within normal range At least Jamies normal range Today was also a big step in that she has been d c discontinued from all her antibiotic This is great since one of them made her nauseated so she had to take 2 different meds to keep from throwing up which kept her from eating made her sleepy which kept her in a funk Just a constant whirlwind She was also d c from one of her injections epogen which helps her red blood count It was given to her 3xs a week but it was one that was painful and she truly dreaded She cried before each injection But Dr Lin removed it today which means her blood counts are better double yeah So drum roll please we are down from 25 meds daily to 15 meds daily of course some are still double doses but hey we re moving along Of course that not to say that she may have to get back on some of these meds but hey it s good for now We just need to keep a constant watch on her blood count temperature etc etc Jamie s wounds her healing with incredible speed I m sure she doesn t see it The weekly debredments help speed up this recovery by removing slufff yellowish dead tissue and exposing live tissue In fact her beautiful little armadillo tattoo that is on her butt is now officially out of the woods no longer road kill In combination

    Original URL path: http://thejamiegroup.org/2009/01/news-from-new-roomnew-address/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/7 – Impressions from afar
    the most insightful or detailed post Those posts will come from Houston today or tomorrow or when I get there on Friday The last day or so have been better from an emotional mental standpoint for Jamie She had been a bit bummed out especially since she s been in isolation but her mood seems to have improved Note Being IN isolation seems to have little to do with being IN anywhere It really refers to the process of visitors putting on face masks gloves and gowns like we had to do a few times in Austin No big deal btw I really think that she s become ok with the idea of losing her fingers and by I really think I should say She said We re not going to move forward with amputating the fingertips until next week so that 1 Jamie can meet with someone from Houston who had a similar experience with the disease side note I m having dinner tonight with someone from Dallas who had this same illness pretty excited 2 the sisters and I can be there for the surgery and 3 so that we can maybe just maybe see some progress with

    Original URL path: http://thejamiegroup.org/2009/01/17-impressions-from-afar/ (2015-03-27)
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  • The J.A.M.I.E. Group » 1/4 Super Bug and New Room (KC's post)
    couple of inches deep and is now level with the rest of her skin Her legs have the furthest to go even though they re looking much better Her mid thigh to lower calf have open wounds on them They are healing but I think they re healing from the thighs down But the healing process is starting to itch REALLY bad which is frustrating for Jamie because she can t scratch it herself But itching is the least of her problems and she s getting benadryl for it anyways After wound care Jamie did her regular hyperbaric chamber treatment where she took a nice little snooze While she was napping Mom Roni and I went to check out the room that Jamie will be moving into tomorrow Yes the patient to nurse ratio will be higher outside of the ICU but hopefully it will help Jamie feel a little more comfortable like she has her own space Because as you can imagine there is little to be comfortable about while staying in the ICU So this new room has two pullout couches for mom and another visitor to sleep on it has a mini fridge to keep Jamie s drinks cold and her snacks fresh it has good natural light and MOST IMPORTANTLY it has a bathroom attached to it So that means that we don t have to take a five minute walk to pee anymore thank goodness So tomorrow during Jamie s hyperbaric treatment we ll be moving all her junk into her new room YAY So now for some not great news Recently Jamie has been doing blood cultures particularly to check for a bacteria called Acinetobacter Infections from this bacteria are common in hospitals especially ICUs In fact infections rarely occur outside of healthcare settings This bacteria causes a variety of things to happen anything from pneumonia to serious blood or wound infections and the symptoms vary depending on the disease but at a worse case scenario can lead to death This bacteria can also live in a person without causing infection but people with compromised immune systems like Jamie are at a higher risk for this bacteria to become an infection Its commonly called the SUPER BUG because it is highly resistant to antibiotics So the only thing we can do to prevent her from contracting this bacteria is cracking down on germ transfers from visitors to Jamie So now everyone including Mom and I has to wear blue gowns and latex gloves and everyone has to wash there hands on the way out not just use the disinfectant liquid But we also need to limit the amount of junk that is coming into Jamie s room so even though we appreciate gifts Jamie would much rather see your sweet face that is if you re covered in a blue gown and latex gloves Speaking of Jamie has had a nice flow of friends coming to visit with her Aunt Nancy left Tuesday when

    Original URL path: http://thejamiegroup.org/2009/01/14-super-bug-and-new-room-kcs-post/ (2015-03-27)
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  • The J.A.M.I.E. Group » 2009! – Happy New Year!
    different routine than her normal schedule She will be having debridment done once a week in the OR under mild anesthesia So she begins this routine by not having anything to eat or drink after midnight Jamie wakes up early with an 8 30 dive she managed to stay in for the full 2 hours Her surgery was scheduled for noon so by then she is very thirsty and hungry So what little appetite Jamie has needs to be postponed till after surgery She was done and back in her room by 3 00 The purpose of the surgery is to do a more thorough cleaning of her wounds while under sedation The cleaning will allow the new tissue to heal grow faster while not having to deal with necrotic tissue Everything went well but we won t be able to see the results till Friday Because of new years day Jamie will have a well deserved break from the chamber OT PT and wound care YEA We will be so glad to have the holidays over so that we can focus on a regular routine Wound Care Chamber OT PT With the move from Austin to Houston Xmas Thursday and now New Years Thursday there was a constant wrench thrown into what schedule we were trying to have So beginning Monday there will be goals to reach milestones to accomplish to Jamie s ultimate goal of getting the hell out of here We want to send a shout out to Aunt Nancy Jenn and of course Cristina for staying with Jamie while I was gone I felt comfortable and confident that Jamie was well taken care of Thanks to all of Jamie s friends visitors Sarah Molly Cris Julie Claire Michelle Andy Caitlin Raashi Becca Pat Weston etc etc

    Original URL path: http://thejamiegroup.org/2009/01/2009-happy-new-year/ (2015-03-27)
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