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  • The J.A.M.I.E. Group » The Texas Jewish Post Article
    editorial paints a great picture of Jamie s Journey and her influence on the community As a young girl Jamie Schanbaum twirled and trained at Sarasue s Academy of Dance for 10 years As a young woman just 21 years old Jamie a sophomore at UT Austin and a survivor of meningitis spends her days studying and still training along with three hours of physical therapy all with great determination strength of character and belief in herself I never thought I d be here but I am and there s nothing I won t be able to do Last Nov 12 Jamie spent the night at a friend s home waking up feeling achy and worn each step on the tile colder to her touch than the one before I was freezing and nauseous and I couldn t figure out what was wrong she said At 7 in the morning I went home and I couldn t keep anything down The pain and heaviness in my feet soon moved to my hands and I didn t know what was wrong but I knew it wasn t good I called my sister and by the time we got to the hospital I couldn t stand and I was brought in on a wheelchair Jamie who had not received the Manactra MCV4 meningitis vaccine recommended by the CDC to all children after age 11 was diagnosed with meningococcemia a deadly infection of the blood The disease is caused by bacteria entering the cerebrospinal fluid that surrounds the brain which irritates the meninges the membranes that line the brain and spinal cord I remember lying there and my legs turned black My legs then my hands knees and elbows They were black Jamie said Hers was the second confirmed case of the disease

    Original URL path: http://thejamiegroup.org/2009/10/the-texas-jewish-post-article/ (2015-03-27)
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  • The J.A.M.I.E. Group » Press
    have the best therapists to help Read More 8 7 Jen Griffin comes to visit Posted on Aug 7 2009 in Blog Press STEPHEN COLBERT Tonight I report on the state of racism in America My guess Alabama I m on my way to Alabama literally writing this on the airplane but I definitely need to update everyone on the happenings in Jamie town lately First of all we re getting close to start talking about upper extremity prosthetics JP Read More 7 30 Walking Around and Jamie s New Marching Orders Posted on Jul 30 2009 in Blog Press and we re back So I guess I should start with the obvious news Jamie is really progressing on her prosthetics We ve sorted out for the most part the problems she initially was experiencing with her legs the wounds that weren t closing still open a bit by the way the knee injury from before her Read More 7 19 On Stage at the Ghostland Observatory concert Posted on Jul 19 2009 in Blog Press Well that was pretty terrific Yesterday Aaron Behrens and Thomas Turner above left and right respectively the two men who perform for thousands upon thousands of fans as Ghostland Observatory outdid themselves again and gave Jamie and her friends and mom and Roni and me some memories that we re unlikely to ever forget To Read More 7 17 Standing tall almost as tall as me Posted on Jul 17 2009 in Blog Press So I was talking today to Jennifer Griffin about scheduling her next visit to come talk to Jamie you remember her right We ve been in contact with her since our days at Seton hospital in Austin She s been a source of inspiration for Jamie and our family because

    Original URL path: http://thejamiegroup.org/category/press/page/6/ (2015-03-27)
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  • The J.A.M.I.E. Group » Schanbaum family at forefront of meningitis prevention awareness
    Box 4396 Austin Texas 78765 Donate Today Close Panel Twitter Facebook RSS Home About Understanding Meningitis Press Blog Media Photos Videos Contact Schanbaum family at forefront of meningitis prevention awareness Posted on Dec 26 2010 in Schanbaum family at forefront of meningitis prevention awareness Leave a Reply Name required Email required Website Cancel Reply Latest Posts Regarding the ACIP meeting taking place in Atlanta on Thursday February 26th February 26

    Original URL path: http://thejamiegroup.org/2010/04/texas-jewish-post-article/tjp-v64-16-04-22-10-p01-24-indd-2/ (2015-03-27)
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  • The J.A.M.I.E. Group » 7/10 – Checkup visit in Houston
    get at the fair She s been pretty anxious to get her hands out of those things So to no one s surprise Jamie unraveled her own hands before Dr Boutros came into the room to see us When Dr Boutros came in he was very happy with what he saw The webspace on Jamie s right hand is pretty big Big enough to hold a bottle of soda if she d like to Its still pretty tender so there won t be any of that nonsense going on anytime soon but it still looks pretty likely Her index finger on the right side also looks pretty good We didn t lose that much length on it at all The rest of her fingers look good As of now the index and middle fingers look like they would fit nicely into some of those Pro Digits we keep talking about So we re happy with these results Also Dr Boutros told us we didn t need to see him again for another 6 months This means that in all likelihood Jamie won t be having any surgeries until December That s pretty cool Also Dr Boutros said that except for some xeroform she has to wear in between her right thumb and index finger she doesn t need to keep her hands wrapped up anymore They re to be cleaned with soap and water and lots of moistureiser Not sure why but it sounds like it makes sense The next steps as far as her hands go will be to get used to using them They re still very sensitive But that s how its been with everything Later today mom and Jamie are going to see a doctor about her right knee cap Jamie says it is still hurting

    Original URL path: http://thejamiegroup.org/2009/07/710-checkup-visit-in-houston/ (2015-03-27)
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  • The J.A.M.I.E. Group » Surgery – YUCK!!! KC’s 25th Birthday – YEAH!!!!!!!
    t eat We went to the surgery center at 10 30 remember we had to be there at 11 and guess what doctor had an emergency and is running late Surprise Jamie was finally rolled into surgery at 2 30 In the meantime KC and Roni headed back to hotel to enjoy some birthday R R Approximately 3 hours later Dr Boutros came out of the surgery room Everything went well That s Dr lingo for it s all wrapped up come back and see me in a week and we ll do the unveiling Seriously so much detail was addressed to both hands almost too complicated to write everything down Both thumbs had exposed bones so filling down of bone was necessary then skin was pulled up to cover wound Index and middle finger on right hand also had exposed bone and were also filled down and skin was pulled up and over all requiring only 1 stitch so as not to upset blood flow The Z plasty was not done because there was not enough separation on her web This procedure can be done once and only once so Dr Boutros had to do a skin graft skin came from just under her upper arm Z plasty will be done at a later date the further Jamie can spread her web the better After a short time in recovery we were driven back to hotel which was around 7 Needless to say we were exhausted and hungry To my amazement Jamie had a comfortable night all made better having her sisters by her side But why should I be amazed Jamie is an amazing girl Watching her being poked and prodded again brought back some uncomfortable memories She s slowly coming out of this nightmare and hopefully soon

    Original URL path: http://thejamiegroup.org/2009/07/surgery-%e2%80%93-yuck-kc%e2%80%99s-25th-birthday-%e2%80%93-yeah/ (2015-03-27)
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  • The J.A.M.I.E. Group » Surgery Wednesday!
    be at the hospital at 7am which also means that Jamie can t eat any food after midnight or so and it also means that the surgery probably won t start until 10am Even though we haven t had a major surgery in a few months this seems like very familliar territory for the family I m sure that mom will have no trouble jumping through all of these familliar hoops Here s the deal with tomorrow s surgery Dr Boutros will be covering the bones on Jamie s right hand with skin taken from somewhere though I know it isn t a traditional skingraft and I also know it isn t going to be a flap procedure Jamie s hands will be free in the next couple of weeks unlike last time Also both of Jamie s hands will have a procedure called a Z plasty really and the purpose of this surgery is to increase the amount of gripping ability of both of her hands So I guess both of her hands will be hurting for a little while going forward which is why we re glad that Tommie last name withheld forgotten temporarily is letting us use an electric scooter he has so Jamie won t have to put pressure on her hands when they re still sore from the surgery Anyway wish us luck and keep Jamie in your prayers We re very hopeful that these procedures are going to be huge successes like the last one was I wish I had more to add but as you could tell from my description I don t know as much about this surgery as I have about the past ones So be sure to check back in soon for an update on how things went I m

    Original URL path: http://thejamiegroup.org/2009/07/surgery-wednesday/ (2015-03-27)
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  • The J.A.M.I.E. Group » Press
    19 2009 in Press Time for another update This one is about Jaime doing physical therapy and some new tidbits on her physical recovery She s picked up the pace on her physical therapy regimen I m very happy to report that Jamie has been working very hard at PT at home She s scheduled for only three hours of physical therapy Read More 6 18 Hair Posted on Jun 18 2009 in Press Once again sorry that it s been so long since the last time I posted on the blog Every time I feel like there s a break in the action a new project arises that requires most of my attention for the day For example this week mom flew to Dallas to help me move because nothing Read More 6 11 Live in Austin Need food for Father s Day Want to help Jamie s medical expenses Posted on Jun 11 2009 in Press Then you re in luck The fathers of two of Jamie s best friends are involved in an annual Father s Day benefit where their group of altruistic men appropriately called the Men s Club sell brisket to families on Father s Day and then donate the proceeds to a worthy cause This year the worthy cause is Jamie We Read More 6 9 A day trip to Houston playing the Wii Posted on Jun 10 2009 in Press So I don t have much to add except to say that there isn t much to add for now There will be big announcements to come hopefully sooner than later especially now that Jamie had that surgery on her knee Mom Jamie and Roni went to Houston to visit Dr Boutros He wanted to Read More There s No Place Like Home

    Original URL path: http://thejamiegroup.org/category/press/page/7/ (2015-03-27)
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  • The J.A.M.I.E. Group » 6/24 – Rockadoodle and the Dueling Narwhals!
    Jym that s what the gym at the JCC is called by me later Sorry about the picture quality Jamie and I had just finished watching the video from The Ring so our pictures are sort of out of focus Yeah so Jamie and I are back finally to playing guitar hero that was our favorite thing to do ever and even though Jamie is relegated to our permanent drummer vocalist it was SO much fun playing guitar hero with Jamie again It was even more fun once we disabled the drum foot pedal Code Yellow Green Red Blue 4 Red She can t really use the foot pedal yet even though the wounds on her knee are healing fabulously she s still being asked to only wear the legs for one hour blocks to get her used to the weight of the prosthetics Once that s taken care of she will have to use the foot pedal So if you re curious Jamie and I used an ACE bandage and this super sticky stuff called painter s tape Note It s not tape it s also probably not called Painte r s Tape and bound her hands to the drumsticks with the sticks positioned as they otherwise would be and then voila I keep telling everyone that our band s name should be The Dueling Narwhals because each hand looks like a Narwhal but I haven t met anyone else who knows what a Narwhal whale is A Narwhal Whale according to the experts is a unicorn whale hybrid See that picture over there That s a Narwhal folks And now ladies and gentlemen I m pleased to present Rockadoodle and the Dueling Narwhals PS Rockadoodle is and always has been my Guitar Hero band name PPS I m

    Original URL path: http://thejamiegroup.org/2009/06/624-rockadoodle-and-the-dueling-narwhals/ (2015-03-27)
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