archive-org.com » ORG » T » THEJAMIEGROUP.ORG

Total: 169

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • The J.A.M.I.E. Group » 12/17 Update – Slow improvement (where possible), but now she's all alone with mom
    but now she s all alone with mom Posted on Dec 18 2008 in Press I wish there was something exciting to post about but there just isn t Jamie continues along with her regular regimen of PT Physical Therapy move the legs move the arms try to sit up wound care wound care hyperbaric chamber and between all of that the constant poking and prodding that comes with being a uniquely sick patient Its pretty exhausting for her but the last few days with her friends were probably her best days in Houston Now its just mom and Cris one of her bffs that are staying with her KC and I had to go back to our cities for work I wish I was there as we all do and I ll be there this weekend Jamie s really grateful for the love and good wishes She can t wait to see you if and when you get to Houston MOM now that you have the internet you can add some new posts Tell everyone about your new and random hotel hospital room You can keep us updated from there unless you need me to and I ll be

    Original URL path: http://thejamiegroup.org/2008/12/1217-update-slow-improvement-where-possible-but-now-shes-all-alone-with-mom/ (2015-03-27)
    Open archived version from archive


  • The J.A.M.I.E. Group » 12/15 Update – Today was a good day (and her thumb isn't going to just fall off…)
    Its a procedure that will take 1 5 hours We would be doing this on Christmas Eve The reason we re doing that is because we d only be missing one day of hyperbaric treatment while she recovers the Friday after Christmas since we wouldn t be able to go on Christmas anyway We re not doing this on her hands because she has a strong pulse in her hands Jamie s second day in the hyperbaric chamber was good Her friend Cris was there and talked her through it She made it for a full 120 minutes this time She said it was hot again She also had physical therapy wound care and occupational therapy today She is getting into a regular schedule and I ll include that in the next post or two Finally KC came to town and she ll be here until Thursday morning Which is extra good because I may have to leave for work sometime this week Her friends Sarah Andy and Julie drove to town today That really brightened her day Her mood was really good today as well She and I watched Arrested Development on her massive projection screen until 1 am last night that was fun even though I wanted to go to bed She hasn t been as lethargic as she was last week either She s been eating some Hopefully she ll stop throwing up soon Dr Lin thinks she is going to start throwing up less on this new tube fed food remember she still has the food through the nose tube and gets some tube food at night to keep her calories up and her intensivist Dr Thai says that she may not even need the tube feeding at night anymore OK that s about it Send

    Original URL path: http://thejamiegroup.org/2008/12/1215-update-today-was-a-good-day-and-her-thumb-isnt-going-to-just-fall-off/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » 12/14 Update – New TV, new routines, Jamie's thumb looks ready to fall off
    still waiting for the necrotic tissue on her fingers and feet to be more defined You d think that would already be the case but her skin appears to be repairing itself further southward than before What I mean is that there appears to be new skin being produced scabbing and whatnot closer to her ankles than before and more towards the tips of the fingers than before though not even close to the tips just saying that s the direction its going During wound care today Jamie and one of the wound care people were talking about her thumb I think her right thumb looks like it is getting close to falling off or sloughing off as they say That should happen sometime soon or at least thats the impression I got I didn t ask because it seems largely irrelevant at the time When it comes off it comes off essentially that is the method wherein we ll save the most living tissue Jamie and I are very interested to see how this progresses In other news Uncle Dean and I got a video projector off of craigslist to make Jamie s room a bit nicer Cris a

    Original URL path: http://thejamiegroup.org/2008/12/1214-update-new-tv-new-routines-jamies-thumb-looks-ready-to-fall-off/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » 12/12 Update – A (Completely Random) Check-in From Houston, Day 1
    as Wet Gangrene we won t need to worry about cutting or surgery any time soon In fact his recommended treatment regimen includes 30 to 50 turns in the hyperbaric chamber for 120 minutes each I had thought we d go for 30 minutes for a few times a week Seriously if I hear one more freaking Christmas carol I m going to freak out If I m having a problem listening to the current Jackson 5 version of Christmas carols then I m already about spent As for the level of care we re getting here I think its all a matter of perspective I mean we re not getting the same type of care that we were getting at Seton by the time we left the Seton s ICU Of course a we ve only been here for about 19 hours b seen only two nurses and c everybody everything that happens on a daily basis has only happened once Add to that the facts that 1 mom has been in we re about to leave the hospital at any moment so always be ready to leave mode for three straight days and 2 mom hasn t left the hospital since Jamie got into Intermediate Care clearly I m a bit brain dead too so yeah we re too exhausted to appropriately judge Jamie s care but also they just MET Jamie so we can t expect them to attend to her like they did for Jamie at Seton at least not immediately And for the record the care at SJ is wayyyy better than the Intermediate Care at Seton just not at the Seton ICU level yet My opinion is that our family and the nurses staff will grow into a functional routine that works for everyone I m not even remotely worried about there being a drop off in care for Jamie Differences between this place and Seton are many Some are good Jamie s air mattress is better and there is a Starbucks downstairs and others aren t 2 patients per nurse Bullshit 1 TV in the waiting room Super Bullshit Onto the stuff that matters Jamie s numbers are still looking good We ve got the specter of infection looming over our heads so her slight fever and elevated WBC count are concerning but her cultures continue to show no infection The gross blistery cracked skin condition that is going on UGH you people are almost sitting right next to each other Stop talking to each other so loud IN SPANISH anyway the AHHHH SHUT UP I think they re mad because I m occupying the 1 TV watching the Chronicles of Narnia so they can t watch their Novellas tonight So yeah that condition is working its way down her legs and is almost at her ankles I m not entirely convinced that we can save her feet but it may be looking better and her hands are still wrapped in the same

    Original URL path: http://thejamiegroup.org/2008/12/1212-update-a-completely-random-check-in-from-houston-day-1/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » 12/11 Update – Going to Houston now… Thanks to Austin.
    under the care of this team of doctors They seem very enthusiastic and willing to employ treatments designed to rebuild and repair dying or dead tissue in Jamie s hands and feet There will be many more updates about the new doctors going forward As we move forward we need to recall what we ve been through What CANNOT be overstated is the level of gratitude we feel to Jamie s doctors at the Seton ICU Doctors Morrison Bissett and Momin yep I can really only remember a few of their names now really did save Jamie s life They ran the point and made the decisions that made sure Jamie lived to this point Frankly the perspective provided by the doctors I didn t like too much helped us get us to where we are so we should also be grateful for Dr Tall Doctor Dr Hand Doctor and Dr Bummer we can thank people twice after all We d also love to thank the lovely nurses at the ICU Even though we took a liking to many of the nurses we love Neema and Brittany most of all and I love Brittany most of all Sigh Without their sympathy and complete understanding of our family s situation the situation being that we re VERY overbearing and nosy thanks for understanding how crazy we can be Finally Jamie s friends and family that came to Austin for Jamie made Jamie s recovery bearable that doesn t look right Without them I m not certain that we d be where we are today Which means of course that we need to see the same support out in Houston to the extent you can make it We ve got places for you to sleep and if not we ll find them

    Original URL path: http://thejamiegroup.org/2008/12/1211-update-going-to-houston-now-thanks-to-austin/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » 12/10 (late) post – Waiting for Jamie to get to Houston [by KC]
    pretty Nicholas and I went exploring there last night when we drove into H town It s also conveniently close to Nicholas Houston office St Joe s was the first hospital built in Houston and I read a stat that said one in three Houstonians was born at St Joseph Medical Center Pretty cool But on the same note its not old looking In fact it looks as though it was recently renovated St Joe s has a lot of specific wings that will be helpful to Jamie s recovery like a hyperbaric chamber which the new impressive doctor says Jamie needs to be doing treatments in regularly It also has a great Advanced Wound Care Center which is really important because Jamie is still dealing with a lot of wounds on her legs and lower arms It also has a great rehabilitation center that s pretty fancy looking And once Jamie is strong enough i m sure she ll take full advantage of that But one of the reasons we re coming to this facility is to see a specialist that comes very highly recommended He s nationally recognized and is the chief of vascular surgery for Baylor and most importantly is focused on tissue regrowth and not as focused on cutting things off like our Austin plastic surgeon who is 80 cosmetic from what my mom told me So Jamie is gonna be flown into Houston and sent straight to the ICU of St Joe s where a team of doctors will be waiting who are already informed of her condition The only problem is that their ICU is full so now we have to wait for bedspace to free up in order to get the go ahead to send Jamie over So in the meantime we re

    Original URL path: http://thejamiegroup.org/2008/12/1210-late-post-waiting-for-jamie-to-get-to-houston-by-kc/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » Press
    4 update movin on up eventually she blisters and moves some more Posted on Dec 4 2008 in Press Short post here First we re in line for the next Intermediate Care room So once someone in the IC is well enough to get out of our room then we ll move on up pending some cleaning and other shenanigans Second Jamie did physical therapy again today and it is was kind of a drag Jamie is Read More December 1 update Jamie s attitude rocks we keep chugging along and may move to Intermediate Care soon Posted on Dec 4 2008 in Press So as always I ll start out with the good news Jamie is likely to enter intermediate care in the next few days This will basically mean that she gets her own room gets out of the ICU and doesn t have the constant attention that she s become used to over the past three weeks yeah three Read More December 1 update Jamie feels a bunch of pain eats stuff without pain other things happen Posted on Dec 2 2008 in Press Today Jamie made a couple of big strides First the biggest change is that she passed her swallow test with flying colors She moved on to applesauce pretty quickly and then onto even bigger food then she barfed Still its pretty good to know that her eating functions are still in working order Going down Read More 11 30 Update Moving into the new place waiting Posted on Dec 1 2008 in Press The past few days have been pretty busy though not necessarily on the medical front We re still largely in the hurry up and wait mode with Jamie and now we re waiting to see clear lines of demarcation on

    Original URL path: http://thejamiegroup.org/category/press/page/15/ (2015-03-27)
    Open archived version from archive

  • The J.A.M.I.E. Group » 12/8 – We're going to Houston… that's right, Houston.
    KC and I have been at the hospital today Roni has work and final projects and mom had to break up with Dr Bummer today and tell him about Dr Houston Doctor Then the Infectious Disease doctor came into the waiting room and told us that we wouldn t necessarily find what we re looking for in Houston then for no reason mom told him about the facebook group and blog despite the last blog post talking about how mad I am at the plastic surgeon s recommendation Doesn t mom know that he could read this blog now Doesn t she know that even though mom has had a gigantic girly crush on him for almost a month that s what you get mom and I think he s a wonderful wonderful doctor Hi Dr B glad you found the blog we are still pretty focused on moving Jamie is doing well She was a bit anemic yesterday but after getting some blood transfusions she s been more peppy I wonder if Jamie is currently getting transfusions of blood that we donated for her a few weeks ago thanks for that btw Jamie s vitals are good She had a restless night but ever since we ve been in IMC mom has been sleeping at the hospital Frankly I don t like the care from the IMC nurses except for one and she knows who she is girlfriend Sorry that this update isn t as Jamie centric as normal They re running some more tests on Jamie today to determine whether or not her high HR and occasional temperature are signs of infection or if they are signs of some inflammation or anything else Jamie s been eating a lot and talking a lot She s just been sleepier

    Original URL path: http://thejamiegroup.org/2008/12/128-were-going-to-houston-thats-right-houston/ (2015-03-27)
    Open archived version from archive



  •