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  • Meet the Board
    Hope is an open Heart Tricia Heyde is the Vice President and Chief Financial Officer for Williams Syndrome Family of Hope She volunteers her time and love in honor of her daughter Kendal Kendal was diagnosed with Williams syndrome at 20 months due to developmental delays Her diagnosis was confirmed by Microarray testing Tricia brings her Paralegal background to the foundation as well as organizational and financial skills She is responsible for the accounting budget and financial aspects of the foundation and holds a seat on the board of directors Tricia resides in Indiana with her husband and three children Her mission is to help bring hope to families Differently Abled Beautifully Perfect Erika Messer is the Director of Public Relations for Williams Syndrome Family of Hope She volunteers her time in honor of her daughter Abby Abby was diagnosed with Williams syndrome by FISH testing at 18 months of age due to a congenital heart defect Erika holds a degree in English Literature and has a certificate in web page design Her responsibilities include web page maintenance newsletters and assisting the rest of the Board with promoting fundraisers and events for the organization Erika holds a seat on the board of directors She resides in Indiana with her daughter Her mission is to spread awareness of this rare disorder and assist families affected by Williams syndrome by providing emotional support Jessica Marks is the Director of Education for Williams Syndrome Family of Hope She volunteers her time in honor of her daughter Alli Alli was diagnosed with Williams syndrome by FISH testing at three months of age due to numerous congenital heart defects Jessica has an Associate s degree in Liberal Arts and is currently working towards completing her Bachelor s degree in Education Jessica brings 15 years of

    Original URL path: http://www.wsfamilyofhope.org/Meet_the_Board.html (2015-03-27)
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  • WS Blog
    Eventually though I became more confident and accepting of the diagnosis and the scientist mother bear teacher in me came out in full force As a human anatomy and physiology teacher I had background in reading and understanding both educational and medical research When Katie was born she had congestive heart failure and was a mystery to most of her doctors This was a confusing time for us but deep down I was grateful that I could have a conversation with her doctors at a more professional level I felt like I had a better grip on her condition and in short it empowered me to care better for Katie Around the time Katie was the age of one I started diving into the literature and when I talked to my husband and other parents I had met I realized that it was too difficult for most families to understand I kept telling my husband that I wish I knew how to go about sharing this information with others It took about a year after that to come up with the idea for my blog www understandingwilliamssyndrome blogspot com It gave me a means to reach many parents throughout the

    Original URL path: http://www.wsfamilyofhope.org/WS_Blog.html (2015-03-27)
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  • Slideshow Link
    our most important goals here at Williams Syndrome Family of Hope is to continue to spread awareness We ARE a large family of volunteers dedicated to helping families In honor of all our families we have created a very special slideshow for you to enjoy Please take the time and enjoy the beautiful slide show and share with family and friends Williams syndrome is a rare genetic disorder Rare means

    Original URL path: http://www.wsfamilyofhope.org/Slideshow_Link.html (2015-03-27)
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